Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused...

Babygirl6915

Recommended Posts

Babygirl6915 Explorer
Babygirl6915
Posted

Ok, so the more I read on here, the more I see how many tests & such everyone on here has had to confirm their celiac. All I had was a blood test that said I have a Class II allergy to wheat. The doctor told me that I had celiac & sent me on my way with 2 pages basically saying don't eat wheat ever again. :rolleyes: Now, I also don't have near the symptoms that some people on here have but all the bloating, swelling, diahrrea, puffy face, & terrible stomach pain I do have. Is there something else I should be doing to confirm this (test wise)? Or is that all it takes... Also, should I be seeing an GI or an allergist @ all?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Jessica:

You had a blood test that was positive for Class II Wheat allergy. I am not familiar with Class II. Maybe someone else knows what that means.

Do you know the type of test that you doctor ran?

loco-ladi Contributor
loco-ladi
Posted

As with everything else it depends on your body, how long you've lived with it not knowing and how much damage it has done....

Myself, I am not an official diagnosis, the doctor wouldn't run any tests for it and since it runs in my family and I had the correct symptoms, heck it wont kill me so why not try it see if it helps, well it did help even just 2 months into it I can see the difference, still have a few issues but they get better daily.

aikiducky Apprentice
aikiducky
Posted

Celiac is not an allergy but a different kind of process in the body. If you were diagnosed with an allergy test you don't know whether you have celiac or not. The way to officially diagnose celiac is with a few different blood tests called the celiac panel and a biopsy of the small intestine. That said, I would take a wheat allergy seriously. An allergic reaction can be very quick and very serious! :blink: So you shouldn't eat wheat anyway. The question is however, whether or not you also should avoid barley, rye and oats?

Pauliina

Babygirl6915 Explorer
Babygirl6915
Posted
  • Author

So should I go & see an allergist about this? The not eating gluten has really helped alot but if its just an allergy shouldn't there be a shot or something to make it go away like grass or pollen? :huh:

Michi8 Contributor
Michi8
Posted
So should I go & see an allergist about this? The not eating gluten has really helped alot but if its just an allergy shouldn't there be a shot or something to make it go away like grass or pollen? :huh:

There really is no magic shot to make any allergies go away. Some people have some success with allergy shots for airborne allergens, but with food allergies it's a different story. Best way to treat food allergies is to eliminate the offending food from your diet.

That said, by all means go to an allergist to confirm whether or not this is a true allergy and whether you have other allergies to be concerned about. You could also visit a GI to confirm whether this is truly a case of celiac. At the very least, go back to your doctor to confirm whether he ordered the full celiac panel or not...and if not, then have that panel done too.

Michelle

Babygirl6915 Explorer
Babygirl6915
Posted
  • Author

Ok, so I spoke to an allergist finally & basically having a wheat allergy is the same as celiac in that I should not eat any gluten period. He said that just because I am not allergic to it doesn't mean I won't get a response from is b/c they are all so similar. I am supposed to make an appointment to go in to see him but all he is going to do is encourage me to get allergy shots for my other allergies (dust mites, cockroaches, 2 kinds of grass, mold). Anyways, so I guess I am still on the permanent gluten-free diet. <_< But it really has been working still! I feel TONS better & I already had my first run in with an accidental glutening! :blink: Sour cream & chicken enchiladas @ Blue Goose are NOT gluten-free despite me dumb waitress's assurances. At first she thought I said glue-free. That should have been a clue right there <_< but oh well. You live & you learn right?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marty13 Newbie
Marty13
Posted
Ok, so the more I read on here, the more I see how many tests & such everyone on here has had to confirm their celiac. All I had was a blood test that said I have a Class II allergy to wheat. The doctor told me that I had celiac & sent me on my way with 2 pages basically saying don't eat wheat ever again. :rolleyes: Now, I also don't have near the symptoms that some people on here have but all the bloating, swelling, diahrrea, puffy face, & terrible stomach pain I do have. Is there something else I should be doing to confirm this (test wise)? Or is that all it takes... Also, should I be seeing an GI or an allergist @ all?

you should see a celiac specialist because they will be able to give you a endoscopy which is when the doctors stick a tude down your throat(when you are asleep) and they take pictures of your intestines, they also take biopsies. at beth isreal hospital in boston massachusetts they have a celiac center for adults and they are really good. i do not go there because i am only 13 i go to Childrens hospital and they have a really great place. i think that the celiac specialists are really talented and they are all really nice so if you can because i don't know where you live, i really recommend these places.

Frogster Newbie
Frogster
Posted

Dear Confused,

So am I.

My husband was dx with Crohns and Celiac in Jan. by biopsy. He has been gluten-free since that time.

He was transported by ambulance last Fri. to hospital and stayed until yesterday (Wed). This was a Crohns attack. His G.I. doc came in yesterday morning and released him, wants to see him in 2 weeks. talk about new meds...but he wants him to go back to gluten until his appointment and do some blood work at that time. Can anyone tell me if this is normal although he had the positive biopsy? I am afraid he will get sick going back on gluten.

Thank you for any comments.

Frogster

Lisa Mentor
Lisa
Posted
Dear Confused,

So am I.

My husband was dx with Crohns and Celiac in Jan. by biopsy. He has been gluten-free since that time.

He was transported by ambulance last Fri. to hospital and stayed until yesterday (Wed). This was a Crohns attack. His G.I. doc came in yesterday morning and released him, wants to see him in 2 weeks. talk about new meds...but he wants him to go back to gluten until his appointment and do some blood work at that time. Can anyone tell me if this is normal although he had the positive biopsy? I am afraid he will get sick going back on gluten.

Thank you for any comments.

Frogster

Going back on gluten makes no sense to me what so ever. With a positive biopsy for Celiac, he will get sick. Sorry that you have been having such troubles.

Frogster Newbie
Frogster
Posted
Going back on gluten makes no sense to me what so ever. With a positive biopsy for Celiac, he will get sick. Sorry that you have been having such troubles.

Thank you for the comment and concern.

This is my second post.

I have been lurking awhile but have learned alot.

Thanks again.

mftnchn Explorer
mftnchn
Posted
Thank you for the comment and concern.

This is my second post.

I have been lurking awhile but have learned alot.

Thanks again.

Yes, I think before eating gluten again you should really press him for why this is necessary. Positive biopsy should be the gold standard that doesn't ever need re-doing for diagnosis. Sounds like someone who doesn't understand celiac.

This attack sounds awful and I hope he feels better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,218
    • Most Online (within 30 mins)
      7,748
    MCAyr
    Newest Member
    MCAyr
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Hernia symptoms after gluten exposure

      By trents · Posted

      Welcome to the community @MCAyr! One thing you need to know is that in order for celiac disease diagnostic testing to be valid, you must not have been on a gluten-free diet already. The first stage of celiac disease testing involves looking for the blood antibodies that are produced by the inflammation in the small bowel lining. Once you eliminate gluten, the antibodies begin to disappear and it takes weeks or months of being back on normal amounts of gluten for them to build up to detectable levels again.
    • MCAyr
      Hernia symptoms after gluten exposure

      By MCAyr · Posted

      Hi currently being investigated for celiac; suspected dermatitis herpetiformis, low calcium and vit D, stomach discomfort and 2 episodes of awful stomach pain (docs think maybe triggered by pregnancy)  Went gluten-free for 5 weeks was feeling great then last week accidentally had some in a sweet! Followed by 2 days of absolute hell and excruciating stomach pain and cramping below right of belly button. Since then the really bad pain has gone, but I've had sore to touch above my belly button and think I can feel a lump, was painful for a couple of days to point I couldn't sleep on sides. Docs palpated few days before I could feel lump, and felt nothing.  Anyone had a hernia they didn't know about until their gluten reaction inflamed it? Or is this just another lovely gluten sensitivity symptom?  Many thanks 
    • Scott Adams
      My mo,ther married a bread making when I was 4

      By Scott Adams · Posted

      Your story is a powerful and heartbreaking testament to the profound damage that can be caused by undiagnosed celiac disease and the profound pain of not being believed or supported by family. It is sadly a common narrative within the celiac community to have suffered for years, even decades, while autoimmune conditions stack up, all while being dismissed. To answer your core question: yes, living in a environment with significant, constant gluten exposure, especially from airborne flour in a home where milling and baking occurred, would have created a perpetual state of autoimmune activation for you, even beyond the direct ingestion. This chronic exposure is strongly linked to the development and exacerbation of the very autoimmune disorders you describe—Migraines, Meniere's, Hashimoto's, and more. Your body was under constant attack, and the lack of care and understanding from your family compound that trauma significantly. It is not your fault. Many in the community share similar stories of a cascade of illnesses finally explained by a celiac diagnosis, often coming too late to prevent irreversible damage. While I cannot speak to the legal aspects of your inheritance situation, your experience with the medical neglect and the lasting impact of your childhood environment is deeply valid and shared by others who understand this unique type of suffering. Thank you for having the courage to share your truth. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      7yo struggling!

      By Scott Adams · Posted

      It's incredibly tough to watch a young child grapple with the frustration and sense of deprivation that comes with a restrictive diet, and your empathy for her is the first and most important step. At seven, children are deeply focused on fairness, and her feelings are completely valid. To support her mental health, shift the narrative from "missing out" to "empowered choice." Instead of "you can't have that," use language like "we choose these safe foods so your tummy feels happy and strong." Involve her directly in her own care; let her be the "Gluten-Free Detective" at the grocery store, picking out exciting new treats, or make her the head chef in baking a special dessert that everyone gets to enjoy. When eating out, empower her by having her call the restaurant ahead to ask about safe options (with your help), making her feel in control rather than a passive victim. Acknowledge her feelings—"It's okay to feel sad that you can't have the roll, I sometimes feel that way too"—and then immediately pivot to a positive action, like unwrapping the special brownie you brought just for her. This combination of validation, involvement, and reframing turns a limitation into a shared family challenge where she feels supported, capable, and loved.
    • Scott Adams
      Rice Flakes

      By Scott Adams · Posted

      I know that Shiloh Farms makes this product, but I don't think it is labeled gluten-free.
×
×
  • Create New...