Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Every One Welcome

Guest lorlyn

By Guest lorlyn
in Introduce Yourself / Share Stuff

Recommended Posts

Guest lorlyn
Guest lorlyn
Posted

i hate celiac and it stinks. so tell me how you feel :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

I can't say I am always fond of celiac but it has helped me become more healthy and I have learned a lot from having it in the two short years since I found out. How long have you had celiac? If this is the beginning for you, it does seem overwhelming, but it will get a lot better.

As for gluten free food, I know this is hard to believe, since you have probably had you share of nasty cardboard tasting but the food has come a long ways since I first started the diet, there are more choices.

You have found a great place where you can vent your frustrations with others. We have all been there so we know exactly how you feel. Trust me though it does get easier! Good Luck.

lonewolf Collaborator
lonewolf
Posted

Sometimes I get frustrated that my diet is limited. And somedays I feel like it stinks. But for the most part, I'm thankful to be healthy. I'm supposed to be in a wheelchair, but changing my diet helped me to get healthy again, so I see it as freedom. I was an athlete growing up and I'm a PE teacher and basketball coach now, so I'm VERY happy that I escaped that wheelchair!

It's hard to look into the future to see what problems you are avoiding by taking care of yourself now, but I hope that you are thankful that you found out what your problem is. I have a 15 year old daughter who decided to go gluten-free on her own - no Celiac diagnosis or anything. She just realized that she felt better when she didn't eat gluten and decided that she didn't want to get sick like I did - she'd rather prevent the problems now than try to fix them later. Sometimes she feels like it stinks too, but it's probably easier for her because I make all kinds of treats and gluten-free "junk food" that even her friends like. The hardest part for her is watching the kids at school eat pizza at lunch. I try to make pizza at home sometimes so she doesn't feel too deprived.

Kassie Apprentice
Kassie
Posted

i actually don't think the diet is that bad. i eat a lot of what i used to just made gluten free- cookies, cakes, brownies, bread, pasta, pancakes, and so forth- plus i am not eating more fruits and vegetables. the only thing that gets me are crackers cant seem to find a good substitute for those, and when i watch some one eat a big cheesy slice of pizza or a cheeseburger.

don't get me wrong, i would really rather not have celiac, but i have learned to deal with it. i put it this way. trials make you stronger, and this is just one more really adding to your strength

jerseyangel Proficient
jerseyangel
Posted

Well, I wouldn't have chosen it :lol: , but I was sick for so long before I found out I had it, that it was really a relief.

I only wish that I hadn't developed all of the other food intolerances. :angry: That really narrows my choices, but most days I am just happy to feel well. :)

It could always be worse ;)

dlp252 Apprentice
dlp252
Posted

At this point celiac is the least of my worries. :lol:

Daxin Explorer
Daxin
Posted

I wouldn't say I HATE it eactly. I would not CHOOSE this if I could!

I would however say that it is more than mildly inconvienient. :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


girlfromclare Apprentice
girlfromclare
Posted

Celiac stinks yes but so do lots of other disease that are much worse than this and much harder to cope with. You are lucky that celiac disease can be handled by diet and not medications or worse... I wouldnt have chosen celiac disease for my son who is four years old but he is so wonderful on it... he isnt sick any more... he has gained weight for the first time in two years and he has lots of cool treats that he can have - gorgeous biscuits and cakes that I like to sneak myself. I know it can be hard to be different and hard to not be able to take the things we love but as a teenager i used to love being different from everyone else. I relished it! Think of it as something that makes you special and makes you stand out from the crowd! You will be happier and healthier on the celiac diet... and if you have things to get off your chest, you've found the perfect place to do it as everyone here can empathise with you!

Viola 1 Rookie
Viola 1
Posted
i hate celiac and it stinks. so tell me how you feel :rolleyes:

I don't know if I hate Celiac or the inconvenence of the disease. For the most part ... when I'm at home ... I don't even think about it. However, when it comes to going out or travelling I hate the necessity of being "picky" about ordering food etc.

Even after all these years I yearn to be able to walk into a cafe after driving for several hours and order a coffee and muffin :rolleyes:

Felidae Enthusiast
Felidae
Posted

I don't hate being gluten intolerant because I think that it has actually forced me to eat healthier. However, I do hate the inconvenience of it. I think it has prevented me from applying for certain jobs. It has made me uneasy about travelling, which is something that I have always loved.

Guest lorlyn
Guest lorlyn
Posted

i dont ecacly hate i do feel better but its sooooooo tempting i hate the temptation part and now i feel better when i play soccer im not as tired anymore but i wish celiac was a murder and i was a cop caught celiac and put it on death row lol any replys??? B)

i hate celiac and it stinks. so tell me how you feel
:rolleyes:

Kara B. Newbie
Kara B.
Posted
i dont ecacly hate i do feel better but its sooooooo tempting i hate the temptation part

i no how u feel. i've had celiac for about a year. @ 1st i didnt want 2 eat the diet bcuz i new wut food w/ gluten in it tastes like & some gluten free stuf is grosss!!!

wen i c sum1 has a pizza or a cinamon roll or even a pb&j sandwich i just wunt 2 go take a BIG bite out of it. its horible!!!

Phyllis28 Apprentice
Phyllis28
Posted

After almost 29 years on a gluten-free diet is simply part of my life, though I would not have chosen to have celiac. I'm a mom of a teenager, I work full time, I travel for pleasure when I can and I travel for work about 10 weeks a year. I am happy to be healthy enough to do all these things.

The one thing that still irritates me is pushy people who won't accept "No thank you" when I refuse their offering of gluten goodies and keep insisting I eat them. :angry:

Liz92 Rookie
Liz92
Posted
After almost 29 years on a gluten-free diet is simply part of my life, though I would not have chosen to have celiac. I'm a mom of a teenager, I work full time, I travel for pleasure when I can and I travel for work about 10 weeks a year. I am happy to be healthy enough to do all these things.

The one thing that still irritates me is pushy people who won't accept "No thank you" when I refuse their offering of gluten goodies and keep insisting I eat them. :angry:

Ha ha, thats funny :P ya, thats probably the worst... especially when people start saying you have wierd mental food disoroders behind ur back... :angry: :angry: that makes me angry... gbut they usually believe you eventually... I think...

What do you eat and stuff when you travel??? that must be fuuussterating.. :blink:

yaaa... <_<

Guest lorlyn
Guest lorlyn
Posted

hey every1 try light tapipoca bread it taste like normal!!!!!!! :lol::lol::lol::lol::lol::rolleyes::rolleyes::D:D:D:DB)B)B):):):)

i no how u feel. i've had celiac for about a year. @ 1st i didnt want 2 eat the diet bcuz i new wut food w/ gluten in it tastes like & some gluten free stuf is
grosss!!!

wen i c sum1 has a pizza or a cinamon roll or even a pb&j sandwich i just wunt 2 go take a BIG bite out of it. its horible!!!

Kara B. Newbie
Kara B.
Posted

i wil hav 2 try that tapioca bread :)

Phyllis28 Apprentice
Phyllis28
Posted
What do you eat and stuff when you travel??? that must be fuuussterating.. :blink:

yaaa... <_<

When I travel my goal is to eat most of my own food. I rent a room with a kitchen. The Marriott chain has TownPlace Suites and Residence Inns which both have kitchens.

If traveling by car, I bring all my food and necessary cooking equipment. I precook and freeze as much as I can to put in an ice chest. I buy perishables such as milk and fruit when I get to the destination. My family usually stays in one place for a week.

If traveling by air I bring along enough food for a meal and 1/2 in my carry on luggage. If I going to somewhere I have not been before I look online for stores that sell gluten free food by using the websites of the specialty gluten free companies. These companies usually have a store locater section. I call grocery stores that look promising and get their hours, some idea of selection and distance from my hotel. I always rent a car. I eat simply - examples are plain meat, cheese, raw vegetables, fruit, gluten free cereal, soft boiled eggs, milk, juice, yogurt, Hormel deli meats, gluten free bread and gluten free goodies I find that are not available at home. The following is a list of food I consider packing in my check-in suite case in a soft sided lunch box with blue ice:

Slices of homemade pizza - frozen

Homemade Salad dressing - leak proof container

Homemade chicken nuggets - frozen

Baked Potato - frozen

The blue ice and soft sided lunch box allow me to bring my lunch to work while I am on travel. I also make sure I have Plastic forks, spoons, knives, bowls and plates. Sometimes I bring them, other times I buy them when I get there.

I also try to locate safe gluten free restaurants in the area I stay in using the internet.

It takes bit of planning but this is what works for me. I know from reading the posts of other celiac travelers that other travel strategies are available.

Kara B. Newbie
Kara B.
Posted
When I travel my goal is to eat most of my own food. I rent a room with a kitchen. The Marriott chain has TownPlace Suites and Residence Inns which both have kitchens.

If traveling by car, I bring all my food and necessary cooking equipment. I precook and freeze as much as I can to put in an ice chest. I buy perishables such as milk and fruit when I get to the destination. My family usually stays in one place for a week.

If traveling by air I bring along enough food for a meal and 1/2 in my carry on luggage. If I going to somewhere I have not been before I look online for stores that sell gluten free food by using the websites of the specialty gluten free companies. These companies usually have a store locater section. I call grocery stores that look promising and get their hours, some idea of selection and distance from my hotel. I always rent a car. I eat simply - examples are plain meat, cheese, raw vegetables, fruit, gluten free cereal, soft boiled eggs, milk, juice, yogurt, Hormel deli meats, gluten free bread and gluten free goodies I find that are not available at home. The following is a list of food I consider packing in my check-in suite case in a soft sided lunch box with blue ice:

Slices of homemade pizza - frozen

Homemade Salad dressing - leak proof container

Homemade chicken nuggets - frozen

Baked Potato - frozen

The blue ice and soft sided lunch box allow me to bring my lunch to work while I am on travel. I also make sure I have Plastic forks, spoons, knives, bowls and plates. Sometimes I bring them, other times I buy them when I get there.

I also try to locate safe gluten free restaurants in the area I stay in using the internet.

It takes bit of planning but this is what works for me. I know from reading the posts of other celiac travelers that other travel strategies are available.

That sound like a lot of work and preparation. I will have to consider it sometime if I travel.

darlindeb25 Collaborator
darlindeb25
Posted

I agree with Donna--celiac is the least of my problems now. Of course my problems are because of celiac disease to begin with. ;)

Viola 1 Rookie
Viola 1
Posted
I agree with Donna--celiac is the least of my problems now. Of course my problems are because of celiac disease to begin with. ;)

Isn't that the truth! :o

Carriefaith Enthusiast
Carriefaith
Posted

When I was diagnosed with celiac disease, I was actually thankful because I didn't have to take meds for life and it wasn't a terminal illness. There were a few times where I would get annoyed at food limitations. Now sometimes I wish celiac disease is all I had to worry about... I spend a lot of time worrying if something I'm eating is going to give me a severe allergic reaction.

babygirl1234 Rookie
babygirl1234
Posted

celiac disease can be very hard for me at times because i see something i used to like and say" i wish i could have that" LOL

Guest lorlyn
Guest lorlyn
Posted

im sooooooo upset i want a cinnimon role!! i eat them im my dreams! lol but ill get

over it tell me wat temptats yall
B)

L
O
R
L
Y
N

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748
    jenny44
    Newest Member
    jenny44
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.