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Gluten In My Meds?

BackTalk

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BackTalk Rookie
BackTalk
Posted

When searching for what may be used in your medications, is there a symbol or something that denotes there is gluten used?

Backtalk

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TinkerbellSwt Collaborator
TinkerbellSwt
Posted

I have never seen a symbol or anything.. when it came to my scripts, I actually called from the hospital when I was diagnosed. I called the companies directly that manufactured my meds.. they were all very helpful and answered all my questions.

I know there is a website that will help with meds being gluten free, its a list, I am not sure where it is though.. someone will hopefully chime in with that info..

NoGluGirl Contributor
NoGluGirl
Posted
When searching for what may be used in your medications, is there a symbol or something that denotes there is gluten used?

Backtalk

Dear BackTalk,

I think I know what our fellow poster was talking about. I think it is just www.glutenfreedrugs.com . It sounds simple, but that is good. Complicated is not good. We have it complicated enough already!

Sincerely,

NoGluGirl

gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

Actually, when talkng about prescription medications, there is very little to do except to call the manufacturer. I found an extremely helpful pharmacist once. She would check every product I was prescribed, which was quite a few at that time. Then she called one day to tell me that she had read an article and then researched it and found that the inert ingredients are not required to be disclosed. This means that the difference between name brand and generic could come down to the inert ingredients. Since it is proprietary few manufacturers disclose the info willingly. I found it best to keep a list of medications that I have taken successfully in the past and keep the manufacturers phone number. I would call before filling the prescription.

Your best bet is to get name brand - "no generic" written on the prescription. It may cost more, but you will be assured that the ingredients will always be the same.

The other thing to note is that liquids like IVs will not contain any gluten products.

Finally, over the counter medications can contain gluten, but you can purchase gluten-free Over-the-counter meds lists. I bought one from Clan Thompson years ago that was very helpful.

I treat meds like my foods, I have a standard list of medications that I take and if i have to take anything else, I call first. It takes longer, but I don't get sick either.

BackTalk Rookie
BackTalk
Posted
  • Author

Wow, thank you all for the fast response. I take alot of meds but I saw a poster here in the sleep forum that said Ambian sleeping meds had gluten in it. Then another poster stated that it did not. Looks like the only way to be sure is to check it out on your own. I think however if you find something it should be posted some where on this site.

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    • JudyLou
      Seeking advice on potential gluten challenge

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      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

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    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
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    • trents
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      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
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