Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Have Celiac?


edd

Recommended Posts

edd Newbie

A visit to the doctor 12 months ago resulted in a diagnosis of IBS. However, I now think I may have celiac disease but if it turns out I don't its still one more thing ticked off the 'no' list. My BMs can be normal* for a few days but then I sense a gurgling in my guts, get gas and within a few hours will have D. This is where my symptoms seem to differ from the typical IBS sufferer though; I don't have bad pain, and once I've gone I feel fine and won't go again for a day at which point the BM will usually be normal again. I do however have urgency. Other symptoms are bloating, feeling tired, tired eyes (could be using the computer too much :blink: ) and irritability some days.

*normal doesn't mean the typical sausage BM, just not D.

I'm male, 5'7" and weighed 114 pounds this morning but feel as though I eat enough, just stay thin for some other reason.

Thanks for any help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenWrangler Contributor

Edd,

Your symptoms definitely correspond with celiac disease. IBS is a load of crap, and you definitely shouldn't settle for that type of diagnosis. You need to get tested. If your doctor refuses, as some do, get tested through Enterolab. If you have a problem with gluten, it will show up on an Enterolab test. It's a little expensive, but well worth it to find out one way or another. Your weight itself is a good indicator of celiac disease, since many celiacs cannot put on any weight. I'm 5'10" and about 130, so I know what you're going through. But overall, I think it would be a good idea to get tested right away. Good luck,

-Brian

edd Newbie
Edd,

Your symptoms definitely correspond with celiac disease. IBS is a load of crap, and you definitely shouldn't settle for that type of diagnosis. You need to get tested. If your doctor refuses, as some do, get tested through Enterolab. If you have a problem with gluten, it will show up on an Enterolab test. It's a little expensive, but well worth it to find out one way or another. Your weight itself is a good indicator of celiac disease, since many celiacs cannot put on any weight. I'm 5'10" and about 130, so I know what you're going through. But overall, I think it would be a good idea to get tested right away. Good luck,

-Brian

Brian,

Unfortunately, I am located in the UK and as far as I can tell Enterolab are a US only company. Also, it doesn't really make a difference to me if my doctor confirms I have celiac (or if I'm sensitive to gluten), the thing that really matters is whether I feel better. With this in mind a gluten free diet is now under way.

I've been gluten free (hopefully) since Sunday (the 4th) and am feeling better. I still feel a bit strange at times so cutting out my breakfast porridge is in order. Finding a replacement is a bit of a chore, but walking round the supermarket for a while tonight should resolve the matter.

Thanks for your advice.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748

    Rhp746
    Newest Member
    Rhp746
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.