Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Doc Said I Could Cheat....

BostonCeliac

Recommended Posts

ravenwoodglass Mentor
ravenwoodglass
Posted
Because it doesn't make ANY difference.... there is NO SUCH thing genetically as Swedish, English or German... its as simple as that.

Let me put it this way... many Americans have celiac disease... does the fact I have American relatives make any difference to this?

No because America is a melting pot of races....

Europe is NO DIFFERENT... there is no Irish ... Americans that say they are American Irish are just kidding themsleves and being nostalgic... in reality the Irish in a gross view are a mix of Vikings, Celts, English, Saxon and lots of Spanish... and that's just major groups...

Would a black Irishman have a higher or lower chance of celiac disease than an African American?

The number of Irish, Swedish or whomever that say they are racially pure is just a joke... Do you think the white americans didn't rape black slaves? The genetics of African Americans is mixed with caucasian and almost no African American who's family has been in America since slavery has no caucasian blood... similarly the English raped the Irish and Scots although in a more methodical and scientific way... the idea was that you put English blood into them and they were less liekly to rise up...

The Vikings were not known for asking permission either....

And all of this supposes that peple are not lying... a very large percentage of children are not the biological produce of their supposed and legal fathers... Random sampling shows 1:25 in N. America and Europe... in more primitive cultures its probably far higher...

Doctors who make diagnosis based on supposed heritage are VERY dangerous..... that is why its a legal requirement to check blood type before a transfusion, regardless of the mother swearing blind the blood type of the father!

This is so true. National Geographic did a world wide genome project recently. Mankind has definately mixed it up a bit.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

And let's not forget that the rate of celiac in Asians is nearly nonexistent--until they come to the West and start eating a Western diet high in gluten. The rate of celiac among Asian-Americans is higher with every generation. Hmmmm, hmmmm, hmmmmm......

johnsoniu Apprentice
johnsoniu
Posted
Ok, maybe that was a bit harsh of me. But this stuff does make me mad.

No, not harsh at all. Calling him an idiot was a compliment.

How about irresponsible, conjecturing, witch doctor who probably graduated in the bottom 5% of his class?

There, now I feel better B)

ebrbetty Rising Star
ebrbetty
Posted

I'm from the Boston area, curious who your dr is and the center you plan on going to..is it at BI?

JEM123 Newbie
JEM123
Posted
:lol: I am laughing right now because I went to the gastro. for the first time yesterday and the second question out of his mouth was "do you have any irish in you?" (and I have naturally flaming red hair so it's pretty obvious). Maybe we should just pin the tail on the Irish and call us all celiacs to make diagnosis easier since we're the only ones apparently who get this wacky disease! :lol:

Amy

I'm also laughing because when my GI doc asked me what nationality my parents were I answered Italian. He responded well celiac disease is strongly linked with a European background. My response to him was..You are telling me...an italian that I can no longer have pasta...bread....cutlets..pastries??? What's left to eat? lol He laughed too..

Jem

chrissy Collaborator
chrissy
Posted

our doc told us, in so many words, NOT to cheat because you're going to be getting glutened enough by accident.

mamabear Explorer
mamabear
Posted
I'm also laughing because when my GI doc asked me what nationality my parents were I answered Italian. He responded well celiac disease is strongly linked with a European background. My response to him was..You are telling me...an italian that I can no longer have pasta...bread....cutlets..pastries??? What's left to eat? lol He laughed too..

Jem

The Wall Street Journal had a front page article on celiac about a year ago, and they listed the genetic incidence of celiac disease in several countries. Norway led all countries with ~2% of the population; Italy was second with 1.2%; the British Isles with ~1% and Germany with .3%. I can find the exact date it was published if anyone is interested. It was in WSJ to make the point there is no money in celiac research(so far!), and gave nearly 2 pages to celiac disease.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfp Enthusiast
gfp
Posted
our doc told us, in so many words, NOT to cheat because you're going to be getting glutened enough by accident.

Back on topic....

I wonder if this wasn't the point the MD was trying to make, albeit very badly?

Its pretty hard to say... ?

I think a lof of MD's see a lot of people they say must change their diet, not just celiacs ...

One of my friends who is really over weight, smoked 60 a day and drinks a lot got told by his MD to go on some meds for life although it wasn't going to be a very long one but the meds were getting better all the time...

He asked what if he lost weight, stopped smoking etc. what was his prognosis?

Oh, noone does she said ... well some people have and the prognosis is actually very good but forget it, noone ever does....

So far he has.... but MD's say the same to non insulin dependent diabetics indeed many it seems have given up even suggesting dietry control and jump straight to insulin??

I think what the MD was trying to convey and just did it badly is you need to do the diet strictly .... and that its better to cheat occaisionally than everyday but in small ways.... That said, its obviously better not to cheat... I just thing MD's don't give us much credit for actually trying to follow a diet??

BostonCeliac Apprentice
BostonCeliac
Posted
  • Author
No, not harsh at all. Calling him an idiot was a compliment.

How about irresponsible, conjecturing, witch doctor who probably graduated in the bottom 5% of his class?

There, now I feel better B)

Wow -- I might not go quite that far - but I see your point with his irresponsible comments - luckily for me - I have this forum & many other resources to see that cheating is not good.

I'm from the Boston area, curious who your dr is and the center you plan on going to..is it at BI?

I'd rather not publicly announce to the whole forum his name -- But he's one of the more senior Gastro Doctors at Mass General Hospital. You can PM if you like and I'll let you know...

And I heard about Beth Isreal too late! If I need to visit a Gastro again - I'm going to their Celiac Center..

Thanks for your comments everyone! Looks like others have heard similar things - this is really helpful to everyone...

(and gfp -- i thought of you when he brought up the Irish again, because I've read your lengthy posts on "heritage", in the past -- haha)

gfp Enthusiast
gfp
Posted
(and gfp -- i thought of you when he brought up the Irish again, because I've read your lengthy posts on "heritage", in the past -- haha)

Sorry I was trying to put the thread back on line.... My good "Irish American" friend Charles (Chip) Kelley lives in Boston too with his "Italian American" wife... LOL

Rusla Enthusiast
Rusla
Posted

My take on your doc is that he is of the old school of thinking and is an uneducated boob.

I guess it is okay to cheat if you want cancer, pain, etc. Some of these doctors need to be whacked upside their heads with a hammer.

Rusla Enthusiast
Rusla
Posted

Ignore this one it was the top one repeated.

Guest lorlyn
Guest lorlyn
Posted

The US Congres is trying to get a bill passed to make the month of May the National Celiac Awareness Month. Everybody should e-mail their Congress-person to pass this bill. It would be great to have PBS annoucements on TV for the whole month of May.

gfp Enthusiast
gfp
Posted
The US Congres is trying to get a bill passed to make the month of May the National Celiac Awareness Month. Everybody should e-mail their Congress-person to pass this bill. It would be great to have PBS annoucements on TV for the whole month of May.

GREAT???? That's like saying the sun is warm, the Marrianas trench is slightly deeper than head height...

IT will change your LIFE!

I'm not joking.... suddenly it will be NOT PC to make fun of celiac disease... resto and catering staff will be all more aware and have no escuse for not knowing what it is... and you will lose that second head..the one you sprout when saying "I can't eat wheat"...

Guest lorlyn
Guest lorlyn
Posted

I am sorry, I do not understand riddles. Please explain in plain English why it would hurt people with Celiac that the US goverment were to pass a bill making the month of May the month for National Awareness ;) . Please let me know because I am still new at this.

Thanks

CarlaB Enthusiast
CarlaB
Posted
I am sorry, I do not understand riddles. Please explain in plain English why it would hurt people with Celiac that the US goverment were to pass a bill making the month of May the month for National Awareness ;) . Please let me know because I am still new at this.

Thanks

I think he's saying great is an understatement. We would have much more celiac awareness ... that is MORE than GREAT!
jerseyangel Proficient
jerseyangel
Posted
I am sorry, I do not understand riddles. Please explain in plain English why it would hurt people with Celiac that the US goverment were to pass a bill making the month of May the month for National Awareness ;) . Please let me know because I am still new at this.

Thanks

Yep, he's all for it :D

I am too! :)

deedub Rookie
deedub
Posted

forgive me if this has been said before, but can't wheat, rye, and barley be further genetically altered to remove the toxins that hurt celiacs ?

Viola 1 Rookie
Viola 1
Posted
forgive me if this has been said before, but can't wheat, rye, and barley be further genetically altered to remove the toxins that hurt celiacs ?

It probably can, but then it would not be the great tasting, stick together flour that they have now. It would react just like our non-gluten flours and be fairly dry and crumbly. Basically, it's the toxin 'gluten' that makes it so well loved by the non-Celiac community.

For instance, if they took the gluten out of "Smarties" They would then be exactly like M&Ms.

  • 2 weeks later...
gfpaperdoll Rookie
gfpaperdoll
Posted

ohhh, I did not know smarties had gluten in them!!! I will avoid on my next trip to London!!!

gfp Enthusiast
gfp
Posted
Yep, he's all for it :D

I am too! :)

Absolutely, grin ....

It would be fantastic....

Public awareness or lack of is the #1 barrier for most of us. If you travel to Italy it becomes clear why....

You can be in the back of beyond and some resto is the only place to eat.... you approach curiously, practicing your Italian ready to give in... you mumble a few words then the waiter says OHH Celiac, why didn't you say. I have had tiny places i the middle of nowhere say "So sorry we don't make special gluten-free pasta..." sorry we can only make you a starter and main course, no pasta course..

and in a major town you'll (usually) find a gluten-free pizzeria and gluten-free pasta etc.

If its nationally aware then more people will be tested, more people will know someone and there will be no excuses ... even when it reaches anything approaching 1:200 people that means everyone knows someone but presently not enough people and MD's even realise the prevalance so it remains "rare" and "unknown" ..

debmidge Rising Star
debmidge
Posted
The Wall Street Journal had a front page article on celiac about a year ago, and they listed the genetic incidence of celiac disease in several countries. Norway led all countries with ~2% of the population; Italy was second with 1.2%; the British Isles with ~1% and Germany with .3%. I can find the exact date it was published if anyone is interested. It was in WSJ to make the point there is no money in celiac research(so far!), and gave nearly 2 pages to celiac disease.

WSJ Ed. 12/9/05 (my hubby was one of the subjects interviewed and our photo is in article).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract...
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.
    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding. I will have my first appt with a GI dr on March 4th I will not eat gluten again - at least not on purpose ...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.