Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

After Diagnosis: Is Your Stomach Generally Happy Or Does It Seem More Sensitive Than "normal" Stomachs?


Yenni

Recommended Posts

Yenni Enthusiast

I am staring to wonder if I will ever be able to have a "normal" stomach. If it will always be more sensitive than people with no intolerances.

What is your stomach like after you stopped with gluten (and others stuff if you needed to)? Is it as well working as others or is it always a bit more sensitive and get "off" often?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

I think we will always have more sensitive stomachs!!!!

I'm not sure I even now what normal as far as digestive stuff is anymore......But i'm ok with it! I'm just happy to know whats going on!!!!

darlindeb25 Collaborator

I'm sorry, but I have to agree with akJenny. I think our stomachs will always be more sensitive, especially if tummy probs were part of the reason for your diagnosis. My tummy is a lot more sensitive than many people. Any stress in my life, my tummy reacts. Any illnesses effect it. I though, also have a lot of other intolerance's. My sister doesn't seem to have as many problems with her stomach as I do.

I'm sure some do much better than I have and some, probably worse. You will heal in the time your body needs too. Keep your chin up!

Nancym Enthusiast

Mine got better yet more sensitive. Meaning some things went away like the terrible cramping I had, but my bowels got techy. I recently read about small bowel overgrowth and my doctor put me on an antibiotic for that (rifamaxin) and since then things are MUCH BETTER! Yay! BTW: Celiac disease can cause SBO (small bowel overgrowth). Anyway, it is something to investigate. I told my doctor I didn't want to go through a lot of testing to treat it and he agree the antibiotics were easy to do, stay local to the bowel and it'd either work or not. I think it worked!

Danno Rookie

We're probably all different due to other sensitivities, but once I got away from gluten, no problems, an iron stomach!

oceangirl Collaborator
Mine got better yet more sensitive. Meaning some things went away like the terrible cramping I had, but my bowels got techy. I recently read about small bowel overgrowth and my doctor put me on an antibiotic for that (rifamaxin) and since then things are MUCH BETTER! Yay! BTW: Celiac disease can cause SBO (small bowel overgrowth). Anyway, it is something to investigate. I told my doctor I didn't want to go through a lot of testing to treat it and he agree the antibiotics were easy to do, stay local to the bowel and it'd either work or not. I think it worked!

YES!!!!!!!

I am definitely more sensitive to things than most others I know! I am gluten, corn, soy, dairy and legume free and have been for almost a year and I still have "touchy" intestines. (for me, it's my intestines- my stomach is usually okay unless I really get nailed) BUT!!! I am MUCH better and have more good days, for the most part, than bad. I certainly can understand your abject frustration, however, because it can get a bit old at times! I am noticing that I at least have spates of time when I can introduce a new thing and do relatively well with it, so, that's exciting. I wish you good luck and encourage patience with this thing. It clearly seems to take time.

lisa

jerseyangel Proficient

My stomach is more sensitive now, since I've been gluten-free. For the first 6 months on the diet, things got much better, then other foods began to give me problems.

Once I identified the problem foods, and omitted them, things got better again, but I'm afraid I'll always have a touchy digestive system.

It dosen't take much to set it off--gluten cross contamination, illness, anxiety, other food intolerances, and sometimes it happens for no apparent reason. I have to say, though, that after 2 years--the vast majority of the time, I can track it back to something.

I am being tested next week to see if SIBO might be the cause of my ongoing issues. I think if these problems continue, it's a worthwhile thing to look into.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yenni Enthusiast

What test do they do to find out if it is bacterial overgrowth?

Glad I am not the only one with a sensitive stomach. :blink:

aikiducky Apprentice

My list of foods to avoid is kinda long - gluten, dairy, eggs, legumes, nightshades- but as long as I do avoid those, my stomach doesn't seem to be particularly sensitive to stress or such. I can eat raw veggies as much as I can for example and not have any trouble. I've been dairy free for a long time, gluten free for two and a half years and all the rest free for almost that long. Especially in the first hear my digestive system was much more sensitive.

Pauliina

Ed-G Newbie
I'm sorry, but I have to agree with akJenny. I think out stomachs will always be more sensitive, especially if tummy probs were part of the reason for your diagnosis.

I must be the strange one. I've always had a cast iron stomach. It's the rest of my digestive system that's crap.

Ed in MD

JNBunnie1 Community Regular

Actually, the best thing to take for bacterial overgowth is probiotics, not antibiotics. When you take antibiotics, you kill all the good bugs in your system as well as the bad, and as soon as you stop taking them, the bad ones come back even worse because you've now killed the good bugs that help control them.

I've always been pretty solid with my stomach, I only had GI Celiac symptoms for about six months, before I figured it out. Since then, the only thing that's bothered my stomach has been stress, never food.

DingoGirl Enthusiast
We're probably all different due to other sensitivities, but once I got away from gluten, no problems, an iron stomach!

Sadly, I am the opposite....had an iron stomach all my life, until the three or four years preceding diagnosis (and still, it wasn't that bad and I didn't really care or notice it).....but once I went off gluten, I realized, there was no longer that constant, dull ache that had been with me, that I hadn't quite realized how much it hurt until it was gone.

Having said that......

My stomach is more sensitive now, since I've been gluten-free. For the first 6 months on the diet, things got much better, then other foods began to give me problems.

Once I identified the problem foods, and omitted them, things got better again, but I'm afraid I'll always have a touchy digestive system.

It dosen't take much to set it off--gluten cross contamination, illness, anxiety, other food intolerances, and sometimes it happens for no apparent reason. I have to say, though, that after 2 years--the vast majority of the time, I can track it back to something.

I am being tested next week to see if SIBO might be the cause of my ongoing issues. I think if these problems continue, it's a worthwhile thing to look into.

.....I agree with everything Patti wrote. And, I am ONLY gluten-intolerant, don't have Patti's sensitivities, but, if I consume gluten (or processed food - anything with MSG, which I avoid like the plague), I am in DEEP pain, stuck near the bathroom and with horrible consequences. And stressful situations now affect my stomach and gut, also.....unlike before.

sfm Apprentice
I am staring to wonder if I will ever be able to have a "normal" stomach. If it will always be more sensitive than people with no intolerances.

What is your stomach like after you stopped with gluten (and others stuff if you needed to)? Is it as well working as others or is it always a bit more sensitive and get "off" often?

I think my stomach will always be more sensitive that most people's. I have also been finding that I notice more when things do bother me, than I did when my stomach was such a mess that anything I ate bothered me.

Or maybe others just think their symptoms are just 'normal' for them! (I know I did for a long time :rolleyes: )

I always remind myself that there are worse things that could be wrong with me - this one is something I can live with. My mother, sister and father have all sorts of health issues which are probably related to undiagnosed gluten intolerance. In a way, I'm the lucky one - I'm hoping that I caught on early enough to avoid some of what they are going through.

Sheryll

rsm Newbie

My stomach is much more sensitive, gluten free for 12 weeks, I can now tell a problem food within an hour of eating. Dairy and certain oils are a problem, like cottonseed oil used to fry certain chips, is a real problem. I can now weed out the offenders more easily because they show up right away. Before going gluten free I could eat just about anything because my stomach always hurt anyway. It wasn't until going gluten free I actually found out how much it did hurt, I just got used to it. A simple diet means a happy digestive system. Hopefully in a year or so I can start to add things back in, like real cheese!

grey Explorer

My stomach seems hyper-sensitive; I assume it calms down a little eventually. I was just thinking though about how amazing it is that I never noticed that food bothered me. How could I not have noticed?

rsm & sfm;s post made me think about this some more - I used to think I pretty much had an iron stomach with the exception of crab and avoiding certain foods as migraine triggers.

Now that I'm paying attention, I see that actually my stomach/GI reacts differently to different things and pretty much hurts all the time. Still blows my mind that you (we?) can get used our food beating us up so much!

Kaycee Collaborator
I must be the strange one. I've always had a cast iron stomach. It's the rest of my digestive system that's crap.

Ed in MD

Ed, you are not alone.

I was brought up in a family of cast iron stomachs.

But like you, my stomach is fine, it is after what I have ingested goes further down, that is when I get the problems.

Cathy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.