Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sore Aching Legs


kristenroman

Recommended Posts

kristenroman Rookie

Hi! I`ve been struggling with sore aching legs, sometimes crampy. COuld that be mineral defficiency? Anyone have any experience with this? I have been gluten free for 6 months. THis began a couple of weeks ago. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sophiekins Rookie

There is an easy way to find out if it is mineral-related: eat bananas (at least 1 a day) or start taking a gluten-free potassium supplement. If the pain goes away, it was minerals. If the pain doesn't go away after a week or so, go and see your doctor.

bpritt Newbie

I have had cramps and pain in my legs for 16 years, since my deep vein thrombosis (DVT) - a blood clot in the veins impeding blood from returning to the heart. I don't know if my DVT was caused by celiac, but it could be. My Johns Hopkins and Mayo Clinc doctors couldn't come up with any cause but this was long before my celiac diagnosis.

If you have DVT, other signs would be a sudden initial onset of the condition (1-2 days), and symptoms that are worsened by exercising the legs and lessened by resting and elevating them. If you have these symptoms you need to confirm with an ultrasound test and may be helped by clot-busting drugs. But hopefully you have something else. Good luck.

RIMom Newbie

Has anyone experienced this with their Celiac Kids? My daughter (4 1/2 yr old) often says her legs hurt, especially at bedtime. Seems to be below the knees and above the ankles

Used to be that was the time of day her tummy hurt, now no more sore tummies, but sore legs.

Just wondering?

Gwendolyn Newbie

I had a lot of pain in my lower legs for a very long time until recently. I had read that it may be because of celiac, so now I eat a half of a banana a day and am taking Super Nutrition's "Simply One" for women, which is vegetarian and contains no yeast, wheat, gluten, buckwheat, sugar, pollen, dairy, corn or soy residues or any hidden additives.

I had pain a few days when I forgot to eat my banana and take my vitamin, so I just stick with it and have no pain, even when doing long jog/walk sessions of 6 miles. Earlier in November, I was getting pains in my calves, shins and ankles when exercising and they are now gone. I had thought it was shin splints, but it wasn't!

annacsmom Apprentice

Although my daughter is 18 yrs. old now, and newly diagnosed, looking back now, she used to suffer from very bad "growing pains" in her legs. Now I realize it was all from celiac. At one point she even underwent physical therapy for very severe pain in her knees. Oh, if we only knew then what we know now. Anyway, I don't think "growing" is supposed to hurt!

RIMom Newbie

Thanks, now that I think about it, she eats bananas pretty much everyday with peanut butter. The few days her legs really hurt, I think we were out of ripe ones. In anycase, we haven't had any complaints for the past few days and she is eating her bananas.

She takes other supplements too, which I think helps.

Sarah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flowergirl Rookie

I had pain in the muscles of both my legs (all my life) and medicated with magnesium /B6 supplement. Since going gluten free I haven't had one day of pain. My body seems to be absorbing what it needs from my food.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,682
    • Most Online (within 30 mins)
      7,748

    Amber1rose
    Newest Member
    Amber1rose
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.