What Does It Mean?

[Jeff and Lisa]

I regularly browse through here since my almost 6 year old has Celiac and this forum has been quite helpful. Now it's my turn. In November, I had a celiac blood test done. The results showed they had only tested for IgA, Serum and the number was ~470. The upper limit was 300. I had an endoscopy done with 7 biopsies all of which came back negative. I did not eliminate gluten from my diet as I pondered the results and did some research. I went back last week and had the Endomysial IgA, tTG IgA, and IgA, Qn, Serum done again. The EMA and tTG came back negative and the IgA Qn Serum was once again 494 on a scale of 70-400. The doctor said they had switched labs. The doc told me no celiac since the EMA and tTG came back negative and my November biopsy was negative. He said to "cut back" on gluten not "cut out". I don't think a little gluten is a good thing if there is an actual issue. Anyone have any idea what just an elevated Immunoglobulin A, Qn, Serum level might mean?

Thanks

Jeff

[CarlaB]

Jeff, all my blood tests and endoscopy were negative. I cut out gluten anyway to see what my dietary response was. I do much better off gluten and will have a reaction even with a little bit of contamination.

You are having an immune reaction to gluten. I would try the diet and see what happens. Cutting back does no good, unless you don't have an intolerance, then you would probably benefit from cutting back (because I think everyone would, it's just hard to digest).

[Ursa Major]

Jeff, I agree with Carla. Try the diet and see if it makes a difference. You're obviously reacting to gluten, and even with biopsies taken from seven spots the damage could have been missed.