Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Bro...

JerryK

By JerryK
in Coping with Celiac Disease

Recommended Posts

JerryK Community Regular
JerryK
Posted

So my brother calls me this morning. (my identical twin, for those who don't know)

He says they ran out of bread at his house, and he'd been feeling pretty good. His wife went and bought a couple loaves and he said "I had three Chicken Sandwiches". He says "My butt is scorched".

I'm about rolling on the floor laughing, because of the way he's describing his symptoms....and I'm like DUDE isn't it about time you listened to me?? I've been telling him for months. He's followed along...seen my Enterolab test results...seen the results of my Gene Tests. KNOWS that I've determined I'm SERIOUSLY gluten intolerant, yet HE IS STILL EATING IT.

Even my mom, who at first accused me of Hypocondria now gets it. She taped a TV interview with the doc who wrote "Celiac Disease a Hidden Epidemic"(sorry can't think of his name) and tells me "I'm sure glad you don't have that gene...you don't have to worry." Well maybe not totally true, but at least she's now paying attention. At least she understand why I don't go rushing for the cookies anymore.

The bro however, continues to scorch his behind.....I guess I can look at it as a double blind study of what would happen to me if I continue to eat it....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 53
  • Created
  • Last Reply
Jestgar Rising Star
Jestgar
Posted

The perfect chance to call a sibling an idiot! I look forward to those!

JerryK Community Regular
JerryK
Posted
  • Author
The perfect chance to call a sibling an idiot! I look forward to those!

I asked him if his butt was sore enough yet to stop eating wheat...and he said "could be

something else" Doh :lol:

Jestgar Rising Star
Jestgar
Posted
I asked him if his butt was sore enough yet to stop eating wheat...and he said "could be

something else" Doh :lol:

:lol: :lol: :lol:

One of my brothers prefers to think he has pre-leukemia (whatever THAT would be).

Guy, it's just wheat....

Guhlia Rising Star
Guhlia
Posted

Hmmmm Jerry.... Sounds like another gluten intolerant man I remember from a few months ago... :) :) :)

CarlaB Enthusiast
CarlaB
Posted

Well, it's a double study, don't know about the blind part. He does sound a lot like you though!! :lol:

Pre-leukemia??? :blink:

LoveBeingATwin Enthusiast
LoveBeingATwin
Posted

I am an idential twin also! However my twin does not have celiac disease as of right now. She got tested after I was diagnosed but everything was fine. So right NOW she is very lucky but who knows what the future will hold! I have to say though she is VERY supportive and helpful. She makes me gluten free/ dairy free goodies and prints me off recipe. She's the BEST! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted
Pre-leukemia??? :blink:

Major hypochondriac. His wife censors everything he sees or reads. And every once in a while calls me or my mom with "your brother/son is driving me crazy!"

Funny how almost anything is better than 'giving up' something.

jerseyangel Proficient
jerseyangel
Posted
Funny how almost anything is better than 'giving up' something.

You hit the nail squarely on the head there! :D

JerryK Community Regular
JerryK
Posted
  • Author
I am an idential twin also! However my twin does not have celiac disease as of right now. She got tested after I was diagnosed but everything was fine. So right NOW she is very lucky but who knows what the future will hold! I have to say though she is VERY supportive and helpful. She makes me gluten free/ dairy free goodies and prints me off recipe. She's the BEST! :)

I have a love hate relationship with being a twin. I hated it when I was a kid because mom dressed us the same...we always had the same birthday. Some relatives got us ONE present to share etc...

Also, being an identical twin...all you had to do is look across the table and there you are...sort of weird if you get my drift, and I'm sure you do.

Also, especially with boy twins, one has to end up being the dominant one. It was me and I feel terrible for all the times I beat him up when we were kids.

It seems odd that one twin can have Celiac and the other doesn't. It has to be environmental where one person's diet has sensitized them to gluten or something. j

miles2go Contributor
miles2go
Posted
It seems odd that one twin can have Celiac and the other doesn't. It has to be environmental where one person's diet has sensitized them to gluten or something. j

I remember quite distinctly when I was getting the "stomach flu" quite a lot. That wasn't that long ago. Really glad you've decided to try the gluten-free. Can't believe there's another one of ya. ;)

And whoever said it, sorry can't remember, but men who cook are HOT, (maybe not necessarily in aprons, unless they're particularly studly aprons).

JerryK Community Regular
JerryK
Posted
  • Author

I'm using the same arguments you guys used on me. Telling him....if your behind hurts this bad now....what do you think it's doing to your insides? What about the damage you can't feel?

Told him next time he eats a sandwich he can hum...."come on baby light my fire" :lol::lol::lol:

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Pre-leukemia??? :blink:

When you think about it, that's not so far off from reality, as celiac is often pre-non-Hodgkin's Lymphoma!

CarlaB Enthusiast
CarlaB
Posted
When you think about it, that's not so far off from reality, as celiac is often pre-non-Hodgkin's Lymphoma!

Then he should start saying he's pre-non-Hodgkin's Lymphoma!! ;)

Jestgar Rising Star
Jestgar
Posted
Then he should start saying he's pre-non-Hodgkin's Lymphoma!! ;)

I'm guessing you can't have this for 15 years.....

Jestgar Rising Star
Jestgar
Posted

Well, or actually maybe you can...

But that would be assuming everyone got it eventually.

CarlaB Enthusiast
CarlaB
Posted
Well, or actually maybe you can...

But that would be assuming everyone got it eventually.

He's a hypochondriac ... have fun with it. :lol:

Jestgar Rising Star
Jestgar
Posted
He's a hypochondriac ... have fun with it. :lol:

Unfortunately it's bordering on pathological. He was going in for kidney stone removal and he called us all to say goodbye (although he didn't specifically say that).

And other than the "carbs" issue (as his wife calls it) he bike rides, eats healthy, goes to the gym, etc.

No reason at all to be 'pre-non-hodgkins-lymphoma' :P

CarlaB Enthusiast
CarlaB
Posted
He was going in for kidney stone removal and he called us all to say goodbye (although he didn't specifically say that).

My dad tweaked his will when he went in for gall bladder surgery. ;)

NoGluGirl Contributor
NoGluGirl
Posted

Dear JerryK,

Your brother sounds exactly like my parents and brother! My brother and mom especially are candidates for Celiac. I already explained to them it is genetic, and they probably have it as well. My father was an infant that failed to thrive, had starvation diarrhea and they almost lost him. If the nurse had not told my grandmother to put him on 2 percent milk, he would have died! His butt was so small, it fit into a tea cup! My grandmother told me about this before.

Well, when Dad got older, he had ulcerative colitis. Does that sound plausible to you he is Celiac too? Mom has the runs everyday, and my brother gets them all the time, too. Naturally, the say it cannot be gluten, because they eat it all the time. :blink: (That is the only emoticon I could use, they do not have a DUH face.)

My mother takes three prescription pills plus generic anti-diarrheal medication (I so affectionately call it liquid cork) daily so she is not stuck in the bathroom all day. My brother toughs it out, but won't do anything to fix it! He does not want to give up his pastries. Vegetables are pretty much out of the question, too. There just seems nothing can be done with them!

A song I would recommend for your brother is any by the Butthole Surfers! :P

Dear miles2go,

Yep. I was the one talking about how attractive men in aprons are. Emeril, Ming, Mario, they are all babes! A man that can feed you is a babe! There is nothing better than an adonis holding a spatula! Rocco DiSpirito, or my favorite Todd English, or how about Aaron Sanchez? There are many to choose from! So many flavors, so little time! :lol:

Sincerely,

NoGluGirl

kbtoyssni Contributor
kbtoyssni
Posted
Funny how almost anything is better than 'giving up' something.

Until you actually do give it up and realize that in this case, the grass really is greener without gluten :)

JerryK Community Regular
JerryK
Posted
  • Author

2 Day the bro sends me e-mail and quips that "Chili seems to go right thru me without changing much".

I told him, check the label on the can you fruitcake. This little problem will not go away until you start eating things that do not say WHEAT under ingredients.

I have to confess it's entertaining watching him go thru all the steps of denial that I went thru. :rolleyes:

CarlaB Enthusiast
CarlaB
Posted
I have to confess it's entertaining watching him go thru all the steps of denial that I went thru. :rolleyes:

Yes, I have to confess, "watching" you was entertaining, too. :lol:

JerryK Community Regular
JerryK
Posted
  • Author
Dear JerryK,

A song I would recommend for your brother is any by the Butthole Surfers! :P

OK, I may be a bit slow on the uptake here, I just noticed this today. I'm laughing my butthole off.... :lol: Is that really a group's name?

JNBunnie1 Community Regular
JNBunnie1
Posted
OK, I may be a bit slow on the uptake here, I just noticed this today. I'm laughing my butthole off.... :lol: Is that really a group's name?

Yup! Google it, they're lotsa fun....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748
    Jeanette K.
    Newest Member
    Jeanette K.
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.