Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help My Daughter Has Dh And I Need Her To Have A Reaction Now!

Electra

By Electra
in Dermatitis Herpetiformis

Recommended Posts

Electra Enthusiast
Electra
Posted

Usually she has at least one or two spots, but she hasn't been eating lately and when she does she only wants bananas or potatoes, but she's going to the dermatologist tomorrow and I need her to have some spots.

Is there any foods that can initiate an "almost" immediates response. She's only 2 so I can't force her to eat anything, but I gave her a few ritz crackers and a some gold fish a few times last week and she only got one spot. She had a few goldfish crackers today and still has no spots. She's itching her hairline, so I think she's getting one there, but I really want one of her spots to be on her body somewhere and I'd really prefer a pretty big outbreak. Man why can you never get symptoms when you want them UG!!

Any suggestions?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

I've heard that iodine can cause a reaction if you put it on her skin. If you decide to try that I'd start with a very very small section. Like the tip of a q-tip. Just in case you get a big reaction.

Electra Enthusiast
Electra
Posted
  • Author

Wow thanks for the info. It's worth a try right. I don't actually have any iodine, but I'll run to the store later and grab some!! I'll let you know what happens!!

chrissy Collaborator
chrissy
Posted

why do you want to induce a reaction? has she not been officially diagnosed yet?

Electra Enthusiast
Electra
Posted
  • Author
why do you want to induce a reaction? has she not been officially diagnosed yet?

Yes that's why because she has not been officially diagnosed yet. I tested positive and she tested negative with the blood test. My daughter has a rash that I'm sure is DH but it comes and goes, and I need the dermatologist to see this rash so that they will do a skin biopsy!!

marciab Enthusiast
marciab
Posted

You've probably already thought of this, but how about trying different gluten sources. Like a green drink with wheat grass, whole wheat pasta, rye crisp or bread, something with barley ...

marcia

Electra Enthusiast
Electra
Posted
  • Author
You've probably already thought of this, but how about trying different gluten sources. Like a green drink with wheat grass, whole wheat pasta, rye crisp or bread, something with barley ...

marcia

Thanks so much for the suggestion Marcia. I'm trying like mad to get my daughter to eat gluten, but she just doesn't eat much of it. She'll eat a cracker here and there, or a half a piece of toast, but she won't eat much else. She's figured out that if she eats bananas, potatoes and popcorn that she doesn't get sick so that's about all she'll eat. Pretty smart for a 2 yr. old to figure out what makes her feel bad :o. I'm just afraid we are going to go in there and they are going to think I'm just a nutcase that wants tests run for no reason!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Michi8 Contributor
Michi8
Posted

From what I understand, you don't need a current outbreak for biopsy. The dermatologist should be able to take a sample from beside an old lesion. But I'll look into that information to confirm...I'll post back when I find it.

Michelle :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,039
    • Most Online (within 30 mins)
      7,748
    Joann Boston
    Newest Member
    Joann Boston
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      This is an older article, but may be helpful.  
    • gfmom06
      Celiac getting dentures

      By gfmom06 · Posted

      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Is this celiac?

      By Beverage · Posted

      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.