Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Please


Johnny123

Recommended Posts

Johnny123 Newbie

Hi there

Has anyone heard of eye rolling as a symtom of Celiac.

My 8 year old son has started rolling his eyes into his head for the past few weeks. He doesnt know he is doing it.

We are trying to rule out all possibilities so any help would be greatly appreciated. Celiac is in the family.

Thanks for reading


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Hi Johnny, eye rolling is a common tic with Tourette syndrome. You may want to see a pediatric neurologist.

Which of course doesn't mean that your son doesn't have celiac disease, especially if it runs in the family. I find that my tics are much worse when glutened. They aren't nearly as bad as before I started the gluten-free diet.

Johnny123 Newbie

Hi Ursa

Thanks for that.

Yes we know that we are probably looking at Touretts, nad we have found very usefull and helpfull info on many sites.

We are trying to to dismiss all possibilities, to see what is triggering this.

Thanks for taking the time to respond.

John

GFBetsy Rookie

Just wanted to throw in: if he doesn't know he's doing it, it is probably not OCD. With OCD, people know they are doing the tic-like behaviors, but feel that they must do them. Good luck with getting a diagnosis.

Ursa Major Collaborator

Betsy, I don't quite agree on the OCD. I often have to blink my eyes (and I mean a lot). I KNOW I am doing it, but I can't stop. There are other tics I can suppress (even though they'll come out eventually if I do), but I have never been able to suppress the eye blinking and clearing my throat.

If somebody feels he HAS to count to a certain number in order to do something, or needs to check if all the windows and doors are locked several times before leaving the house, or absolutely needs to do a certain number of push-ups a day before he can go to bed at night (my husband does that, but thinks I am crazy for suggesting that is obsessive behaviour), then you're dealing with OCD.

Of course, sometimes it isn't possible to know the difference. And I don't always know the difference between my autistic stims or tics. Because those things all overlap.

Gentleheart Enthusiast

I don't want to get off the track here, but I'm interested in the eye blinking and throat clearing. At least 2 of my family members did that all through childhood. It dwindled down to occasional in adulthood and seems controllable. Is that tourette's? Never knew what it was. Does it have anything to do with celiac especially?

tarnalberry Community Regular
I don't want to get off the track here, but I'm interested in the eye blinking and throat clearing. At least 2 of my family members did that all through childhood. It dwindled down to occasional in adulthood and seems controllable. Is that tourette's? Never knew what it was. Does it have anything to do with celiac especially?

Sometimes, those two are signs of allergy problems and/or asthma.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lonewolf Collaborator

My 11 year old son has struggled with the eye rolling thing. Somewhere in the "Parents of kids..." section I started a thread about it, probably 8-9 months ago. Sorry I can't remember what it was called or how to find it.

Anyway, since he's gone gluten-free, it has gone away. One of the ways we can tell if he's been glutened is that his eyes start doing the rolling thing. He'd been doing it for several years and we all of the sudden realized that it had stopped one day.

Johnny123 Newbie
My 11 year old son has struggled with the eye rolling thing. Somewhere in the "Parents of kids..." section I started a thread about it, probably 8-9 months ago. Sorry I can't remember what it was called or how to find it.

Anyway, since he's gone gluten-free, it has gone away. One of the ways we can tell if he's been glutened is that his eyes start doing the rolling thing. He'd been doing it for several years and we all of the sudden realized that it had stopped one day.

Lone wolf

When did you child dtart eye roling??

My son is 8 and started 3 weeks ago.

GFBetsy Rookie
Betsy, I don't quite agree on the OCD. I often have to blink my eyes (and I mean a lot). I KNOW I am doing it, but I can't stop. There are other tics I can suppress (even though they'll come out eventually if I do), but I have never been able to suppress the eye blinking and clearing my throat.

If somebody feels he HAS to count to a certain number in order to do something, or needs to check if all the windows and doors are locked several times before leaving the house, or absolutely needs to do a certain number of push-ups a day before he can go to bed at night (my husband does that, but thinks I am crazy for suggesting that is obsessive behaviour), then you're dealing with OCD.

Of course, sometimes it isn't possible to know the difference. And I don't always know the difference between my autistic stims or tics. Because those things all overlap.

Ursa -

I actually was trying to say the same thing . . . I guess I just wasn't clear enough about it. My point was that people with OCD are AWARE of their compulsions . . . but they feel impelled to do them anyway - even when they think they are odd or don't WANT to do them. Sometimes those compulsions are controllable for a while (sometimes people can put them off until they are alone, for example), sometimes they aren't controllable and must be done right away, no matter how embarrased the person gets by his or her own behavior.

Anyway, what I meant was: since he DOESN'T know he's rolling his eyes, it's probably not OCD because people with OCD are generally aware of their compulsive behaviors, whether they can control them or not.

Hope I wasn't confusing.

lonewolf Collaborator
Lone wolf

When did you child dtart eye roling??

My son is 8 and started 3 weeks ago.

I think he started it at age 8 also. I'm sure it was in 3rd grade. At first we thought it was because of stress (we were in the process of adopting our youngest at the time). It was getting REALLY bad for a while. He would be somewhat aware, but not in control of it. We first started trying gluten-free about a year ago, but he wasn't cooperative. But that's when we noticed the eye rolling was better/worse depending on gluten intake. He's "bought in" to the idea of gluten-free now and is happy that the eye thing has stopped too.

Johnny123 Newbie
I think he started it at age 8 also. I'm sure it was in 3rd grade. At first we thought it was because of stress (we were in the process of adopting our youngest at the time). It was getting REALLY bad for a while. He would be somewhat aware, but not in control of it. We first started trying gluten-free about a year ago, but he wasn't cooperative. But that's when we noticed the eye rolling was better/worse depending on gluten intake. He's "bought in" to the idea of gluten-free now and is happy that the eye thing has stopped too.

Thanks for that lonewolf.

Did you also get your son tested?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,653
    • Most Online (within 30 mins)
      7,748

    Janet51
    Newest Member
    Janet51
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.