Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibs And Bacteria Overgrowth

Mtndog

By Mtndog
in Food Intolerance & Leaky Gut

Recommended Posts

Mtndog Collaborator
Mtndog
Posted

This article talks about how bacterial overgrowth may account for some cases of IBS (not "IBS" as in I'm basically stumped but in IBS that persists despite a gluten-free diet or treatment for another gastro disorder. Remember when ulcers were caused by stress? :rolleyes:

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

Bev,

I think alternative doctors have been aware of dysbiosis (too much bad bacteria...too little good bacteria) being the cause of gastro illness and other disease for quite some time now.

I think mainstream might finally be catching on. :o

I saw it on the news a couple weeks ago...they were talking about how they *think* that IBS may be caused by bacteria overgrowth. :huh:

I dont think alternative medicine uses the term "IBS" though...basically dysbiosis causes symptoms of disease.....whether its gastro related or otherwise.

I'm not too big a fan of mainstream medicine these days and I had to laugh at their lastest and greatest "discovery". :rolleyes:

Judyin Philly Enthusiast
Judyin Philly
Posted

interested in this

getting the written report from hydrogen test tomorrow and let you know what it says

hope we get some more imput.

thanks..hi rachel

Mtndog Collaborator
Mtndog
Posted
  • Author
Bev,

I think alternative doctors have been aware of dysbiosis (too much bad bacteria...too little good bacteria) being the cause of gastro illness and other disease for quite some time now.

I think mainstream might finally be catching on. :o

I saw it on the news a couple weeks ago...they were talking about how they *think* that IBS may be caused by bacteria overgrowth. :huh:

I dont think alternative medicine uses the term "IBS" though...basically dysbiosis causes symptoms of disease.....whether its gastro related or otherwise.

I'm not too big a fan of mainstream medicine these days and I had to laugh at their lastest and greatest "discovery". :rolleyes:

Rachel- I hear ya!!!!!!!!!!!!!!!!!!!!!!!! I don't blame you for laughing!

happygirl Collaborator
happygirl
Posted

Dr. Mark Pimentel in CA has done some work on this. I think he is def onto something, but his studies have been flawed. However, it is an overlooked reason for IBS symptoms.

I have the book on it, in case anyone wants it. :) I was tested for it last year .... of course, negative.

Judyin Philly Enthusiast
Judyin Philly
Posted
Dr. Mark Pimentel in CA has done some work on this. I think he is def onto something, but his studies have been flawed. However, it is an overlooked reason for IBS symptoms.

I have the book on it, in case anyone wants it. :) I was tested for it last year .... of course, negative.

HI LAURA AND THANKS...

READ HIS PERSONAL PAPER SENT TO MY GI......READ IN GASTRO JOURNAL........READING OTHER RESPONCES TO HIS DATA..........SO GETTING INFO ON THIS.

THIS DR. IS THE PERSONAL FRIEND OF MY GI AND IS WHAT SHE WANTS ME TO FOLLOW 'EVEN THO' THE BREATH TEST ONLY SHOWED 1 POINT IN THE LOW RANGE OF POSITIVE.

NOT THE 200 MG DOSE..BUT 400 mgs 3X/x a day :ph34r::blink:

I'VE HAD NO 'D' SINCE GOING OFF DAIRY AND CASEIN. HER APT ON MARCH 14TH RESULTED IN MY OWN 'CLINICAL TRIAL' gluten-free HOT FUDGE SUNDAY WITH W/CREAM AND NUTS.

BOWEL MUST BE HEALING..AS FIND AFTER AND ALL NITE AND IN AM 2 NORNAL STOOLS..

17 'TRIPS' TO BATH ROOM AND WATER BY NOON..................IT'S PROOF TO ME....

IDEAS????

JUDY

Judyin Philly Enthusiast
Judyin Philly
Posted

lAURA

DO YOU HAVE THE BOOK HE WROTE ON IBS?

IS THAT THE ONE YOU MEANT?

IF YOU WANT TO GET RID OF IT....I'LL GADLY ACCEPT IT......OR

DO YOU NOT WANT IT CAUSE IT ISN'T VALID YOU YOUR OPINION........THEN IN THAT CASE...WITH YOU BEING THE RESEARCHER YOU ARE................I'LL SKIP IT.

READ SO MUCH ON IT YEARS AGO BUT KNOW THE INFO IS CHANGING.

THANKS JUDY

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mtndog Collaborator
Mtndog
Posted
  • Author
Dr. Mark Pimentel in CA has done some work on this. I think he is def onto something, but his studies have been flawed. However, it is an overlooked reason for IBS symptoms.

I have the book on it, in case anyone wants it. :) I was tested for it last year .... of course, negative.

laura- You tested negative? Ugh! have they figured anymore out about what's going on with you.

My test got moved up to this Tuesday and I'm hoping this is a piece of the puzzle.

happygirl Collaborator
happygirl
Posted

Bev, I have been tested for EVERYTHING. :). multiple endos, colonoscopies, barium swallows, ultrasounds, HIDA gallbladder scan, celiac blood panel, gene tested, bloodwork out the wazoo, more urine and stool samples than I care to count, bacterial overgrowth, ... etc. Remember? I had the "best"---NIH and Johns Hopkins, after much of the above testing done in VB. ;)

I requested to have it done in September, before I moved. Everything except my Lyme and co-infections tests have been negative...hence, thats what I've been dx'ed with and now treating.

larry mac Enthusiast
larry mac
Posted

After my first visit with my new GI, he ordered blood, urine, & stool samples to find out what was wrong with me (and causing my chronic diarrhea). I then started taking XIFAXAN

Judyin Philly Enthusiast
Judyin Philly
Posted

IM

Thanks so much for taking the time to post.

I have a bottle beside me..I am to take the double dose also....but....by the time I got in to the GI apt after waiting 3 1/2 months to get it.--the 'd' was gone!

The hydrogen breath test showed only a POINT above the norm for dx'ing it. I have no 'd' now since I went off diary and casein 7 weeks ago.

go figure. :blink:

did you have the test too?

judy

larry mac Enthusiast
larry mac
Posted
IM

Thanks so much for taking the time to post.

I have a bottle beside me..I am to take the double dose also....but....by the time I got in to the GI apt after waiting 3 1/2 months to get it.--the 'd' was gone!

The hydrogen breath test showed only a POINT above the norm for dx'ing it. I have no 'd' now since I went off diary and casein 7 weeks ago.

go figure. :blink:

did you have the test too?

judy

No. There was never any mention of it. lm

Mtndog Collaborator
Mtndog
Posted
  • Author
Bev, I have been tested for EVERYTHING. :). multiple endos, colonoscopies, barium swallows, ultrasounds, HIDA gallbladder scan, celiac blood panel, gene tested, bloodwork out the wazoo, more urine and stool samples than I care to count, bacterial overgrowth, ... etc. Remember? I had the "best"---NIH and Johns Hopkins, after much of the above testing done in VB. ;)

I requested to have it done in September, before I moved. Everything except my Lyme and co-infections tests have been negative...hence, thats what I've been dx'ed with and now treating.

Laura- I probably knew this but I amm so brain-dead right now! I'm sorry. I hope you weren't upset that I forgot! :(

happygirl Collaborator
happygirl
Posted

Bev...no, not at all! It was said more "tongue in cheek" about the best care ;).

You have enough on your plate, no worries!

lovegrov Collaborator
lovegrov
Posted

One of the first celiac experts I ever heard, Dr. Cynthia Rudert, said the top two reasons some people who have celiac don't get better is non-compliance with the diet and bacterial overgrowth.

richard

jerseyangel Proficient
jerseyangel
Posted

I'm kind of cautiously excited--I'm going to see a new gastroenterologist in early April. She's younger, and over the phone said that she would talk to me about my additional food intolerances and continued, intermittant IBS-type symptoms.

My current gastro refuses to address this--saying I only need to stay away from gluten. <_< I was supposed to see him again in February, but I can't see going in and getting the same speil.

My allergist is more helpful, really, but with Bev and Judy as my inspiration :D , I'm going to go and see if there's anything else at play here.

Wish me luck.... :unsure:

happygirl Collaborator
happygirl
Posted

Patti,

That is so wonderful. At the very least, its worth ruling things out. No need to suffer if there is help!

Keep us updated!

L

AndreaB Contributor
AndreaB
Posted

Patti,

It will be more answers for you. I second Laura....keep us posted. :)

jerseyangel Proficient
jerseyangel
Posted

Thanks Laura and Andrea :D

The appt. is on the 3rd.--I'll keep you posted.

Judyin Philly Enthusiast
Judyin Philly
Posted

hi Patti

I'm so happy for you

got your email today and will reply soon.

I'm praying that you get some answers and can share with us too.

was happy to see Richard's post today

if you want to read up on the hydrogen test..or the research..i can forward to you..

just let me know.

again...so so so happy your going to some one open to looking at intolerances.

ps..got more notes from Scott so all alerts are off again.

please keep me posted on new info incase I'm not on...would sure appreciate it.

hugs

Judy

Mtndog Collaborator
Mtndog
Posted
  • Author

Laura- Oh good :rolleyes: I felt so dumb...but sometimes it's so hard to keep up with everyone.

richard- thank you for that info!

Patti- My appt. is on the 3rd too! I've decided that in the last two years, I've had no problem firing doctors! :rolleyes:

jaten Enthusiast
jaten
Posted

I don't know if this will help any of you or not, but it's worth looking into....

When I was diagnosed with Celiac 1 1/2 yrs ago, my GI immediately handed me samples of a probiotic called Flora Q. He started me on 2 caps/day and then after a month reduced me to 1 (usual dose). He said that the "flora & fauna" of the intestinal tract gets unbalanced more often than most realize and results in a cycle of some very serious problems. He said that he recommends Flora Q to all of his Celiac patients and some others. (He said he's had better results from this than from other products.)

It works well for me! It's a little expensive. about $30 for 30 day supply, but it's so worth it to me! Truthfully, I don't remember to take it every day, but when I start to get that blegh "ibs" feeling, I start taking it again, and within 2-3 days I feel much better. I try to take it then at least for a couple of weeks straight.

Flora Q info:

Manufacturer - Kenwood Therapeutics

label information:

GLUTEN FREE

contains: lactobacillus, bifodobacterium, lactobacillus paracesei, streotococcus thermophilus

other ingredients: maltodextrin, hypromellose, microcrystalline cellulose, sodium alginate, silicon dioxide, magnesium stearate, titanium dioxide, FD&C blue 2

This product is free of the following allergens: milk, wheat gluten, egg, fish, crustacean shellfish, soybean, tree nuts, and peanuts

Flora Q is an OTC, but I've never found it on the shelf with the other priobiotics in any pharmacy. I have to ask a pharmacist because it's always behind the counter eventhough it's an over-the-counter.

Judyin Philly Enthusiast
Judyin Philly
Posted

thanks so much for the post...sounds like a good product and a Dr. that knows what's UP!

CAN'T WAIT TO HEAR HOW BEV'S TEST WENT

JUDY

Mtndog Collaborator
Mtndog
Posted
  • Author

Thanks jaten. My test came back negative but think I am going to restart probiotics. I still LOVE LOVE LOVE your dog and now I have one too!!!!!!!!!!!!!!!

Mtndog Collaborator
Mtndog
Posted
  • Author
I'm kind of cautiously excited--I'm going to see a new gastroenterologist in early April. She's younger, and over the phone said that she would talk to me about my additional food intolerances and continued, intermittant IBS-type symptoms.

My current gastro refuses to address this--saying I only need to stay away from gluten. <_< I was supposed to see him again in February, but I can't see going in and getting the same speil.

My allergist is more helpful, really, but with Bev and Judy as my inspiration :D , I'm going to go and see if there's anything else at play here.

Wish me luck.... :unsure:

Wondering how it went today Patti! Hope you got some answers!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748
    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Lkg5
      Unexpected gluten exposure risk from cultivated mushrooms

      By Lkg5 · Posted

      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.