Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whats The Point Posting


gfp

Recommended Posts

gfp Enthusiast
One new poster assualted me. Steve missed it, but it was after one of his posts that she got nasty. I called her on it, she got nastier. The WHOLE THING was deleted starting with Steve's post. One of my posts that should have been deleted wasn't, so you can still see it there and all it says is "deleted post". If that's the thread, Steve, that's what happened. I agree that your post didn't need to be deleted, but the rest did.

Probably but there should be some explanation....

I don't mind if they attacked me and the real thing is they really needed help....

The initial posts were not so understanding, I don't agree with the original poster (obviously) but the responses were a little antagonistic and really as my post pointed out we all have different ideas anyway.... wouldn't the world be boring if we didn't...

IMHO the initial posts should have been moderated ... no one special, just the overall tone ... and its not like the posts were actually wrong.. but they really didn't seem very compassionate to me and this person so obviously needed help not criticism...

They could possibly have been a spammer... they did mention one product by name... but I think as a group we failed them.. :( sorry... I felt like the responses were more of a club or clique reacting rather than the usual helpful posts ... I can see why but IMHO its no different from people who choose to eat "gluten-light" and brush off breadcrumbs or share a toaster etc. just a little more over the edge...

Its my opinion many people are conning themselves over shared kitchens and several other matters but that is thier opinion... I don't agree and I can be a little direct but try puitting yourself in their position... they think they found a cure they want to share and they just get very negative replies instead of being helped?

A similar thing happened over the lyme disease poster... but she was partially correct and apparently did get diagnosed earlier... and probably a few people here actually benefited from what she said?

So once again I think we failed as a group here.... and perhaps we can all learn from that...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 65
  • Created
  • Last Reply
CarlaB Enthusiast
Probably but there should be some explanation....

I don't mind if they attacked me and the real thing is they really needed help....

It may have been an oversight. I don't know why your post was removed and my last post wasn't. I don't know how the program works, but maybe when Scott went to delete the posts he was one number off and deleted yours instead of my last post.

It wasn't the original poster that caused the turmoil ... it was a new poster I haven't seen before or since ... she was less sensitive to the original poster and the rest of us for that matter than I've ever seen anyone be on this board.

I'd bet anything that removing your post was just a mistake.

Ironically enough, I never even considered Lyme when the "Lyme poster" was here. :blink: Now, that's a different story, as it's my understanding she got her three warnings and didn't change what she was saying. She thought everyone with celiac has Lyme .... I just think the symptoms are so similar because both are a systemic disease, that many people who have Lyme try the gluten-free diet thinking they have celiac and see little improvement on the diet because they have a totally different problem. The symptoms are a very close match. Then there are the really lucky people like me who have both! ;)

If you saw the argument, you would understand why those posts were deleted. The woman was not the original poster, and she was very insensitive towards her (and you, and me, and everyone else). I don't think the original poster even saw the thread when those messages were there it was so short-lived. Heck, Jestgar didn't even see them! :lol:

Jestgar Rising Star

Yeah! And I always look for arguments ;)

I also recall that the original poster also said he was raw/vegan so it seems VERY unlikely that he was consuming any gluten anyway.

CarlaB Enthusiast

No, different thread. This one had to do with family not being supportive. We ALL might be talking about different threads! :lol: The one with a deleted gfp post and several other deleted posts was about family being unsupportive.

Jestgar Rising Star
We ALL might be talking about different threads! :lol:

:lol: :lol: :lol:

Forum chaos!

blueeyedmanda Community Regular

the one about the guy curing himself with the cleanse got deleted too

2kids4me Contributor
She thought everyone with celiac has Lyme .... I just think the symptoms are so similar because both are a systemic disease, that many people who have Lyme try the gluten-free diet thinking they have celiac and see little improvement on the diet because they have a totally different problem. The symptoms are a very close match

I agree, many of the systemic autoimmune conditions are known as "great imitators" in that they all have various vague symptoms - celiac with neurologic signs can mimic MS, Sjogrens and Systemic lupus are similar with their symptoms and can occur togther - making it a diagnostic challenge, Lyme disease is often missed and, yup, lucky people can be undiagnosed celiac when they contract Lyme, etc. ... and depression can accompany ALL of these diseases very commonly

I learn a lot from this board, its all about differing experiences, opinions and knowledge that we share...I think that somtimes the negative replies start happening when someone new comes on board claiming cures, or disagreeing with the long time gluten free ... or perhaps coming in with expectations that aren't met.

We all have to reply like we might meet the person some day, I want to be able to smile and say hello...not run for cover cause of something I said, or walk up to the other person and argue.

I learned long ago, that there is never only one or two ways to solve a problem, everyone's experiences are different and sometimes patients "dont read the book" - meaning they dont have the textbook symptoms OR there are 2 conditions occuring in that patient.

I like all the various threads we have going, but with moe than 12,000 people here, there is bound to be some grumbling.........

sandy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfp Enthusiast
No, different thread. This one had to do with family not being supportive. We ALL might be talking about different threads! :lol: The one with a deleted gfp post and several other deleted posts was about family being unsupportive.

we could be talkiung about 3 different threads (now Im dizzy) ...

but I guess that's worse????

I think what I'm trying to say is a lot of threads might get started by people we feel are niaeve ... but something is wrong when the whole board gets sucked in....

If one nasty person hijacked that thread then if we all acted properly (and I know non of us are perfect) then it shouldn't really have happened, they should have been moderated straight away and warned...

The problem is by the time Scott steps in the whole thing has snowballed.... so it ends up being a severe pruning because there are insults flying everywhere...

If we just had a moderator delete that one post and put a message it was deleted because it was deliberatly provoking/insulting or whatever then either the person should shut up OR they will keep posting and get banned if Scott thinks they deserve it..

IMHO what happens is people post back and then even mods post back but not as mods... I don't know what a mod can do (using the SW and permissions Scott has defined) but they should be able to delete that offending post before the whole thing gets out of hand...

Secondly poeple who know better and I know are nice people had responded badly to the original poster... IMHO ... and the original poster was the one who probably lost out... I doubt he/she meant to provoke the reaction they did... I think they were just misguided but either way people could have been a little more welcoming IMHO and been more gentle in thier corrections...

From the original post I think the poster did beleive they had cured themselves... and they may well have got rid of the gastro symptoms if they were borderline anyway... but now the poor person is probably damaging themselves without realising it.

If we could have encouraged them to stay and read other peoples experiences we could maybe... just maybe have stopped them being really ill later.. or even getting a terminal disease...

I learn a lot from this board, its all about differing experiences, opinions and knowledge that we share...I think that somtimes the negative replies start happening when someone new comes on board claiming cures, or disagreeing with the long time gluten free ... or perhaps coming in with expectations that aren't met.

We all have to reply like we might meet the person some day, I want to be able to smile and say hello...not run for cover cause of something I said, or walk up to the other person and argue.

Yes ... I wish I put it that way ....

AndreaB Contributor

As moderators, we can't delete posts or even make a single post invisible. We can only make a whole thread invisible.

Mtndog Collaborator

Now I'm all curious-= have stomach flu and I'm bored (and hopping mad since I had to cancel a father/daughter trip).

Steve- you're a good man.

CarlaB Enthusiast
(and I know non of us are perfect)

Speak for yourself. :rolleyes:

:lol::lol::lol::lol:

jerseyangel Proficient

It kind of boils down to that Steve happened to post in 2 threads that either were completely deleted, or had certain posts deleated. There were others, also that this happened to. I also posted there, and went in and edited mine to better fit with the "new" thread.

As Andrea (and I, upthread) said, we as mods can't delete a single post. We can only render an entire thread invisable until Scott has a chance to look at it. If a member has a problem with a single post, they always have the option of reporting it.

It's a sort of "damned if you do, and damned if you don't" situation for the mods sometimes. (Sorry, but it is) I've stepped in and warned people for getting rude or inflammatory, and have been criticized for it (or completely ignored). On the other hand, if we let it go and just keep an eye on the situation, we get criticized for not saying something. Posting incorrect information is not against board rules--I'm not saying that incorrect info should not be corrected (and politely, at that), but where to draw the line about warning people is a lot of times subjective and up to the mod reading at that time, unless a board rule has been broken.

I've learned that you truly can't please all of the people all of the time. Some of the responses to that thread were a bit harsh (sarcastic, actually), but I could see where the people posting them were coming from. I can also see the point where maybe we should have given the guy the benefit of the doubt, and tried to set him straight.

Here's the thing--99% of the time these things work themselves out. That's why in most cases, Scott isn't aware that there is a problem until either someone reports it, or he sees that a warning has been issued.

Jestgar Rising Star

Patti, the moderators on this board are very gentle and I'm not sure a warning from one of them would be perceived as anything to be paid attention to. Maybe you could come up with a standardized sort of phrase: "The moderators have been asked to monitor this post for abusive behavior. Please stop XXXX, return to the original topic, refrain from mentioning XXXX...." Whatever fits the situation.

jerseyangel Proficient
Patti, the moderators on this board are very gentle and I'm not sure a warning from one of them would be perceived as anything to be paid attention to. Maybe you could come up with a standardized sort of phrase: "The moderators have been asked to monitor this post for abusive behavior. Please stop XXXX, return to the original topic, refrain from mentioning XXXX...." Whatever fits the situation.

Jestgar,

That is a great suggestion. Would you mind if I showed it to Scott?

Are you saying I need to toughen up? :unsure::lol:

Mtndog Collaborator
Jestgar,

That is a great suggestion. Would you mind if I showed it to Scott?

Are you saying I need to toughen up? :unsure::lol:

I've been accused of the same thing! :P

Jestgar needs to put us through moderator boot camp!

Jestgar Rising Star
Would you mind if I showed it to Scott?

Are you saying I need to toughen up? :unsure::lol:

You are welcome to share anything I post.

I think if you were any tougher you'd be a linebacker. What you aren't is pushy. And I kinda like that combination :rolleyes: . Don't change. :)

jerseyangel Proficient
I've been accused of the same thing! :P

Jestgar needs to put us through moderator boot camp!

:lol::lol: Bev :lol::lol:

Jestgar Rising Star
I've been accused of the same thing! :P

How could ANYONE think you aren't tough with that vicious looking wolf in your avatar!

Lisa Mentor

Patti:

I think that you always to a wonder job. You are always to calm voice of reason. :)

We are a diverse group, which always makes it interesting. I can envision a three page debate on the color of the sky. But then, it's always "Carolina Blue" GO TARHEELS!!!

For the most part I think that everyone here conducts themselves in a respectful manner, with the exception of an occasional interloper. The Boards kindness and generosity far outweighs an occasional outburst.

Mtndog Collaborator
How could ANYONE think you aren't tough with that vicious looking wolf in your avatar!

Jestgar- Is this Better? Hit refresh.

Note: This avatar is only temporary. A cute puppy will return shortly.

blueeyedmanda Community Regular
How could ANYONE think you aren't tough with that vicious looking wolf in your avatar!

Patti-is he a Maine Coon by some chance?

jerseyangel Proficient
Patti-is he a Maine Coon by some chance?

Amanda--No, he's a "domestic longhair" :D I just love him to bits, though!

Bev--I was looking for Angus--where'd he go :unsure: ?

Don't mind me, I get confused easily :huh:

Jestgar Rising Star

Much better!

If you can make a little girl scream like that I'm really scared of you! :lol:

jerseyangel Proficient
Much better!

If you can make a little girl scream like that I'm really scared of you! :lol:

Yea--come on Bev--give! What did you do??? :lol:

Mtndog Collaborator
Yea--come on Bev--give! What did you do??? :lol:

Told her to scream- it's my 3 year old niece Olivia and we have screaming contests (yeah- my sister LOVES that!). She has the highest pitch, most piercing scream I have EVER heard. When she was about a year and a half my dad and I took her to Ben and Jerry's and she got mad at her ice cream because it was too hard to eat so she let out this blood-curdling screech.

It was so bad that the guys behind the counter burst out laughing.

She also screamed through my wedding vows- we have pictures of my sister holding her with her hand over her mouth. She cracks me up!

I must say, you guys have cheered me up immensely today! :D:wub:

Angus will be back shortly. ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,740
    • Most Online (within 30 mins)
      7,748

    PamF
    Newest Member
    PamF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      No, there's no need to keep checking blood antibody levels.  The tests are meant to be used as diagnostic tools.  It can take several years for antibodies to completely disappear, if ever.   Do get checked for anemia and thyroid problems if you fail to bounce back.   I understand what it's like not to have family support.  You've got a large tribe here that believe.   Take care of yourself.  Sending hugs!  Keep us posted on your progress!
    • knitty kitty
      Do get checked for all kinds anemia, iron deficiency anemia, B12 deficiency anemia, pernicious anemia, B6 deficiency anemia.  Anemia is very common in Hashimoto's!   Anemia, Diabetes and thiamine deficiency are known causes of seronegative Celiac Disease.   You only need one gene for Celiac.  Welcome to the tribe! Keep us posted on your progress.  
    • knitty kitty
      Cyclic Vomiting Syndrome may be related to Thiamine Vitamin B1  deficiency.     Hyperemesis is a symptom of thiamine deficiency.  Thiamine deficiency symptoms can wax and wane mysteriously depending on how much thiamine is absorbed from the diet.  A twenty percent increase in dietary thiamine results in an eighty percent increase in brain function and decrease of symptoms.  Eating a diet high in carbohydrates can result in thiamine deficiency.   Many children on the Autism spectrum benefit from supplementing Thiamine.  See the research done by Dr. Derrick Lonsdale and Dr. Chandler Marrs' at the website hormonesmatter.com, or published on NIH pubmed.
    • knitty kitty
      Some Celiacs react to the dairy protein Casein the same as they would to gluten. This could explain your ongoing inflammation.   Allergies can raise your histamine levels as can processed gluten free products.  To clear histamine, certain vitamins can help, B12, Pyridoxine B6, Vitamin C, and Thiamine B1.   Optimal Vitamin D levels are between 80 and 100.  Vitamin D helps regulate the immune system.   Seems like addressing nutritional deficiencies would be beneficial to you.  Blood tests aren't accurate measurements of the stores of vitamins inside cells in the tissues and organs where they are utilized.  Blood levels of vitamins can reflect what you've eaten in the past day or two.   Processed gluten free foods do not have vitamins added to them like their gluten containing counterparts.  Vitamins are chemical compounds our bodies cannot make, so we have to get them from what we eat.  The gluten free diet can be short in some vitamins and minerals, so supplementing can be beneficial, especially since you're still having inflammation.  
    • thejayland10
      Hello!    Yes I do have dairy  no I don't think so but I have seasonal allergies  not really very minor if I do which worsen with stress Yes I do eat gluten-free processed food  Vitamin D level 30 
×
×
  • Create New...