Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have Mono :(


Mtndog

Recommended Posts

Mtndog Collaborator

Well, as some of you know I haven't been doing so hot for the last ten days. Right after I finished school, I became extremely exhausted. I woke up on Friday December 21st and was so tired I tripped over the furball in my avatar and crashed into my VERY hard bureau. We thought it was a reaction to some trigger point injections I'd had. I was sort of up and down all week, sleeping like 12 hours at night and still needing naps. Just zonked. Couldn't even make it to Christmas Dinner.

Got worse NYE, sore throat, swollen glands. Slept all day New Year's so finally called doc today and got in. She said it's mono but they can't test you for it because I've already had it (in 6th grade!!!!!!!!!!!) so the antibodies stay in your system and you would test positive.

So, I'm supposed to rest (I'm the worst patient in the world!But I ampretty tired). Another vacation bites the dust!

Sorry- just having a wee pity party!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

So sorry!!! :( How can she be sure if she couldn't test for it?

mtdawber Apprentice

Oh dear. I hope you feel better soon.

Mtndog Collaborator

She couldn't but based on my symptoms, she made the diagnosis. I've always thought you could only have it once, but that's not the case. It's actually a variation of the Epstein-Barr virus and they think that recurring mono may be what's behind chronic fatigue syndrome. I'll tell ya, the last time I was this tired was before I went gluten-free. :(

Lisa Mentor
Well, as some of you know I haven't been doing so hot for the last ten days. Right after I finished school, I became extremely exhausted. I woke up on Friday December 21st and was so tired I tripped over the furball in my avatar and crashed into my VERY hard bureau. We thought it was a reaction to some trigger point injections I'd had. I was sort of up and down all week, sleeping like 12 hours at night and still needing naps. Just zonked. Couldn't even make it to Christmas Dinner.

Got worse NYE, sore throat, swollen glands. Slept all day New Year's so finally called doc today and got in. She said it's mono but they can't test you for it because I've already had it (in 6th grade!!!!!!!!!!!) so the antibodies stay in your system and you would test positive.

So, I'm supposed to rest (I'm the worst patient in the world!But I ampretty tired). Another vacation bites the dust!

Sorry- just having a wee pity party!

I thought once you got mono, you could not get it again? Sorry Bev that you feel so crappy, but yet you ask about others. :)

I do hope you get your mojo back soon.

xxoo Lisa

Rest well, a good thing that school is out. OOOH, I guess school is back in session.

DingoGirl Enthusiast

awwwwwwww Bev, this is not good. :( Just rest and sleep TONS and cuddle with that bundle of fur. I am so sorry, you'll be in my prayers for speedy recovery. You have had a really heinous year, let's hope this is the worst of 2007 for you.

{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}

marciab Enthusiast

Bummer ... It's good you lasted till school was out ... Hope you feel better soon. Marcia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Aw Bev, I hope this runs it's course quickly. I knew someone in high school that had it and it seemed to stick around for awhile. :(

Ursa Major Collaborator

I am sorry it ruined Christmas and New Years for you. I hope you'll feel better soon.

happygirl Collaborator

Bev,

I have struggled with mono/EBV issues since before my celiac disease dx.

Do you have a copy of your test results? They should have run the IgM and IgG for EBV, and, potentially, CMV (which can also be involved in mono). If your IgM is positive, that is an indicator that you have a current active infection. Once you have had EBV/mono, you will always have some IgGs, which doesn't differentiate between active/inactive infection. They are usually ordered together. (I am dealing with testing for it right now, and figuring out where to go from here).

Hope that you recover quickly....make sure you rest. I didn't follow doctor's advice very well.

Thinking of you,

Laura

Mtndog Collaborator

Laura- What is CMV?

Thanks for all your good wishes! School is not back in session until the 16th (university) so I can sleep until then. :blink:

dlp252 Apprentice

WOW, so sorry you are hit with this after so many other things. Gosh that sounds a LOT like what I had...and I had it around the same time you did. On Christmas Eve, I basically just sat in a chair like a slug...didn't move, lol. Fortunately we had just a small family gathering this year so my mom and aunt don't care if I sleep. :lol: And, on NYE, went to bed at 9:00! :lol:

StrongerToday Enthusiast

I've had mono, it's so awful. Send someone to the video store to stock up and just sleep, sleep, sleep. Feel better soon!

happygirl Collaborator

I never got better after mono...I believe it 'triggered' my Celiac/Celiac symptoms.

CMV is cytomeglavirus. It can also be a cause of mono. I was lucky enough to have both EBV and CMV. Same thing with the IgM and IgG.

nikki-uk Enthusiast
Well, as some of you know I haven't been doing so hot for the last ten days. Right after I finished school, I became extremely exhausted. I woke up on Friday December 21st and was so tired I tripped over the furball in my avatar and crashed into my VERY hard bureau. We thought it was a reaction to some trigger point injections I'd had. I was sort of up and down all week, sleeping like 12 hours at night and still needing naps. Just zonked. Couldn't even make it to Christmas Dinner.

Got worse NYE, sore throat, swollen glands. Slept all day New Year's so finally called doc today and got in. She said it's mono but they can't test you for it because I've already had it (in 6th grade!!!!!!!!!!!) so the antibodies stay in your system and you would test positive.

So, I'm supposed to rest (I'm the worst patient in the world!But I ampretty tired). Another vacation bites the dust!

Sorry- just having a wee pity party!

Bev,what a pain,- it's like 1 step forward 2 back :angry: ..it must be very frustrating for you.

I remember my cousin had it yrs ago and was off school for 6 months(!) 'cos she was sooo tired and achey.

I didn't realise it could reoccur <_<

Stupid virus!!! <_<

Get plenty of rest and you must also (like Patti!) let dear hubby do all the chores (and puppy poopy scooping ) ;)

Feel better soon!! :)

Mtndog Collaborator

Thank you all. Too bad Patti and I can't hole up at some spa in the desert and recover together!

Laura- I looked up CMV. Yikes!

Rachel--24 Collaborator

Bev,

That sucks. I'm sorry that you're holidays got wrecked by this. :(

I agree with Laura about getting tested to find out if its really mono thats causing this. If you only have IgG's for mono it would indicate a past infection and you might actually have something else going on. It would suck if it was something else and you are not getting treatment for it.

I hope you feel better soon. :)

MySuicidalTurtle Enthusiast

I am so sorry, Mtndog. Let's hope you recover fast and don't get sick of being sick- thatmakes it worse. Good luck and have sweet dreams.

Mtndog Collaborator

You guys are so sweet! :wub: :wub: :wub: :wub:

She (the doc) basically explained to me that once you've had it (mono EBV) it lays dormant and your system and when you are run-down you can get active symptoms again. So basically, it's just a virus caused by seriously being run down.

I finally feel like I am waking up a bit today and I'm more hungry so I'll take that as a good sign :D

I think after spending like 30 hours conferencing with students in addition to teaching and the correcting 720 pages worth of research papers and Christmas shopping, I just dropped (hey- shopped till I dropped! :P ) my body just said, "That's it!" It literally happened (the start of the fatigue) the day after I finished correcting papers.

I'll keep an eye on it though.

happygirl Collaborator

Bev,

Your doc is correct....from what I know at least! You can have high levels of IgG that can cause problems, or it can go back over to IgMs, meaning current infection. But very high IgGs can cause problems (it apparently, is one of mine) by being somewhat "heightened" versus being fully re-activated (IgM). (Can you tell I'm in the middle of this?!!!)

I hope you continue to improve, my dear!

Laura

Fiddle-Faddle Community Regular

Hope you feel better soon, Bev!

Two words:

CHICKEN SOUP!!!!!!!!!

Drink as much as you can get down. Go to the Chinese Take-out and get some egg drop soup if you can't make your own. My friend who has his own Chinese take-out restaurant says that they never use wheat in the soup, only cornstarch to thicken and turmeric to make it that funny yellow color, but better ask to make sure it's gluten-free.

Or, to fake-make it (you might need a little more energy for this):

2 cartons Kitchen Basics chicken stock

1 tsp bottled chopped garlic

1 tsp bottled chopped ginger

1 pinch turmeric

one handful preshredded carrots

1 handful frozen peas.

1 fresh or frozen boneless chicken breast

Boil all together for 8 minutes or until meat is cooked. Take out meat and let cool. To still-boiling broth, gently stir in 2 or 3 beaten eggs (pour it in slowly so it makes those nice ribbons of egg). Shred the chicken, add back in with some chopped green onions.

I like adding a pinch of curry powder to this, too.

Pee that virus out and flush it down the toilet!!!! :lol:

Mtndog Collaborator
Pee that virus out and flush it down the toilet!!!! :lol:

:lol: :lol: :lol: :lol: :lol: :lol: That's AWESOME!

After I flush it all away, can I go lie on a warm beach somehwhere?

AndreaB Contributor

I'm going to pull a Susan and go totall off topic here. Love you Susan. :wub:

Alison,

Thanks for always being willing to post recipes. I copied over the soup one. We'd be lost without your taco seasoning recipe. I'm forever grateful. :)

Fiddle-Faddle Community Regular
I'm going to pull a Susan and go totall off topic here. Love you Susan. :wub:

Alison,

Thanks for always being willing to post recipes. I copied over the soup one. We'd be lost without your taco seasoning recipe. I'm forever grateful. :)

Aw, shucks.... :wub:

Nantzie Collaborator

Oh Ugh. I hope you feel better soon.

:(

Nancy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    2. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    3. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.