Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kimberly-clark


srokie

Recommended Posts

Canadian Karen Community Regular

Actually, it was someone called CeliacMe and here is what was going on:

Open Original Shared Link

I think around Post #74 onward is when I just lose it....... all the while, this is exactly the same time you were PM'ing me, just as I was doing an "IM OUTTA HERE!". That's why you only got one from me, but I passed the word on to make sure you were welcomed properly.....

Hugs.

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 252
  • Created
  • Last Reply
DingoGirl Enthusiast
Susan,

When you joined...you were going through alot...like so many of us. But NO...you were NEVER depressing. I think I met you right after you joined (we taked about C-diff :) )....and since then...good days and bad we've loved having you here. I dont think you could have possibly scared anyone off....especially with those cute dingo's always staring at us. ;)

Thanks Rach. I do remember telling you that one-third of people DIE from C. Diff - - felt bad about being the messenger of THAT news. :huh: Later thought - I should not have told you that (researcher that you are, you knew anyway). Holy over-analyzing, Batman......

Karen - actually wishing I hadn't mentioned anything. I have seen you be mostly attentive toward people. Anywho now I"ve created....more controversy?

will read the thread, in between watching Golden Globes. Yup, it's very cerebral over here tonight, folks. ;)

Canadian Karen Community Regular

Hey Susan! No Problem! I just wanted to point out how misunderstanding can so easily occur and we sometimes have absolutely no clue what's going on "behind the scenes"......

The above noted thread was the straw that broke the camel's back though, and that's exactly the time you happened to PM me. But the real kicker (and the one that shows Celiachap in all his true glory) and the one that send me in search of "Moderator Nerve Pills", is this one (I had just finished dealing with this guy when the other thread started, and at that point, I HAD HAD IT!!! LOL!)

:

Open Original Shared Link

This guy was a real piece of work..... <_<

Hugs always, Suzie Q!

Karen

DingoGirl Enthusiast

oh my gosh, I just read about three pages of that HEINOUS thread. That's a BAD one.

You know......it is astonishing....I joined on January 27th - the very day this was all going on. I can see why you took your "vacation" - - what a nasty thing that was. And here was sad little me - - with no IDEA in the world what was going on in YOUR world......

and all this time, I have mildly perceived that you thought I was a pest, or something.

This whole thing has been really eye-opening. I am....flummoxed! :huh:

Karen - I am feeling slightly tail-between-legs but also quite glad that's been cleared up. And you know what? I honestly couldn't tell you WHO interected with me in my earliest posts - it's all such a blur. I know all too well that the depressed person can take things very personally.

Hugs to you. I am glad that angry poster was banned.

:)

Rusla Enthusiast

Well, I for one adore eating paper towels and toilet paper. Being the sign of the goat it is natural for me to eat anything that doesn't eat me first. You should see me lust after the large packages of paper towels in costco. Yes, they have caught me many times passed out from "TTS (toxic towel syndrome)."

As for shampoos, it is usually us who get DH who have to worry about them they say, but I worry about being glutened if it drips in your eyes or mouth.

Now for my final thing that had me howling because I misread it was "Planters, dust their nuts with flour." Can you imagine what went through my mind? I envisioned people planting things and you surely can figure out the rest.

I know, I am sick.

DingoGirl Enthusiast
I know, I am sick.

:lol::lol::lol: aghhhhhhhhhhhhhh!!

Rusla is obviously eating too many paper products and dusting too many nuts. ;)

Viola 1 Rookie
Well, I for one adore eating paper towels and toilet paper. Being the sign of the goat it is natural for me to eat anything that doesn't eat me first. You should see me lust after the large packages of paper towels in costco. Yes, they have caught me many times passed out from "TTS (toxic towel syndrome)."

As for shampoos, it is usually us who get DH who have to worry about them they say, but I worry about being glutened if it drips in your eyes or mouth.

Now for my final thing that had me howling because I misread it was "Planters, dust their nuts with flour." Can you imagine what went through my mind? I envisioned people planting things and you surely can figure out the rest.

I know, I am sick.

:lol: Actually, I've had trouble with Planters nuts before, but I just lately found out what it was. I walked into the living room where the nuts were, and caught my hubby dipping into the nuts, he had just finished eating a sandwich! That's why I've had trouble with the nuts :o Needless to say, he won't be dipping into my nuts without washing his hands next time. :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast
:lol::lol::lol: aghhhhhhhhhhhhhh!!

Rusla is obviously eating too many paper products and dusting too many nuts. ;)

Yes, I am licking my lips and staring longingly at a box of kleenex. If only I could reach them.

I have my heart set on dusting some nuts.

Has anyone seen Johnny Depp?

Rusla Enthusiast
:lol: Actually, I've had trouble with Planters nuts before, but I just lately found out what it was. I walked into the living room where the nuts were, and caught my hubby dipping into the nuts, he had just finished eating a sandwich! That's why I've had trouble with the nuts :o Needless to say, he won't be dipping into my nuts without washing his hands next time. :rolleyes:

Tell your hubby that your nuts are out of bounds and if he wants to be grabbing nuts with flour-filled hands than he best get his own.

Canadian Karen Community Regular
Yes, I am licking my lips and staring longingly at a box of kleenex. If only I could reach them.

I have my heart set on dusting some nuts.

Has anyone seen Johnny Depp?

He's probably out partying with Keith Richards, discussing the next sequel to Pirates...... I hope they don't fall out of any coconut trees....... :ph34r::lol:

Rusla Enthusiast

Coconuts are good, just don't dust them. I will wait below the tree to catch Johnny. Someone else can have Keith.

Kaycee Collaborator
Coconuts are good, just don't dust them. I will wait below the tree to catch Johnny. Someone else can have Keith.

I'll toss you for Johnny.

Keith's a bit too old for me.

Rusla Enthusiast

Keith is too old for everyone and too drunk most of the time.

lovegrov Collaborator

I had forgotten that doctor-hating thread. CeliacMe was just too angry to be rational. I assume that's why she was banned.

richard

Canadian Karen Community Regular
I had forgotten that doctor-hating thread. CeliacMe was just too angry to be rational. I assume that's why she was banned.

richard

I don't think I will EVER forget that thread, Richard! :unsure: That was a nightmare!

Karen

blueeyedmanda Community Regular

that thread must have been before my time, or I just didn't notice it.

Viola 1 Rookie
Tell your hubby that your nuts are out of bounds and if he wants to be grabbing nuts with flour-filled hands than he best get his own.

He says he was born with some :lol::lol: In future I will be buying him his own cans. :rolleyes:

Viola 1 Rookie

I remember both CeliacMe and CeliacChap. Both were people to avoid at the time. I do hope they have improved their personalities with the diet. They are probably nice people without a chip on their shoulders and without all the anger about getting this disease.

Fiddle-Faddle Community Regular

Wow, those were some very intense threads. :blink:

Canadian Karen Community Regular
Wow, those were some very intense threads. :blink:

Tell me about it..... <_<

You came on just after all this went down......

He even came back to haunt us a few more times under different names, including masquerading as a woman. Was NOT a good time around then for me......... for some reason, he singled me out and unleased numerous personal attacks on me (and celiac3270 also.....).

I guess it takes all kinds to make the world go round..... <_<

Jestgar Rising Star
He says he was born with some :lol::lol: In future I will be buying him his own cans. :rolleyes:

Your husband prefers to have his nuts in a can?? :blink:

Canadian Karen Community Regular
Your husband prefers to have his nuts in a can?? :blink:

ROFLMAO!!! :lol:

Viola 1 Rookie
Your husband prefers to have his nuts in a can?? :blink:

:lol::lol: Oh heavens ... I'm laughing so hard, I can't see for tears. :lol:

ROFMAO :lol::lol:

I sure needed that this morning. :lol: Okay, now I gotta go pee :lol:

Lisa Mentor
Tell me about it..... <_<

You came on just after all this went down......

He even came back to haunt us a few more times under different names, including masquerading as a woman. Was NOT a good time around then for me......... for some reason, he singled me out and unleased numerous personal attacks on me (and celiac3270 also.....).

I guess it takes all kinds to make the world go round..... <_<

Karen:

Was CeliacChap the same as Julia's Husband and then morfed into the guy that was after me?

Lisa

Canadian Karen Community Regular
Karen:

Was CeliacChap the same as Julia's Husband and then morfed into the guy that was after me?

Lisa

I highly suspect they were....... Their writing styles were the same and both mentioned the same things a few times......

Karen

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.