Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Healing Crisis?


aquamarine-queen

Recommended Posts

aquamarine-queen Rookie

Beginning my third week gluten-free and I find myself: feeling vaguely "sick" (swollen glands, slightly stuffy, slightly feverish); with a full-blown acne breakout (I have trouble spots here and there, but a face - and scalp! - full of acne is not usual for me); and a huge cold sore on my lower lip that doesn't want to go away. A naturopath explained to me once that when the body rids itself of toxins (like gluten?) they have to go someplace, and often show up on the face, etc.

The other side of this is that I have never felt more clear-headed in my life and I should be grateful for that and ignore the nastier aspects of healing. My joints feel somewhat less achy, too. I am also beginning to learn (by trial and error) what other foods are giving me problems (soy, and to a lesser extent, corn). What's odd is that I've always been somewhat sensitive to coffee (only ever drink decaf) - and now I find that it doesn't irritate my stomach at all! Well, at least not at this stage.

Anybody else experience such things? :)

AQ


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loraleena Contributor

Yes, detox is possible when you stop gluten. I was nauseous for a month!

Sinenox Apprentice

Hey AQ,

When I first stopped the gluten this past autumn the exact same thing happened to me!

When I asked my doctor about it, he kind of shrugged and said that it was all probably stress related.

I was concerned, foremost because the symptom that tipped them off was immunesuppression, and my lymph nodes and other glands would get swollen whenever I ate gluten, among other things. I was a bit worried that I'd have to be hospitalized again. But in any case I experienced all of those symptoms as well, in addition to the sudden fog-lifting effect that made it clear it was all worth it! Things will get better, but it takes a loooong time. I've been growing impatient, though I know it hasn't even been a year yet. The gland-swelling and aches and pains and breakout and such all went away after a couple of weeks, for the most part. Whenever I eat any accidentally now I still manage to get the symptoms back en force, much worse than before when I'd built up a sort of tolerance. After the sudden rush in the beginning it seems as though it should have all gone away by now (the symptoms I get after being glutened that is). People on here tell me it's just a waiting game. Every month things get a bit better.

Good luck.

kbtoyssni Contributor

I also used to get the most upset stomach from caffienated coffee. I should try it again because I bet I'd be ok now, but haven't gotten around to it yet.

wowzer Community Regular

Coffee may not have been the problem, but what you used to eat with the coffee could be the culprit. I've found some foods that I thought were problems for me that I can eat with no problem since going gluten free. Of course coffee would be a hard one for me to give up I must admit.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    bostonbell
    Newest Member
    bostonbell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.