Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Local Celiac Support Group's Leader Makes Me Nervous!

Electra

Recommended Posts

DingoGirl Enthusiast
DingoGirl
Posted
I even said to her "Well there are some things that aren't labeled Gluten Free that don't have gluten" and she said "No their aren't" and changed the subject.

oh dear.....them's fighting words.....I would get in LOTS of trouble in this group....... :P Maybe even get kicked out.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 80
  • Created
  • Last Reply
Electra Enthusiast
Electra
Posted
  • Author
oh dear.....them's fighting words.....I would get in LOTS of trouble in this group....... :P Maybe even get kicked out.....

LOL but my problem is that I have a little avoidance personality disorder (that has been caused by my medical condition no doubt) but I have a really hard time speaking my mind when I'm face to face with people. That is one of the things I'm hoping I can change when I'm feeling better :-)!!

dlp252 Apprentice
dlp252
Posted
oh dear.....them's fighting words.....I would get in LOTS of trouble in this group....... :P Maybe even get kicked out.....

But you'd have so much fun doing so. :lol:

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
oh dear.....them's fighting words.....I would get in LOTS of trouble in this group....... :P Maybe even get kicked out.....

Oh, me, too! Me, too! I'd be waving a carton of eggs , a red pepper, and a bag of spinach and saying innocently, "Oh, no--these aren't marked gluten-free--THEY MUST HAVE GLUTEN!!!! AAAGGGGHHH!!!!"

This woman obviously has something up her butt.

You could pull the classic husband-ly "Yes, dear. Yes, dear," and then go eat what you think is good.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Wow--Susan, Donna, can you imagine what it would be like if the three of us showed up at this group????

:lol::lol::lol::lol::lol::lol::lol::lol:

Electra Enthusiast
Electra
Posted
  • Author
Wow--Susan, Donna, can you imagine what it would be like if the three of us showed up at this group????

:lol::lol::lol::lol::lol::lol::lol::lol:

common down ladies. I need a web cam so we can be at the meeting together lol!!

Viola 1 Rookie
Viola 1
Posted
:lol::lol: Too bad we couldn't all go as a group :lol: Wouldn't we create havoc!
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
This woman obviously has something up her butt.

Maybe she's just constipated.

Rusla Enthusiast
Rusla
Posted

If I waited for everything up here to say"wheat/gluten-free" I would not be eating and that includes potatoes and rice noodles.

First of all for Canadians you should know Black Diamond Cheeses do contain gluten as I talked to the company. I stick with Kraft because they list everything. As for fruits and vegetables they wax and crap they spray on them has been reported as containing gluten.

As I am paying a fortune for my food as it is I decided to continue with the trend and buy organic for health's sake. They taste better also organic and when I can I buy fresh from the organic growers.

Viola 1 Rookie
Viola 1
Posted

B.C. fruit..even the waxed stuff is gluten free. But we have our own fruit trees, so buy very little fruit. Having said that, organic isn't in the budget :( even for what we have to buy.

Thanks Rusla for the information on Black Diamond cheese! :o I didn't know that. I've always bought Kraft anyway, but nice to know if I ever get in a store that doesn't have Kraft handy.

DingoGirl Enthusiast
DingoGirl
Posted
LOL but my problem is that I have a little avoidance personality disorder (that has been caused by my medical condition no doubt) but I have a really hard time speaking my mind when I'm face to face with people. That is one of the things I'm hoping I can change when I'm feeling better :-)!!

Angie, I DO think that this will improve the longer you're gluten-free, as it has for me. (of course, I could actually USE a little of that disorder in my own personality :ph34r: .....I have no trouble speaking my mind....but I HAVE noticed the reverse - - I am much calmer and don't need to assert myself as often. :))

But you'd have so much fun doing so. :lol:

yup. ;)

Oh, me, too! Me, too! I'd be waving a carton of eggs , a red pepper, and a bag of spinach and saying innocently, "Oh, no--these aren't marked gluten-free--THEY MUST HAVE GLUTEN!!!! AAAGGGGHHH!!!!"

This woman obviously has something up her butt.

Yes, Alison, wave away with your non-labelled items! :lol: The woman sounds like an eejit, clearly.

Wow--Susan, Donna, can you imagine what it would be like if the three of us showed up at this group????

oh dear.......oh dear......... :lol:

It's just sad that she'll be the "educator" in this group, and people WOULD starve if they ate only foods labelled gluten-free.

Angie, I would say, go and observe, maybe take some printed materials to give her, and when you're healthier and emboldened, a few months down the line, go again.......

It would be fun to go as a group, though....;)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
The woman sounds like an eejit, clearly.

ummm...what's an eejit? :blink:

Rusla Enthusiast
Rusla
Posted

Well Shirley, I can't afford organic monetarily speaking but physically I have to sobe it. You are lucky, you have fruit trees and stuff like that. I need to live in Jamaica or the Bahama's with Johnny Depp, they have real fruit trees, unsprayed and they taste like fruit. Not like the crap you find in Safeway.

For all the American's I am so jealous you have Trader Joes.

2Boys4Me Enthusiast
2Boys4Me
Posted
ummm...what's an eejit? :blink:

In Britian referred to as an "idgit" or in technical terms an "I D 10 T" or for the layperson "idiot".

Felidae Enthusiast
Felidae
Posted
First of all for Canadians you should know Black Diamond Cheeses do contain gluten as I talked to the company. I stick with Kraft because they list everything. As for fruits and vegetables they wax and crap they spray on them has been reported as containing gluten.

Also, for Canadians. I contacted Parmalat a while back and they said that they will not guarantee any of their products to be gluten free, not even their milk.

lovegrov Collaborator
lovegrov
Posted

"However, it seems obvious that a HUGE percentage of celiacs have other food allergies/issues as well."

Obvious based on what? Remember that folks who frequent celiac forums are not representative of the general celiac population. Most have more physical problems than the average person with celiac and many are more sensitive to gluten than average. The majority who come to the forums early on in the gluten-free diet leave or simply lurk after adapting, meaning only a small percetage are "veterans." And the forums are overwhelmingly female. I don't say that disparingly in any way; it's just a fact.

I don't believe, based on my experience, that a HUGE percentage of people with celiac have other food allergies, but if you know of some studies proving otherwise I'd be glad to read them. I do know some people have dairy problems (and a large number do not), but that often disappears after going gluten-free.

richard

lovegrov Collaborator
lovegrov
Posted

I'm curious if Black Diamond said their cheese does have gluten, or was it just the CYA, "we won't guarantee." I ask because I just looked at their web site and didn't find a cheese with gluten in the ingredients. And the shredded cheeses use cellulose for anti-caking.

richard

lovegrov Collaborator
lovegrov
Posted

deleted

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
"However, it seems obvious that a HUGE percentage of celiacs have other food allergies/issues as well."

Obvious based on what? Remember that folks who frequent celiac forums are not representative of the general celiac population. Most have more physical problems than the average person with celiac and many are more sensitive to gluten than average. The majority who come to the forums early on in the gluten-free diet leave or simply lurk after adapting, meaning only a small percetage are "veterans." And the forums are overwhelmingly female. I don't say that disparingly in any way; it's just a fact.

I don't believe, based on my experience, that a HUGE percentage of people with celiac have other food allergies, but if you know of some studies proving otherwise I'd be glad to read them. I do know some people have dairy problems (and a large number do not), but that often disappears after going gluten-free.

richard

Good heavens, Richard, you think that I am wrong because I am not basing my observations/experience on official studies; yet you insist you are right based on your observations/experience--you're not quoting any studies to back up anything you are saying!

YOU CAN'T HAVE IT BOTH WAYS.

dlp252 Apprentice
dlp252
Posted
Wow--Susan, Donna, can you imagine what it would be like if the three of us showed up at this group????

:lol::lol::lol::lol::lol::lol::lol::lol:

:lol: indeed!

lovegrov Collaborator
lovegrov
Posted
Also, for Canadians. I contacted Parmalat a while back and they said that they will not guarantee any of their products to be gluten free, not even their milk.

No matter what they say, their milk is gluten-free. However I wouldn't drink just because of their attitude.

richard

ravenwoodglass Mentor
ravenwoodglass
Posted
But wheat straw might be the source for the cellulose. Google "cellulose from wheat" and dozens of links pop up. Here is just one: Open Original Shared Link

Thanks for this, I have been glutened by store brand cheeses. I just didn't feel comfortable saying so without a link to prove it. Thanks

Electra Enthusiast
Electra
Posted
  • Author

This is the kind of luck I always have UG!! My MIL usually watches the kids for me and she can't do it tonight. There is a slight possibility that hubby will get out of work on time, but I won't know for sure until it's time to leave!!

I also got our new mattress today that we've waited over a week for and they went to set it up and the bed frame we bought does not have all the pieces so I may have to drive 45 min to get that piece and I was suppose to get FREE sheets with my bed because I don't have any in that size yet, and they forgot to send those too so I have to get to them all before they all close UG!!

I swear they could make a soap opera out of my bad luck ;-)!! I could take reality TV to the next realm hehe!!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Too bad we can't all go with you and yell at them for screwing up your bed!!!!

happygirl Collaborator
happygirl
Posted

Angie,

I'm sorry you won't be able to go! Maybe next month.

In terms of managing the board --- this thread probably would have been better suited to the thread that it was referencing...otherwise people might not know what you are talking about! Often, related ideas are kept together in the thread for this reason.

Laura

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.