Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Like Crap


pnltbox27

Recommended Posts

pnltbox27 Contributor

been gluten free for a little under 4 weeks, the first 2 weeks i felt the best ive felt in 20 some years. actualy had regular trips to the bathroom no wicked D.now the last 5 or 6 days i feel like i did before going gluten-free.constant D and gas . my typical day is vans gluten-free waffles for breakfast with jam and a bag of almonds from the quicky mart and a diet coke, lunch has been a ham sandwhich on the gluten free pantry bread mix,which by the way tastes really good when made in my new bread maker we purchased and a bag of lays potato chips with chocalte chip cookies by bobs green mill also very good.dinner is usually grilled chicken or steak with carrots, ive been on a carrot kick since going gluten-free. snacks are usually act II popcorn or the gluten free cookies or vanilla ice cream. and lots of diet coke, im kinda a diet pop junkie.does any of this sound like something that should be giving me a problem??also i have been eating cheddar and colby jack cheese.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



April in KC Apprentice

Thanks for posting this as it gives me an idea about where to focus in my own mystery glutening.

I am in the same boat with you...really. I've been gluten-free for about the same period of time, and most of it has been HEAVEN...feeling better than I have in a decade. But this past week has been a total downer. Somehow I got glutened...complete with mouth sores, mild d, itchy elbows and fatigue (my typical symptoms). The only suspicious thing your diet and my diet have in common:

LAYS Potato Chips. :(

I was already starting to suspect them yesterday, because I felt bad after a meal that was just chili made from organic pinto beans (rinsed), organic canned chicken (rinsed), my own homemade gluten-free chili seasoning blend, and Lays.

Someone recommended Cape Cod chips as being a low risk for cross-contamination. I'm going to look for some.

I don't eat eggs, milk, rice, fish, almonds or corn because of my infant son's allergies (he's still nursing). I do eat a lot of carrots (baby, organic, washed). I have an occasional diet Dr. Pepper, but not every day.

You didn't mention ground beef in your list of foods. My other big suspect was ground beef. It was from Wal-Mart (my closest grocer), and although it's against the law, I wondered if it had been mixed with some filler. But I've been sticking with "whole" sources of beef for the past few days...pot roast, stew meat, etc.

Another few things for you to check (in case it isn't the Lays): 1.) Has the chicken been injected with a solution that contains "food starch"? 2.) Is your jam gluten-free? Some are not. 3.) Is your jam jar clean and free from gluten crumbs? If it dates to your pre-gluten days, or if it's used by anyone eating bread, dump it and get a new jar for you alone.

Good luck figuring it out! The bad days just hammer home how ecstatic I am to have found the problem (gluten) and to be on my road to recovery.

April

gfpaperdoll Rookie

my suggestion would be to give up the gluten free bread and cookies & dairy.

obviously you are eating something that is not agreeing with you. 4 weeks might be too soon for you to add in the gluten free grains. The cross contamination issue is also a concern, it kicks in after you have most of the gluten out of your system :(

oh & personally I would also give up forever those diet cokes. check out what that artificial sugar does to your brain. & now that it is getting more widely accepted that gluten affects the brain, I would not want to be consuming anything else that interferes with the brain. although, my sister also refuses to give up her diet cokes - says she does not want to be fat... Which I think is an excuse...

I also do not drink regular cokes, are you aware how corrosive that stuff is to your teeth? imagine what it is doing to your compromised intestines!!

Rachel--24 Collaborator
oh & personally I would also give up forever those diet cokes. check out what that artificial sugar does to your brain. & now that it is getting more widely accepted that gluten affects the brain, I would not want to be consuming anything else that interferes with the brain.

I would have to agree with this. The Aspartame in your diet coke is toxic. I would guarantee that you'd feel better (in alot of ways) if you did what this poster suggested and ditched the diet cokes.

Yes...it could be damaging your brain...and no it isnt good for your intestines...or any other part of your body.

RiceGuy Collaborator

Besides the drinks, those chips stand out as a possible culprit IMHO. Lay's is notorious for MSG, and loads of garbage including wheat derived stuff in their chips. The only safe chips in any brand that I'm aware of are the plain ones. No flavorings. That's the only ones I ever liked anyway, but most people (for reasons I do not understand) seem to like the flavored ones. Looking at the mile-long list of ingredients makes me wonder how anyone could want to eat them :blink:

Aside from that, perhaps the almonds are a source of CC? A recent thread seems to indicate it is common for nuts to be processed at the same facilities as wheat, but the only allergy info I've ever seen on packages of nuts is that they are processed with other nuts.

As gfpaperdoll points out, dairy or other things might be a bit rough on your system for the time being.

confused Community Regular
Thanks for posting this as it gives me an idea about where to focus in my own mystery glutening.

I am in the same boat with you...really. I've been gluten-free for about the same period of time, and most of it has been HEAVEN...feeling better than I have in a decade. But this past week has been a total downer. Somehow I got glutened...complete with mouth sores, mild d, itchy elbows and fatigue (my typical symptoms). The only suspicious thing your diet and my diet have in common:

LAYS Potato Chips. :(

I was already starting to suspect them yesterday, because I felt bad after a meal that was just chili made from organic pinto beans (rinsed), organic canned chicken (rinsed), my own homemade gluten-free chili seasoning blend, and Lays.

Someone recommended Cape Cod chips as being a low risk for cross-contamination. I'm going to look for some.

I don't eat eggs, milk, rice, fish, almonds or corn because of my infant son's allergies (he's still nursing). I do eat a lot of carrots (baby, organic, washed). I have an occasional diet Dr. Pepper, but not every day.

You didn't mention ground beef in your list of foods. My other big suspect was ground beef. It was from Wal-Mart (my closest grocer), and although it's against the law, I wondered if it had been mixed with some filler. But I've been sticking with "whole" sources of beef for the past few days...pot roast, stew meat, etc.

Another few things for you to check (in case it isn't the Lays): 1.) Has the chicken been injected with a solution that contains "food starch"? 2.) Is your jam gluten-free? Some are not. 3.) Is your jam jar clean and free from gluten crumbs? If it dates to your pre-gluten days, or if it's used by anyone eating bread, dump it and get a new jar for you alone.

Good luck figuring it out! The bad days just hammer home how ecstatic I am to have found the problem (gluten) and to be on my road to recovery.

April

I am thinking the lays. Yesterday i was so sick, i had thought it was all from the miracle whip, but i did feel good when i woke up yesterday til i grabbed a few lays chips, then i got so sick. I didnt think it oculd be the lays so blamed the miracle whip, but now that you both think you might have problems with lays, then i bet maybe that is what the culprit is. I guess no more lays for me.

paula

johnsoniu Apprentice

I second (or third) the cutting out the Lay's and diet coke. I had some Lay's about a week after going gluten free and the tummy did not like it one bit. I don't know if it's the oil that they use or a CC issue, but many people seem to not deal well with them.

As for the soda, I used to drink 4 or 5 Coke's a day, along with a couple cups of coffee. When I went gluten free I figured I might as well weed out some of the other junk. I might drink a Sprite 2 or 3 times a week now, but haven't had Coke or coffee in almost 2 months and don't miss them at all. Propel vitamin water(made by Gatorade), comes in a variety of flavors, is pretty cheap wholesale, and a lot better for you, especially iin the damaged state your intestines are in.

Might want to look into the almonds, you may have a tree nut intolerance as well. Hope you get it figured out and feeling better soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pnltbox27 Contributor

thanks for all of the advice.im pretty sure the lays chips are probably a culprit of some sort, so i guess ill lay off of them. no pun untended lol.. as far as the diet cola everyone of you are right its very hypocritical of me to cut out gluten to heal my body only to polute it with a different toxin.its like smoking though i am dependent on it ive been drinking only cola for my whole life im 37 years old. i cant seem to find a alternative , but ill keep trying

Mtndog Collaborator

There's another thread on this very topic:

Open Original Shared Link

GFJan Newbie

About Lay's Potato Chips...

I just started the gluten-free diet last week, but I have always eaten a lot of Lay's chips in the past, usually the reduced fat, but none of the plain chips bothered me.

Then last summer I suddenly started having violent reactions to their chips. I have no idea what changed, but every few weeks I would try again and would be doubled over or lying in a fetal position in bed with D for a few days. I was totally baffled by the reaction.

I know that they have gone to all sunflower oil now, but I use it all the time for cooking without any problems and the type they use is supposed to be non-GMO. All I can figure is that they changed their processing.

Thanks for maybe solving a mystery for me...I get my potato fix with Ore-Ida fries now (although they only guarantee that some of their line is produced on gluten-free lines so you have to check their website for UPC codes).

Jan

sleepy1 Rookie
Thanks for posting this as it gives me an idea about where to focus in my own mystery glutening.

I am in the same boat with you...really. I've been gluten-free for about the same period of time, and most of it has been HEAVEN...feeling better than I have in a decade. But this past week has been a total downer. Somehow I got glutened...complete with mouth sores, mild d, itchy elbows and fatigue (my typical symptoms). The only suspicious thing your diet and my diet have in common:

LAYS Potato Chips. :(

I was already starting to suspect them yesterday, because I felt bad after a meal that was just chili made from organic pinto beans (rinsed), organic canned chicken (rinsed), my own homemade gluten-free chili seasoning blend, and Lays.

Someone recommended Cape Cod chips as being a low risk for cross-contamination. I'm going to look for some.

I don't eat eggs, milk, rice, fish, almonds or corn because of my infant son's allergies (he's still nursing). I do eat a lot of carrots (baby, organic, washed). I have an occasional diet Dr. Pepper, but not every day.

You didn't mention ground beef in your list of foods. My other big suspect was ground beef. It was from Wal-Mart (my closest grocer), and although it's against the law, I wondered if it had been mixed with some filler. But I've been sticking with "whole" sources of beef for the past few days...pot roast, stew meat, etc.

Another few things for you to check (in case it isn't the Lays): 1.) Has the chicken been injected with a solution that contains "food starch"? 2.) Is your jam gluten-free? Some are not. 3.) Is your jam jar clean and free from gluten crumbs? If it dates to your pre-gluten days, or if it's used by anyone eating bread, dump it and get a new jar for you alone.

Good luck figuring it out! The bad days just hammer home how ecstatic I am to have found the problem (gluten) and to be on my road to recovery.

April

the lay's are said to be gluten free i contacted the company and most lay's are but they did say there was some risk of contamination but was low because most of their products are gluten free the walmart hambuger though gets me every time so i stick to the fresh ground places and seem to do fine but ham is very risky i just stay away from it all together

pnltbox27 Contributor

its been a week or two since my post and ive only had a bag of original lays twice with no problems so im still confused . i dont know if it was cc or something else. it sure is interesting to see others possibly having the same issues though..

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,116
    • Most Online (within 30 mins)
      7,748

    Mary Pack
    Newest Member
    Mary Pack
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.