Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sandwich 101


sandys

Recommended Posts

sandys Newbie

I have this senario that has happened several times in restraunts with me and my husband. He doesn't think that I should have to cause such problems when I order and get everything separate. So he says just take the bread off. I tell him I don't think that the bread should touch my chicken. He says that if anything the bread would absorb not the other way around. If I order a salad I have asked about croutons and said I don't want any. He said honey you can pick them off. Am I being over sensitive? When I read stories from other people I read how careful they are. Sandy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

You are not being overly sensitive. You are being completely reasonable. Your husband, on the other hand, clearly doesn`t get it. :angry:

Jestgar Rising Star

Well, I go to conferences where sometimes all they have are sandwiches. I carefully pull the bread off and throw it on a napkin, then use a butter knife to scrape any surface that was touching the bread - scrape, wipe knife on clean section of napkin, scrape, wipe knife on clean section of napkin, and so on. I also carefully inspect all sandwich ingredients for any sign of crumbs, and sometimes use an additional napkin to wipe off the meat or cheese or whatever. And finally, if there is anything I can't verify as being "clean" (like tomato slices not protected by larger slices of cheese) I throw it away as well.

And sometimes I still get glutened.

StrongerToday Enthusiast

Recently someone used a gluten is like raw chicken analogy... if someone had put raw chicken on top of your sandwhich, would you still just pick it off and eat the sandwich??? I know I wouldn't!

jkmunchkin Rising Star

You are absolutely not being to picky. The reason this diet can be hard is because of the cross contamination factor. You need to be very careful about not even having a crumb. If you just pick the croutons out of the salad or just take the bread off the sandwich, etc. etc., you might as well just eat the bread and the croutons because you are doing the same damage by having the crumbs as you would be if you just ate the bread.

Like the raw chicken analogy; if that was on your bread you wouldn't say, "oh it's just a little salmonella."

tarnalberry Community Regular

You are not being overly sensitive. Bread leaves crumbs - even your husband can see that. You cannot eat those crumbs. Tell him to deal. :angry:

Ok, maybe phrased a little nicer. :P

Juliebove Rising Star
I have this senario that has happened several times in restraunts with me and my husband. He doesn't think that I should have to cause such problems when I order and get everything separate. So he says just take the bread off. I tell him I don't think that the bread should touch my chicken. He says that if anything the bread would absorb not the other way around. If I order a salad I have asked about croutons and said I don't want any. He said honey you can pick them off. Am I being over sensitive? When I read stories from other people I read how careful they are. Sandy

Your husband is wrong. We have an old fashioned drive in here and my daughter was craving their food. So I ordered some fries and also a burger patty, no bun. I failed to check the order and we took it home to eat it so I could put it on her gluten free bread.

To my dismay they had put it on a bun. I pulled off the bun, rinsed the patty, reheated it and gave it to her. And guess who got sick? Yep. About a half an hour after eating she was doubled over in pain screaming, "My tummy HURTS!" We haven't been back there since.

Here's how I explain this to people who don't understand. I find the smallest pill I can. Now it really helps if I can get one of the person's own pills, like a prescription med. If not I will use one of my daughter's Zyrtek pills. They're really small. I then say to them, what happens to you if you forget to take this pill? They'll usually answer by saying something like, "My allergies will flair up", "My legs will swell", or whatever the reason they were taking the pill for is. To which I reply, "And yet it is sooooo small. You wouldn't think something so tiny would have such an effect on you!" I might also add that most of the pill is filler and the amount of real medicine in there might not be more than a fly speck. That one usually gets them. If it doesn't then they're just hopeless.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



astyanax Rookie

i love both the raw chicken and the medication analogies! thanks for a great way to explain to people how important avoiding cross contamination is.

:)

happygirl Collaborator

The other analogy that is often used on this board is that gluten is like poison to a Celiac.

Would you (or your husband) be comfortable with two big slabs of rat poison, that crumbles, on your food? Would he be comfortable picking it off, and 100% confident that not one little crumb remains? Is he willing to take that risk?

There is medical evidence that shows that very little amounts can cause damage. We are all proof that reactions occur in tiny amounts.

If you want to be gluten free, Celiacs can't be picking things off. Otherwise, you are asking to be glutened, basically. Our bodies don't care *how* the gluten got in, or what our intent was (cheating, not asking about ingredients, trying to "get rid of the gluten", etc), but if its there, its not good :) Celiac doesn't discriminate!

I'm sorry that your husband does not understand yet. I hope that he comes around and learns how serious this is to your health. Good luck!

Laura

zansu Rookie

BTW, when I was only a few weeks gluten-free, I thought I could do that -- take the meat out of the sandwiches they brought in for a meeting. I missed most of the afternoon session..... I will NOT make that mistake again.

emcmaster Collaborator
Well, I go to conferences where sometimes all they have are sandwiches. I carefully pull the bread off and throw it on a napkin, then use a butter knife to scrape any surface that was touching the bread - scrape, wipe knife on clean section of napkin, scrape, wipe knife on clean section of napkin, and so on. I also carefully inspect all sandwich ingredients for any sign of crumbs, and sometimes use an additional napkin to wipe off the meat or cheese or whatever. And finally, if there is anything I can't verify as being "clean" (like tomato slices not protected by larger slices of cheese) I throw it away as well.

And sometimes I still get glutened.

I'm surprised (but a little jealous!) that you don't get glutened all the time. Gluten doesn't have to be visible to be there. I can't eat anything that is even made on the same counter as a piece of bread!

Jestgar Rising Star

I do it less and less. Usually now if I'm going to do that I'll save my sammy for later and clean it up in the lunch room. And it's not a casual approach. Some of the breads are really crumby and I avoid those, and sometimes I think the meat was really dry and no matter which bread it was on it has lots of crumbs. Those I just throw out. I also don't take the veggies sandwiches because veggies don't seem to clean off as well.

I try to keep a can of soup in my desk drawer so I'm not at that point of desperation.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    2. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    5. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748

    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.