Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten In My Meds?


BackTalk

Recommended Posts

BackTalk Rookie

When searching for what may be used in your medications, is there a symbol or something that denotes there is gluten used?

Backtalk


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TinkerbellSwt Collaborator

I have never seen a symbol or anything.. when it came to my scripts, I actually called from the hospital when I was diagnosed. I called the companies directly that manufactured my meds.. they were all very helpful and answered all my questions.

I know there is a website that will help with meds being gluten free, its a list, I am not sure where it is though.. someone will hopefully chime in with that info..

NoGluGirl Contributor
When searching for what may be used in your medications, is there a symbol or something that denotes there is gluten used?

Backtalk

Dear BackTalk,

I think I know what our fellow poster was talking about. I think it is just www.glutenfreedrugs.com . It sounds simple, but that is good. Complicated is not good. We have it complicated enough already!

Sincerely,

NoGluGirl

gfgypsyqueen Enthusiast

Actually, when talkng about prescription medications, there is very little to do except to call the manufacturer. I found an extremely helpful pharmacist once. She would check every product I was prescribed, which was quite a few at that time. Then she called one day to tell me that she had read an article and then researched it and found that the inert ingredients are not required to be disclosed. This means that the difference between name brand and generic could come down to the inert ingredients. Since it is proprietary few manufacturers disclose the info willingly. I found it best to keep a list of medications that I have taken successfully in the past and keep the manufacturers phone number. I would call before filling the prescription.

Your best bet is to get name brand - "no generic" written on the prescription. It may cost more, but you will be assured that the ingredients will always be the same.

The other thing to note is that liquids like IVs will not contain any gluten products.

Finally, over the counter medications can contain gluten, but you can purchase gluten-free Over-the-counter meds lists. I bought one from Clan Thompson years ago that was very helpful.

I treat meds like my foods, I have a standard list of medications that I take and if i have to take anything else, I call first. It takes longer, but I don't get sick either.

BackTalk Rookie

Wow, thank you all for the fast response. I take alot of meds but I saw a poster here in the sleep forum that said Ambian sleeping meds had gluten in it. Then another poster stated that it did not. Looks like the only way to be sure is to check it out on your own. I think however if you find something it should be posted some where on this site.

BackTalk

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      My journey is it gluten or fiber?

    2. - Russ H replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - GlorietaKaro posted a topic in Super Sensitive People
      0

      Am I nuts?

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748

    CeceNV
    Newest Member
    CeceNV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Some members here take GliadinX (a sponsor here) if they eat out in restaurants or outside their homes. It has been shown in numerous studies to break down small amounts of gluten in the stomach, before it reaches your intestines. This would be for small amounts of cross-contamination, and it would not allow any celiac to eat gluten again.
    • Russ H
      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much more quickly than adults.  I would look at testing all 1st degree relatives - parents, siblings.
    • GlorietaKaro
      Hiya- I have been eating gluten free for several years now— but the learning curve has been steep!  I got serious about the strictness of my diet at the beginning of the COVID pandemic: I missed baking bread and thought there would be no harm in making bread in a bread machine— I was just assembling the ingredients, not actually touching it. Well, some flour puffed up in my face and I lost my voice!  At that time, I had many other scary things going on: muscle fasciculations, dropping things, missing things I was reaching for, tripping and trouble navigating around corners and doors ( I ran into them!), muscle weakness resulting in severe incontinence, issues with irregular heartbeat, and other things. I thought I had ALS. I have since learned to avoid all traces of gluten and oats and everything has resolved, but even a trace amount of gluten will cause me to start tripping, dropping things, and have muscle spasms. The last series of micro-exposures resulted in half my face going numb, like Bell’s Palsey   I have consulted with several doctors about this, and mostly they look at me like I’m mentally ill and treat me like a hypochondriac.  One doctor suggested that I start eating gluten again so I could get a diagnosis, but that is a scary prospect— I do like to be able to breathe! I feel like a test run with gluten could put me in the hospital, or even kill me. So my question is— am I crazy?  Could all of those symptoms be caused by gluten?  Is there any way to get a definitive diagnosis without eating gluten(like a scratch test or something?)? Also, in a city full of gluten avoidant individuals (who look a lot like me) but who still occasionally eat gluten foods or cook with gluten or who can still walk into a bakery or pizza restaurant, how can I get taken seriously? Mostly I just want to find out if I am a complete weirdo, or if there is anyone else out there who reacts like I do— 
    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.