Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Share Your Best Post-glutening Remedies

melie

By melie
in Coping with Celiac Disease

Recommended Posts

melie Apprentice
melie
Posted

Hi,

After having two hair raising bouts of D, (10 days one time!) from Gluten exposure, I seem to be getting more sensitive to gluten as time goes on (now one year gluten free!) I have never had such severe reactions and would like to know what people do to get back to normal, bowel wise.

Does anyone else have such long and severe reactions to gluten, especially when it wasn't that severe before?

I took some Immodium tablets yesterday for the latest 3 day D jag, seems to be working so far.

I thought this thread would be a good place to write about what you do to get the gluten out of your system, and intestines happy again, other than of course maintaining a strict gluten free diet.

Thanks,

Melie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flowergirl Rookie
flowergirl
Posted

Hi there, three things does the trick for me after a glutening and D

* a teaspoon of slippery elm mixed with water

* aloe vera juice

* peppermint tea

after that I usually sleep it off for about 3 days and take some dandelion root or milk thistle to help the liver so that my BM's can return to normal.

Flowergirl

darlindeb25 Collaborator
darlindeb25
Posted

I'm sure my answer will be of no help, yet for me, I just let nature do it's job. I find if I take anything, it usually prolongs the agony. Imodium works at the time, yet I will suffer even more so in a few days. I tend to live with my heating pad and just deal with the accident.

I do think it would be wonderful if they could come up with something that could help when glutened.

melie Apprentice
melie
Posted
  • Author

Yeah, the Immodium wore off, and guess what....back to D! So frustrating! I can't believe how long a post-glutening reaction can go on for...is this common?

I seem to recall others saying they suffered for a week after a glutening, I used to be skeptical about that, but no more!!

Melie

NoGluGirl Contributor
NoGluGirl
Posted
Yeah, the Immodium wore off, and guess what....back to D! So frustrating! I can't believe how long a post-glutening reaction can go on for...is this common?

I seem to recall others saying they suffered for a week after a glutening, I used to be skeptical about that, but no more!!

Melie

Dear Melie,

I think this is common. I am more sensitive to it now that before going gluten free. My reaction is very violent. It includes my bowels, but actually affects my upper tract worse. I break out in a sweat, then get terribly nauseated, need to have a bowel movement, my stomach swells and cramps, and I begin shaking. Sometimes my hands even go numb and/or tingle! I have to make sure to swallow my promethazine before the dry heaves that make it feel like my insides are emploding start. Then, I get really drowsy and sleep. I am usually really fatigued for a couple of days afterward, too.

Sincerely,

NoGluGirl

confused Community Regular
confused
Posted
Dear Melie,

I think this is common. I am more sensitive to it now that before going gluten free. My reaction is very violent. It includes my bowels, but actually affects my upper tract worse. I break out in a sweat, then get terribly nauseated, need to have a bowel movement, my stomach swells and cramps, and I begin shaking. Sometimes my hands even go numb and/or tingle! I have to make sure to swallow my promethazine before the dry heaves that make it feel like my insides are emploding start. Then, I get really drowsy and sleep. I am usually really fatigued for a couple of days afterward, too.

Sincerely,

NoGluGirl

That is me to a tee, and i hate it. The other night it happened and then i let my anxiety kick in, it took me about an hour to calm myself down. My poor family just looks at me like im odd, but they have learned to let me deal with it all on my own, when they try to calm me down, it is worse. Im still recovering from friday, every day is a little better but not much. Or maybe it was cause i licked the back of an envelope last night. I was so mad at myself for that lol

paula

JNBunnie1 Community Regular
JNBunnie1
Posted

You can get glutened from envelopes?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
You can get glutened from envelopes?

I don't know if this is one of the old gluten tales, and I have never seen the ingredients in envelope glue.....but it is not recommended.

KAG Rookie
KAG
Posted

I get serious gas and constipation from gluten. I also don't tolerate many carbohydrates or legumes either very well. I just recently learned that when you eat something that causes an alergic reaction, you can have inflamation in the intestines and that can cause constipation. Anyway, to get myself back on track I eat the following chicken soup recipe that I got from Jordan Rubin's book about healing your digestive disorders. I eat only this soup for a few days to calm the inflamation in my intestines and then for the next few days I add spinach, zuccini, turnip greens (frozen from a bag), etc. to the soup and I'm back to normal(?).

(I don't use the chicken feet, or the structured water concentrate) Also - when I make this soup (which is just about every other week) I freeze individual portions so if I need any I can just defrost single servings. What's important is to make sure you cook this soup for at least 12 hours.

1 medium whole chicken

JNBunnie1 Community Regular
JNBunnie1
Posted

Huh. And I thought I was paranoid before....... Good thing they make sticky stamps.

NoGluGirl Contributor
NoGluGirl
Posted

Dear Paula,

Yep, that is like with me. My parents do not get it. They probably have Celiac too! They just won't admit it. My mother takes Phenergan, Levsin SL, Equate anti-diarrheal liquid (liquid cork I like to call it) and some other pill for her stomach. She refuses to try the diet. She also could not care less if I get glutened because it does not effect her. I am just being a hypochondriac to her.

Dear JNBunnie1,

Nope, you are not paranoid. You know, I never licked the envelopes anyway. I always taped them. They never stuck well. I was safeguarded from that early!

Dear KAG,

Thanks for the recipe! I put it in my gluten free food file. Dr. Ruben seems to know more about health than most people. He actually mentioned Celiac on the show I saw him on! ;) Now here is a guy I think seems to know what is happening!

Sincerely,

NoGluGirl

KAG Rookie
KAG
Posted

Yes, Jordan Rubin knows a lot about digestive disorders! The only problem is that he uses a lot of barley in his supplements. I wish that he would go completely gluten free! I would spend the extra money on his supplements. I use a few and they are great!

num1habsfan Rising Star
num1habsfan
Posted

Yes, my symptoms and reactions and sesativities have gone bad, to the point I dont think it could get worse. You can imagine how i felt when I had to eat gluten 5 days for a test...it took me almost 2 weeks to recover. I get sick from breathing in flour/grains, too.

Unfortunately I dont know what can help, the only solution I have for myself is to be paranoid :lol:

~ lisa ~

snowcoveredheart Apprentice
snowcoveredheart
Posted

i just drink peppermint tea for the pain and lemon juice with honey to try and help clear out the badness.... and let nature take its course.

Nantzie Collaborator
Nantzie
Posted
You can get glutened from envelopes?

I always used to get nauseous, headachy and really anxious and upset when I paid bills. It made sense when we were barely making ends meet, but once we started making enough money to live within our means, I thought I just hated paying bills for some reason.

Once I learned about gluten being a possible ingredient in the adhesive, SO much made sense. :lol:

I'm sure it's not on all of the envelopes, but it's on at least some. There's just no way to check and verify. So it's a better safe than sorry thing.

Nancy

JNBunnie1 Community Regular
JNBunnie1
Posted
Yes, Jordan Rubin knows a lot about digestive disorders! The only problem is that he uses a lot of barley in his supplements. I wish that he would go completely gluten free! I would spend the extra money on his supplements. I use a few and they are great!

I know! I wish he'd go gluten-free too, his book is what helped me make my self-diagnoses when all my doctors were being obtuse. I was taking his probiotic until a few weeks ago when I read the ingredients again after a YEAR of not paying attention, I think I've been glutened twice in that time from his pills, now that I know that. I couldn't figure out those glutenings before. So they're obviously very good quality, but still not worth the risk.

melie Apprentice
melie
Posted
  • Author

On average, how many days after a glutening do you suffer? It used to be less than one day for me, but now on up to a week, I keep thinking it would be washed from my body early on, and the last several days is just the bowels being cranky and irritable because there was gluten in there, an 'overreaction' that they have to recover from.

Insights?

I have come to the depressing conclusion that I am highly likely to be glutened at restaurants and I have to give eating out up, at least for now, because this weeklong misery afterwards is not worth it.

JNBunnie1 Community Regular
JNBunnie1
Posted
On average, how many days after a glutening do you suffer? It used to be less than one day for me, but now on up to a week, I keep thinking it would be washed from my body early on, and the last several days is just the bowels being cranky and irritable because there was gluten in there, an 'overreaction' that they have to recover from.

Insights?

I have come to the depressing conclusion that I am highly likely to be glutened at restaurants and I have to give eating out up, at least for now, because this weeklong misery afterwards is not worth it.

I usually suffer for about two days. The fatigue and brain blurring last a few days longer though. You might try suggesting restaurants that have really nice salad bars, not pizaa restaurants though. I can usually go to Ruby Tuesday's (chain) and they have such a great salad bar that I actually get filled up, and I don't have to worry about anything really being cross contaminated, because the salad bar prep station in the back is separate from where they cook the 'real' food, and usually washed a lot more often too.

NoGluGirl Contributor
NoGluGirl
Posted

Dear KAG,

:( That is a bummer about the barley. It would be nice if Dr. Ruben stopped using it. So many things are off limits because of it! He seems to have his pulse on the right thing, though. I am glad someone does!

Dear num1habsfan,

I know exactly what you mean. The reactions do tend to increase intensity after being used to being gluten free. It is horrible! I am paranoid as well. I am afraid to leave my coffee cup alone, for fear of cross contamination! My mother got toast crumbs on the paper towels! :angry: Now I have to open a whole new roll for myself, and try to keep it safe.

Dear Melie,

I just have to let nature take its course. The promethazine makes me incredibly drowsy. For a couple of days after, I usually feel sluggish and my stomach is irritated. Sometimes a week is how long it takes to get completely out of my system. I have read in some books that you can reduce the suffering by hurrying it out of your system with a laxative. My stomach often cramps when I take these, especially anything with psyllium husk. I never could take that stuff.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.