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Question About Enterolab

LynneM

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LynneM Apprentice
LynneM
Posted

Hi all, wondering about Enterolab. I've been gluten-free for about 4 months, and a recent blood test came back negative, but I still have strong suspicions about being celiac. I was looking at Enterolab's site, and it says that you don't have to be ingesting gluten for their tests to be accurate. Is that true, has anyone here gotten the test after being gluten-free for a time and still gotten a positive? It's very expensive, but it would be worth it if I can trust the results. Since gluten-free is a life-long commitment, it would be nice to know exactly what's going on. Any feedback would be appreciated, thanks.

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Corkdarrr Enthusiast
Corkdarrr
Posted

Hi Lynne -

I did the same thing you did. I went gluten-free and had a negative blood test but decided to stick with the diet. Several months later I decided that I did, after all, want some sort of proof. For myself. So I had the Enterolab test done. I did big test they offer - so I was also gene tested and casein tested.

It was worth it for me to have a definitive answer, and I'm glad I did it.

Courtney

Slackermommy Rookie
Slackermommy
Posted

I was gluten free for 5 months when I took the Enterolab tests. I had seen an improvement in my symptoms already, so I was feeling that this was the answer (finally)!! But I am a person who wanted to have "proof", and even my husband decided that this would be a good way to check.

I got the big deal one, and even after 5 months, I am still not absorbing fats properly (Imagine what they would have been if I got tested before gluten free), and everything was elevated. Plus, I do carry 2 gluten intolerant genes, now I know I need to test my children. And we plan to test through Enterolab.

I am so glad I tested through them, I have no doubts now, and now I feel confident that this was the answer I was seeking. And, it will help me commit to gluten free for life, and I do think it has helped people around me be supportive, and not just think I was turning into some 'special diet' weirdo for the fun (like any restrictive diet is) of it.

All in all, I highly recommend it.

celiacgirls Apprentice
celiacgirls
Posted

My daughter was mostly gluten-free for more than a few months before doing the Enterolab test. She was still positive.

jnclelland Contributor
jnclelland
Posted

Just to be different ;) - I tested with Enterolab after 8 months gluten-free, and it came back negative. A few of my numbers - particularly my malabsorption - were high enough to make me suspect that I would have been positive if I'd done it sooner. So even though they say you can be gluten-free up to a year, I'd suggest testing sooner rather than later.

Jeanne

Judyin Philly Enthusiast
Judyin Philly
Posted

I JUST SENT MY 'BIG PANEL' TEST OFF TODAY TO ENTEROLABS...

I HAVE BEEN gluten-free FOR 19 MONTHS.

I WANT TO SEE THE MALASORBITON ISSUE AND THE GENES TOO.

I'LL LET YOU ALL KNOW.

5 MONTHS ON gluten-free I WAS GREAT..THEN SOY...THEN DAIRY...SO WANT SOME ANSWERS.

JUDY

itsmaryj Newbie
itsmaryj
Posted
I was gluten free for 5 months when I took the Enterolab tests. I had seen an improvement in my symptoms already, so I was feeling that this was the answer (finally)!! But I am a person who wanted to have "proof", and even my husband decided that this would be a good way to check.

I got the big deal one, and even after 5 months, I am still not absorbing fats properly (Imagine what they would have been if I got tested before gluten free), and everything was elevated. Plus, I do carry 2 gluten intolerant genes, now I know I need to test my children. And we plan to test through Enterolab.

I am so glad I tested through them, I have no doubts now, and now I feel confident that this was the answer I was seeking. And, it will help me commit to gluten free for life, and I do think it has helped people around me be supportive, and not just think I was turning into some 'special diet' weirdo for the fun (like any restrictive diet is) of it.

All in all, I highly recommend it.

Does this mean that testing from Enterolab is out of pocket? I'm new here, so please excuse the lack of knowledge :)

Mary

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chocolatelover Contributor
chocolatelover
Posted

Sadly, yes. :(

e&j0304 Enthusiast
e&j0304
Posted

My son was on a gluten containing diet when we tested him through enterolab and ALL of his levels were withing normal ranges. He has obvious reactions to gluten, however, so who knows?

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    • knitty kitty
      My only proof

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    • knitty kitty
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      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
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    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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