Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Dh Look Like Pimples?


nama shivaya

Recommended Posts

nama shivaya Explorer

A dermatologist said that the pimples I've been getting scattered on my legs and breasts are folliculitis. He didn't ask what else has been going on in my life. A integrative health MD who I saw for my MS sx's said she thought it might be DH.

My question to you fine board folks is this: Can DH look just like a little pimple? I thought anything "herp" was clear fluid-filled, not pus filled.

Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Michi8 Contributor
A dermatologist said that the pimples I've been getting scattered on my legs and breasts are folliculitis. He didn't ask what else has been going on in my life. A integrative health MD who I saw for my MS sx's said she thought it might be DH.

My question to you fine board folks is this: Can DH look just like a little pimple? I thought anything "herp" was clear fluid-filled, not pus filled.

Thanks in advance!

I wonder that too. I've had progressively worse "acne" over the last few years. I never had problems with acne as a teenager or in my twenties. This "acne," though, is itchy and drives me nuts!

My biopsy for DH came back negative, however...unforunately the dermatologist took the biopsy from the wrong spot (biopsied the lesion itself instead of the normal skin near the lesion) so I don't know if it's simply a false negative.

Michelle

SUZ42 Explorer
I wonder that too. I've had progressively worse "acne" over the last few years. I never had problems with acne as a teenager or in my twenties. This "acne," though, is itchy and drives me nuts!

Michelle

Same here. I've never had back acne, but now at 42 I do and it itches! Speaking of itching: A year ago when things got really bad for me, my inner ears started itching and it hasn't gone away. It drives me crazy. Does anyone know if this could be gluten related?

Michi8 Contributor
Same here. I've never had back acne, but now at 42 I do and it itches! Speaking of itching: A year ago when things got really bad for me, my inner ears started itching and it hasn't gone away. It drives me crazy. Does anyone know if this could be gluten related?

My inner ears get itchy when I eat a food I'm allergic to (along with itchy lips and throat.)

Michelle

cchhrriiss Newbie

My inner eat was itchy for months, a little achy too! I went to the doc, and he said, it was to swollen to tell, so antibiotics ofcourse. I lost my hearing, so he did a biopsy, and it was YEAST! gross...he gave me an antifungal drop. Now it doesn't itch.

Michi8 Contributor
A dermatologist said that the pimples I've been getting scattered on my legs and breasts are folliculitis. He didn't ask what else has been going on in my life. A integrative health MD who I saw for my MS sx's said she thought it might be DH.

My question to you fine board folks is this: Can DH look just like a little pimple? I thought anything "herp" was clear fluid-filled, not pus filled.

Thanks in advance!

So, I did an Google image search for folliculitis and found pictures that pretty much look exactly like the pictures I've seen of DH. I'd recommend doing a biopsy to confirm whether it's DH or not.

Michelle

lovegrov Collaborator

Perhaps u should get a DH biopsy but my DH never resembled pimples or acne at all. Completely different.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jesse Newbie

i dont know an answer though i am curous about the question aswell. if you hear anything please lmk.

peace,

jdog

simplicity66 Explorer

Funny that i came across this one today....i have been "glutenized" twice in the past 2 weeks...once was self-inficted the other one is still a mystery to me.....when i am "glutenized" my skin feels like its crawling as if i have a bug on me....then i get the itchys...naturaly i scratch....then its more itchy and a burning sensation sets in....the more i itch the more it burns....then pimple like bumps appear with a ring around them that contain more pimples....some appear just in the ring formation ......they last for hours....after that has subsided the cramps and the big "D" sets in.....i was told that this was a way that the gluten leaves your body after being "glutenized" the "D" yes takes care of that....the pimples i am not sure of...i see my MD tomorrow and i will ask the question ...unfournately all marks have disappeared so theres no chance of a bio done.....will a blood test show yes or no for dermatitis herpetiformis??....i will find out my blood test results to see if i have Crohn's as well.....

sharmom Newbie

I was diagnosed with DH about six weeks ago. I had been dealing with the blisters for over 8 months, before I finally decided to go to a dermatologist to have it checked out. I got to the point that I knew exactly when they would start blistering up. I actually agree that they do look like pimples when I first start feeling a bump under my skin, but usually they would blister up usually twice the size within 24 hours and be filled with a clear liquid. I started out with them only on my elbows, knees and buttocks for around the first six months, then I started getting them on my nose and my ears. My dermatologist put me on Dapsone as well as a gluten free diet, the Dapsone cleared up everything with in two weeks. Unfortunatly, in the research that I have done on this. Even on Dapsone and a gluten free diet, I can still get this blisters for up to two years.

I hope this helps!

azmom Newbie
Same here. I've never had back acne, but now at 42 I do and it itches! Speaking of itching: A year ago when things got really bad for me, my inner ears started itching and it hasn't gone away. It drives me crazy. Does anyone know if this could be gluten related?

I do not have celiac (my husband and son do), but I do have a problem w/ inner ear itching. The ENT says it is dermatitis in my ears and gives me Betamethasone Dipropionate Lotion USP 0.05% drops to use when they bother me. They work great. Before the drops, I actually tried to itch them so much that I made polyps form and had to have them surgically removed! Dr told me to stick nothing bigger than my elbow in my ear.

As for the back acne, my son (who is gluten-free) has Keratosis Pylaris all over his back and back of his arms. It is not itchy, but looks like pimples. I was told it is not gluten related, but it is pretty common and is genetic.

Hope some of this info might help! Good Luck!

TBOX Newbie

I agree with Sharmom's description. I had DH for about 8-10 years before being diagnosed last August. They started as itchy bumps on my knees and elbows, but I really didn't notice until it moved to my face. When they appeared on my face, I went to a dermatologist at one of the best medical centers in the country (US) and was told that I just had adult acne. I had never had acne. I was prescribed Retin-A, which burned and only seemed to aggravate things. So, I stopped using that. I tried hundreds of other facial products for years, trying to find something to help; of course, I was also eating a lot of gluten the whole time and didn't make the connection, sadly. I have an excellent doctor now, who identified them immediately last August. After seven months of gluten-free, my face, knees, and elbows are healed. That only took about 1-2 months for me.

When I was told I had acne, however, it was because after the blisters showed up on my face, if I itched them, they would open and then scab over. That definitely looked like acne. In order to get a good biopsy, my doctor explained that you have to have an active, unruptured blister. They need to test the fluid inside the blister. Also, I believe that they do not "spread" if you itch them, like poison ivy or other rashes.

By the way, when I had a DH rash (it still happens if I get glutened), the best "treatment" I've found after years of trial and error is to use a little alcohol wipe to dry the area and apply a thin layer of calamine lotion. It's super cheap and one bottle lasts a long time. I use the pink Caladryl.

Good luck!

  • 2 weeks later...
jesse Newbie

just spreading some thoughts to people:

anyway, anyone who sees this should attempt a "no table salt or iodized salty food diet" for a few weeks. if you have the same lip/mouth area dh/acne then its worth doing. i have also changed my soap from the dial gel which you need the sponge thingy to a bar of white ivory.

if you do this lmk how it works out for you, also kosher salt is okay, so if you do and want to go out to eat bring a little w/ you.

only the best,

jdog

darlindeb25 Collaborator

Before going gluten-free, my sister and I both had terrible bouts of itching on our legs. Was very weird, it happened about the same time everyday and you got so you dreaded that time of day. When my daughter was 2 1/2 she was in a full body cast for hip problems and my legs broke out in a terrible, itchy rash. First the doc said it was poison ivy, then he said it was an allergic reaction to her cast. This would come and go for me, never getting terrible as some of you have mentioned. After going gluten-free, I had one major incident when both elbows had the identical rash--I used peppermint lotion which helped tremendously and also, which I can no longer find anywhere. :( I was told at the time that it was DH, but never doctor diagnosed for it.

Michi8 Contributor
Before going gluten-free, my sister and I both had terrible bouts of itching on our legs. Was very weird, it happened about the same time everyday and you got so you dreaded that time of day. When my daughter was 2 1/2 she was in a full body cast for hip problems and my legs broke out in a terrible, itchy rash. First the doc said it was poison ivy, then he said it was an allergic reaction to her cast. This would come and go for me, never getting terrible as some of you have mentioned. After going gluten-free, I had one major incident when both elbows had the identical rash--I used peppermint lotion which helped tremendously and also, which I can no longer find anywhere. :( I was told at the time that it was DH, but never doctor diagnosed for it.

You can get the pharmacy to make up a cream with menthol (usually in Glaxal Base). My daughter had a prescription written up for it, but I don't know if it needs a prescription.

Michelle

UNCHeel Rookie

I have white bumps on my face and had heard on other posts that yeast overgrowth is a problem for Celiacs. So I asked a holistic Dr online and this was the response. Not sure if it's realible but I'm taking the Garden of Life's supplement so I'll let you know if I have any "clearing."

To answer you Jean, Celiac disease is becoming more common because

intestinal

flora that usually protects us, is out of balance. Antibiotic use,

drinking

chlorinated water can kill friendly bacteria in our intestines. The

white

bumps may be a result of yeast overgrowth in the body or candidosis.

Yeast

is actually the food of the friendly bacteria that lives inside us.

Once the

bacteria is killed, yeast tends to overgrowth in the intestines as well

as

in other places in the body, and it can show on the skin. Candida,

where

visible has indeed a white appearance. It would be good to consult a

naturopathic doctor and approach this from inside out. Since probiotics

(pills with cultures of friendly bacteria that help restore natural

balance)

are in the natural supplement range they will not be readily prescribed

at

your regular checkup. Severe cases of candidosis respond well to a

patented

Japanese blend called Threelac. I suggest for sure consulting a doctor

or

naturopathic doctor since with advanced cases of Celiac, due to

thinning of

lining of intestines anything ingested can cause disturbances.

Probiotics

can also be used on skin directly by making a mask mixing plain yogurt

and

the powdered probiotic. Mask can be left on for at least 15 minutes,

two,

three times a week. Hope this helps!

Best Wishes,

Claudia

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.