Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Arghh ... Some Docs, What Nerve!

num1habsfan

By num1habsfan
in Doctors

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

OK I have to share you my horror story from today. Its bugging me so much I think i'll just cry as I type it. Last night my stomach caught me just randomly. And I'm not talking some bad pains, I'm talking MAJOR PAINS--The worst I have been in pain this whole past year. I couldnt sleep. And I threw up (which has NEVER come along with the pains before). It felt like someone like my right side on fire and forgot to turn off the lighter. I tried taking Buscopan (i took 4 in like a 3 hour span) and it did nothing to help.

This morning I called home and dad came in earlier before he had to start work and took me to the hospital here in Yorkton.

I waited almost THREE HOURS to even see the doctor, and the dude had some nerve!!! He wouldnt test me (just a basic urine sample), all he did was touch my stomach in different places and say "does it hurt here". He said he has no clue what it is and to go see my family doc since he knows the situation.. :blink:<_<:(:angry: *cries*

My mom called the hospital and gave them...heck (using a nice word here)...and so they're supposed to call her back once the lady's out of the meeting to see if they'll take me back in again and actually check for something. If not, she'll drive here to pick me up and take me to Canora hospital.

What if this IS something serious? I have a friend in nutrion/health, and shes worried that maybe it could even be appendicitis. And yet these guys wont help??

I'm not going to school...my classmates will kill me, my teachers will kill me, but if I go to Canora i'll make sure I get a note...if I cant even sit in a chair, or can only lie flat, HOW could I possibly sit in a hard chair for 6 hours in class and then try to focus??

Sorry this is a rant, but I needed to get it out :( . I'll keep this updated

~ lisa ~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Lisa,

I'm very worried about you. It could be appendicitis, or have you ever been checked for ovarian cysts? They can be as painful as you describe (believe me!) A pelvic ultrasound would be a good idea, I think.

Please let us know how you are, when you can. I'll be thinking about you :)

lonewolf Collaborator
lonewolf
Posted

Lisa,

I'm so sorry you're having this much trouble. I hope you can get in to see a competent doctor SOON! Is it actually your stomach or cramping type pain? I had a twisted ovary once and it hurt so bad I was vomiting. It can be excruciating. I hope you figure out what's wrong and get better fast.

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Lisa,

I'm very worried about you. It could be appendicitis, or have you ever been checked for ovarian cysts? They can be as painful as you describe (believe me!) A pelvic ultrasound would be a good idea, I think.

Please let us know how you are, when you can. I'll be thinking about you :)

Check in my signautre ;) I was checked for ovarian cysts with a pelvic ultrasound this fall.Oh and mom's on her way for me now. Yorkton hospital never called back, and she called Canora hospital and they said to bring me in. Clearly small towns aren't always a bad thing...

Oh and lonewolf, it started off with cramps thru my whole stomach and then in no time at all stayed with the usual low right side.

~ lisa ~

jerseyangel Proficient
jerseyangel
Posted

Check in my signautre ;) I was checked for ovarian cysts with a pelvic ultrasound this fall.Oh and mom's on her way for me now. Yorkton hospital never called back, and she called Canora hospital and they said to bring me in. Clearly small towns aren't always a bad thing...

Oh and lonewolf, it started off with cramps thru my whole stomach and then in no time at all stayed with the usual low right side.

~ lisa ~

Yes, I see that now :huh: Don't mind me, I'm a little slow on the uptake :lol: I'm glad that your mom was able to get you in--they really need to figure this out for you.

Lisa Mentor
Lisa
Posted

Lisa:

How awful to be in pain like that.

I was thinking that it may be a perforated ulcer. When stomach acid seeps into your body, it can be very painful.

I am glad that you mom is there with you. Please let us know how you are doing.

Thinking about you.

Lisa

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Good luck, Lisa.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Creative-Soul Newbie
Creative-Soul
Posted

That sucks! Ihope that you get some answers soon...please keep us updated!

tarnalberry Community Regular
tarnalberry
Posted

that is really horrid. I hope that the other hospital is able to help you, and you get some answers!

Ursa Major Collaborator
Ursa Major
Posted

Lisa, I am sorry you're in so much pain, and that the doctor at the hospital is a non-caring jerk. The same sort of thing happened to me a year and a half ago. I went to the hospital, thinking I was having a heart attack. I was in excruciating pain. After five hours, the doctor told me that my heart was fine, that it was 'only' severe stomach and bowel cramps. And that there was nothing wrong with me, and they sent me home. I was very upset.

I hope they can figure out what is wrong with you, and you feel better soon.

num1habsfan Rising Star
num1habsfan
Posted
  • Author

I had to wait a couple hours in Canora too, but I took a textbook with me so did some highlighting/reading...

The nurse gave me a pain killer shot, in the arm I chose. and MY GOD the pain. I still cant feel my right arm, its seriously a good thing I'm a lefty. Its temporary relief at least. And apparently my blood pressure was really high (could you blame me tho?!)

When the doc showed up he felt my stomach, asked what problems I've been having...and then he sat there thinking, he was like "what can I do to help you...." So he gave me a prescription for 3 things...Apo-Metronidazole, PMS-Mefenamic Acid, and Apo-Ciproflux...I know i've been on the Cipro before.

Oh and his first question to me was "Have you been checked for Ulcerative Colitis??"

I asked him if I could get him to make a note for the school so they know i was at a doc and he said "that's not a problem".

Blah Im gonna eat a little more and do a little lying down. i have a headache, i'm sore and just...i dont know. I suddenly can't wait for my 3 scopes :(

~ lisa ~

mamabear Explorer
mamabear
Posted
I had to wait a couple hours in Canora too, but I took a textbook with me so did some highlighting/reading...

The nurse gave me a pain killer shot, in the arm I chose. and MY GOD the pain. I still cant feel my right arm, its seriously a good thing I'm a lefty. Its temporary relief at least. And apparently my blood pressure was really high (could you blame me tho?!)

When the doc showed up he felt my stomach, asked what problems I've been having...and then he sat there thinking, he was like "what can I do to help you...." So he gave me a prescription for 3 things...Apo-Metronidazole, PMS-Mefenamic Acid, and Apo-Ciproflux...I know i've been on the Cipro before.

Oh and his first question to me was "Have you been checked for Ulcerative Colitis??"

I asked him if I could get him to make a note for the school so they know i was at a doc and he said "that's not a problem".

Blah Im gonna eat a little more and do a little lying down. i have a headache, i'm sore and just...i dont know. I suddenly can't wait for my 3 scopes :(

~ lisa ~

Did they consider gall bladder disease ? It is usually painful in the right upper abdomen, but not always! It is typically cramping in nature with a build up of pain and then easing. If a stone was present and got lodged, it would be very intense pain, and usually with vomiting. Stones or sludge can move in and out of the duct, triggering painful spasms. Other areas where the pain is felt from gall bladder is the right shoulder and between the shoulder blades.You look young to have gall bladder problems, but it definitely happens.....and I think a little more common in celiacs. Also a non-functioning gall bladder can do this,too. An ultrasound of the abdomen or nuclear imaging of the gall bladder(HIDA scan) might be in order. Are you any better tonight?

Nantzie Collaborator
Nantzie
Posted

I'm so sorry you had such an awful day. Your parents sound like they were great. It's always nice to have someone with you when you have to go through these things. When are your scopes again? It's still a couple months away isn't it?

Hugs,

Nancy

debmidge Rising Star
debmidge
Posted

Check in my signautre ;) I was checked for ovarian cysts with a pelvic ultrasound this fall.Oh and mom's on her way for me now. Yorkton hospital never called back, and she called Canora hospital and they said to bring me in. Clearly small towns aren't always a bad thing...

Oh and lonewolf, it started off with cramps thru my whole stomach and then in no time at all stayed with the usual low right side.

~ lisa ~

Just want to mention that a sonogram a few months ago which did not show ovarian cysts cannot prevent a new ovarian cyst from popping up. Your body changes every 28 days and a week after the sonogram, in theory, you could have started developing a cyst that would by now enlarge itself making your abdomen painful. I get them often these days, they go down or resolve themselves, only to have a new one 6 months later.

nikki-uk Enthusiast
nikki-uk
Posted

Oh and his first question to me was "Have you been checked for Ulcerative Colitis??"

Remind me Lisa, have you been checked for UC???

Hope you're feeling a bit more comfortable now. :)

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Remind me Lisa, have you been checked for UC???

Hope you're feeling a bit more comfortable now. :)

Yes I believe I have...actually I assume so anyways. When I had that colonoscopy in fall he checked my entire stomach, like the whole intestines and found nothing. But if he took biopsies I am not sure exactly what he took FOR. Most docs have just assumed already that its one of the 2 other IBDs just gotta find proof.

And to answer other questions, they ruled out gallbladder a few times before (i had even asked, they said no way it could be that). And I think they ruled out a cyst already, just because the pain never moves.

I'm feeling ok today, my arm is still sore from the shot. And i still have some nasty nausea but I didnt throw up again and my side is in no more pain than it usually is.

Thanks all you guys for caring/posting. It always makes me feel better.

P.S: I have a story of why I felt even worse last night, but I'm at school so I'll post it at home

~ lisa ~

jesscarmel Enthusiast
jesscarmel
Posted

i hope you feel okay real soon!

blueeyedmanda Community Regular
blueeyedmanda
Posted

2 years ago, I had real bad stomach pains like you mentioned and when I went to the ER and they did tests, I was found to have gastritis which is very painful. It came on all of a sudden and I was scared! I couldn't move I was in so much pain, Nothing took it away either. At the ER they made me drink this funny stuff and they gave me the IV pain meds, which eventually worked.

I'm sorry you hurt, it sucks!

sewfunky Rookie
sewfunky
Posted

Your appendix is on the right side of your body. I am currently experiencing impaction (from constipation). My left side hurts tremendously and I've thrown up. Being constipated makes you nauseous. My doc took an x-ray to confirm his theory and told me to take milk of magnesia right before I went to bed. My questions to you would be: when is the last time you had a big BM? Are the pains in the left or right side? If the pain is on the right side, ask for CT. A dr. shouldn't refuse your request, but if they do, ask for/go to another doc. Good luck.

2kids4me Contributor
2kids4me
Posted

my daughter had intermittent abdominal pain that always started near the belly button and then shifted to the lower right, nausea, fatigue "feeling crappy", this went on for 2 months - she would improve and seem to be fine, then it would happen again. One morning she started out the same way, then proceeded to vomit dark green fluid (bile), fever going up and down, had her to hospital by late afternoon..had her appendix out the next morning. She had fluid in her abdomen and "fecolith" impacting her appendix. Surgeon said this can cause intermittent stomach pain whcih gets worse each time.

In the ER, some of the nurses were patting my hand and saying, its likely the flu but we need to make sure its nothing else....within the hour they stopped saying that because she spiked to 41 Celcius, arched her head back and seized, then puked all over the bed.

If your symptoms change, you spike a fever, or begin vomiting bile...return to the hospital and you are within your rights to ask that appendicitis be ruled out.

sandy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
    2. knitty kitty
      - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease. Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease. Though having the genes for Celiac...
    3. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining...
    4. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    5. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748
    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Bob red mill gluten free oats

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      High TTG-IgG and Normal TTG-IgA

      By knitty kitty · Posted

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.