Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Long Dairy!


SunnyDyRain

Recommended Posts

SunnyDyRain Enthusiast

Ok, I have thought about it, took your suggestions, and figured out it's Dairy that's makign me sick.

Now I need to understand Dairy intolerance!

How do I tell if it's a problem with lactose, or problem with casiens?

What are the differences?

Are they harming me(like gluten does to intestines), or just making me sick(making me run to the bathroom)?

Does it sound right when I say I don't get sick from cream in my coffee, but get sick from ice cream and sour cream (both gluten free).

I hear people get over it.... how long did it take?

It's been one month (to the day actually) that I started gluten free, and i'm starting to finally figure this out, and now more restrictions! :angry:

Why won't my body and my tastebuds get along?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfgypsyqueen Enthusiast

My child recently went completely dairy/casein free. Believe it or not, I found the dairy.casein very hard to figure out at first. And I am still learning. FAAN has shopping cards you can buy that help.

Look for Vegan products. At first I bought a lot of dairy free, non-dairy, lactose free cheeses and things and found out once I learned more that all of them contained something that was a dairy or casein product. Very upsetting.

From what I have been told, Casein is not labeled as a milk product. But things that are Vegan are free of all animal products and therefore free or dairy and casein.

My child reacts to trace amounts of dairy, so we are very strict.

Some people can handle small amounts (like the milk in your coffee). Your gastro can run a blood test to see if you have a lactose problem. I do not know if they test for casein.

As for the damage, I do not know scientifically, but I know my kid was failing to thrive and since going dairy/casein free she has gained a few lbs and grown in just one month. So I assume it is doing something bad to your intestines.

That's all I know :P

kabowman Explorer

Often, the coffee creamers just have casein (check the label) which would mean lactose only.

A good, easy test is, take lactose pills and eat some dairy, if they help, you can have casein, if not, the elemiate all.

My son needs 3 lactose pills to handle dairy so you may need to try multiple amounts to see if it is just the lactose.

SunnyDyRain Enthusiast
Often, the coffee creamers just have casein (check the label) which would mean lactose only.

A good, easy test is, take lactose pills and eat some dairy, if they help, you can have casein, if not, the elemiate all.

My son needs 3 lactose pills to handle dairy so you may need to try multiple amounts to see if it is just the lactose.

I use 2% milk in my coffee, so it definitely has lactose. I actually use quite a bit too 1/4 milk, 3/4 coffee.

I may try some pills... anything to help!

hathor Contributor

Lactose intolerance means you have a problem digesting milk sugar. Casein intolerance means your system is having an immune response to milk protein. As you can see, I was tested for the latter. According to Enterolab and other sources I've read (although there isn't as much on this as for gluten intolerance), continuing to eat casein if you are intolerant isn't good for your body.

I guess one way you could tell is to try products for the lactose intolerant. If you no longer have problems, there's your answer.

Or you can buy some product that has added casein and not lactose and see what happens. There are soy and rice cheese products, for instance, that add casein. I've only heard of one rice cheese product that doesn't -- and I haven't found it in any local store, nor any way to order it.

Lists of ingredients for any product will say if casein or caseinates are added, or if there is anything obviously dairy, like whey.

If you have the money, you could also be tested.

NoGluGirl Contributor
Ok, I have thought about it, took your suggestions, and figured out it's Dairy that's makign me sick.

Now I need to understand Dairy intolerance!

How do I tell if it's a problem with lactose, or problem with casiens?

What are the differences?

Are they harming me(like gluten does to intestines), or just making me sick(making me run to the bathroom)?

Does it sound right when I say I don't get sick from cream in my coffee, but get sick from ice cream and sour cream (both gluten free).

I hear people get over it.... how long did it take?

It's been one month (to the day actually) that I started gluten free, and i'm starting to finally figure this out, and now more restrictions! :angry:

Why won't my body and my tastebuds get along?

Dear SunnyDyRain,

I have the same trouble! I can tolerate a small amount in milk chocolate, but if I eat a pudding cup or yogurt I get as a bad a reaction as I get from gluten. I am not sure if it is the casein or the lactose. Cheese normally has no lactose. If you tolerate cheese, then it is probably lactose. Casein is in everything dairy, at least as far as I know.

Sincerely,

NoGluGirl

hathor Contributor

"Casein is in everything dairy, at least as far as I know."

I've read that ghee is so clarified you just have fat & no milk protein left. I know I've never had any problems at Indian restaurants (once I stopped eating all their yummy breads :( ) I was trying to find something definitive online, but failed. I guess my google mojo isn't working today. I did find an ad for ghee that said it was casein free, though :rolleyes:

Of course, you aren't going to put ghee in your coffee :blink:

The casein reaction for me does seem to be dose-related. A little bit in milk chocolate I won't notice -- but I like dark chocolate better anyway. :rolleyes: A slab of cheesecake like I had last Thanksgiving before I knew I was casein-intolerant - I was sick for days.

I figure it best to avoid any damage I might be doing to my system from even small amounts. Some think that casein can damage your intestines or prevent them from healing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.