Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reaction To Breastfeeding


Fleur

Recommended Posts

Fleur Newbie

Hi,

I am new here, so I don't know if I'm posting this in the right place. Also I am from the Netherlands where I can't get an answer to my question, so I hope you'll be able to help me.

For as far as I know I do not have gluten intolerance, but I think that maybe my son was born with it. Almost from the moment he was born he was having colics. I tried leaving everything out of my diet (milk, herbs, cabbage etc except bread) but nothing seemed to help. I never once considered that it might be celiac disease because there is hardly any documentation on it (except that breastfeeding helps prevent it). After 4 months I was dead tired and switched to hypo-allergenic formula. From then on he was a very happy baby.

So, my question is: have any of you had babies with colics and did they later turn out to have celiac disease?

Greets from Fleur


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

You CAN pass gliadin in breast milk, I just saw a study about this from the late 1990's. It's something I think I hear doctors saying can't happen, but that isn't the case. I would suggest going on an elimination diet to see if you can narrow down what your baby is reacting to.

Fleur Newbie
You CAN pass gliadin in breast milk, I just saw a study about this from the late 1990's. It's something I think I hear doctors saying can't happen, but that isn't the case. I would suggest going on an elimination diet to see if you can narrow down what your baby is reacting to.

Thanks, unfortunately I stopped breastfeeding about 6 weeks ago. I just wanted to know in case of a new baby. Can you tell me which study or where I can find it?

AndreaB Contributor

You may be able to lactate again if you want to try.

I don't know the link to the study but I know my own child.

He was just over 2 months when he broke out with ezcema. After intolerance testing for me, I went soy free and gluten lite. His eczema got better but didn't clear up. He cleared up when I went totally gluten free.

Colic, I believe, is usually food triggered. It's just a matter of figuring out the food the mother is eating that is bothering the baby.

JennyC Enthusiast

My son spit up until I put him on a gluten free formula at 10 months. I breastfed him for 9 months, but the gas and spitting up would not stop. When I switched to formula it got worse. As soon as I switched to soy formula, which also happened to be gluten free, his symptoms got much better. (Although I was still giving him gluten in cereals and other foods.)

mama2two Enthusiast
Hi,

I am new here, so I don't know if I'm posting this in the right place. Also I am from the Netherlands where I can't get an answer to my question, so I hope you'll be able to help me.

For as far as I know I do not have gluten intolerance, but I think that maybe my son was born with it. Almost from the moment he was born he was having colics. I tried leaving everything out of my diet (milk, herbs, cabbage etc except bread) but nothing seemed to help. I never once considered that it might be celiac disease because there is hardly any documentation on it (except that breastfeeding helps prevent it). After 4 months I was dead tired and switched to hypo-allergenic formula. From then on he was a very happy baby.

So, my question is: have any of you had babies with colics and did they later turn out to have celiac disease?

Greets from Fleur

my daughter cried so much with colic when she was a baby and she was breastfed for 2.5 yrs. once we eliminated dairy, she cried a lot less, but i also had to cut out sweets, pastries, etc. Now we think she may have celiac disease. Looking back at some of the things she reacted to, this makes more sense to me now. If you are hoping to breastfeed, you could relactate and eat gluten-free. How hard it will be depends on how long it's been since you quit. I guess I can't answer your question for sure, but my daughter had awful colic and we now think she may have celiac disease. Her colic improved after removing dairy from my diet, but she has recently been tested for a dairy allergy and it was negative.

sjust Apprentice

I am struggling with the same type of issue. We went to the dr. yesterday and he said it was colic, and claimed that the green mucus poop is unrelated to it. I am not sure why he would assume that but he has. We are in the process of eliminating all gluten from my life so we will see if it gets better. I wish you the best of luck.

Sarah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mama2five Newbie

My 8 yr old showed signs of celiacs just 2 weeks after birth. Unfortunately it took 2.5 yrs to diagnose her with celiacs. She would throw up constantly and was constipated. I was told that she probably had a very strong gag reflex that is why she threw up.

My dh had mentioned that 2 of his sisters had wheat allergies but never called it celiacs. It wasn't until she was 2.5 adn dh noticed how bloated her stomach was and that she was constantly crying about a belly ache that he mentioned his sisters had celiacs.

We started the gluten free diet adn she grew 3 inches adn gained 6 lbs in just 6 mos. He rmoods also changeed drastically.

My ds started having diarrhea about 6 weeks ago now. I suspected celiacs because of the color and the fact it lasted more than a couple of days. My doctor ran some blood and stool tests. Everything came back neg. but my doctor said that the celiacs test isn't accurate in a baby. He suggested putting him adn myself on the gluten free diet awhile we are waiting to see the gastroenterologist.

He has gotten so much better since we have been gluten free.

gfgypsyqueen Enthusiast
My 8 yr old showed signs of celiacs just 2 weeks after birth. Unfortunately it took 2.5 yrs to diagnose her with celiacs. She would throw up constantly and was constipated. I was told that she probably had a very strong gag reflex that is why she threw up.

My dh had mentioned that 2 of his sisters had wheat allergies but never called it celiacs. It wasn't until she was 2.5 adn dh noticed how bloated her stomach was and that she was constantly crying about a belly ache that he mentioned his sisters had celiacs.

We started the gluten free diet adn she grew 3 inches adn gained 6 lbs in just 6 mos. He rmoods also changeed drastically.

My ds started having diarrhea about 6 weeks ago now. I suspected celiacs because of the color and the fact it lasted more than a couple of days. My doctor ran some blood and stool tests. Everything came back neg. but my doctor said that the celiacs test isn't accurate in a baby. He suggested putting him adn myself on the gluten free diet awhile we are waiting to see the gastroenterologist.

He has gotten so much better since we have been gluten free.

Mama2five,

You really want to continue eating gluten until you see the gastro. The tests will not be accurate if you are not consuming gluten.

Fluer,

I know they say nursing prevents food allergies and ear tubes and all kinds of things, but both of my kids were nursed and both had severe colic and both have food allergies and ear tubes. I think some of us just create that kid. The only thing I hear about frequently from mothers with food allergic kids is that they craved/ate an excessive amount of something either while pregnant or nursing and their child is allergic to that item.

So IMO, when pregnant and nursing, eat a wide variety of foods, try to keep the top eight allergens to a minimum, and don't eat excessive amounts of any food. Keep a food diary for what mom eats and how baby reacts both while pregnant and while nursing. (My second had reactions to gluten when I was pregnant and had a gluten-free accident.)

cs789 Rookie

My son was very colic. I still breastfeed and dealt with it. Evenually the colic seemed to subside but he would get diarrea quite often. Much more often then anyone elses baby. I thought he had a milk allergy because when I put him on whole milk at one he started waking up and screaming. So I went to soy. So for the longest time we thought he was lactose intolerant but it turns out he is not lactose intolerant (we still keep milk to a min in his diet though.) He had celiac all this time. So you never know what may be bothering him. Just watch him as he grows. It is great that you are aware of the possibilities because my sons symptoms were never severe I did not push it with the doctor to be tested until they became severe. I have been told by people that the gluten has to be in there system for awhile before you will know and by others who says their kids shows signs of celiac as babies. But I did see something on TV the other day about a study where they came babies with colic probiotic drops everyday it is greatly reduced the colic. Hope that helps

mama2five Newbie

Mama2five,

You really want to continue eating gluten until you see the gastro. The tests will not be accurate if you are not consuming gluten.

I talked to the gastro since my doctor booked the appointment after I put ds and I on the gluten free diet. His nurse sadi to just keep doing what we are doing.

My son's diapers are finally getting back to normal. He is sleeping better and finally putting some weght back on. The appointment isn't for another 3 weeks and there is no way that he could afford to lose any more weight. He ha dropped from the 75% in weight at 6 mos. to 40% at 9 mos. then down to 20% at 11 mos.

I am going to see what the gastro says but there is no way I am putting him back on gluten to challenge him since being gluten free for 2 weeks has shown such a difference.

  • 3 weeks later...
EmmaQ Rookie

My son has dropped below the 10th percentile.

It's so frustrating.

I do know that gluten has to be in the diet to be tested via blood test or biopsy, it's the only way at this time. So, we're eating gluten waiting for the appt. It's a struggle every day b/c I know how to fix it all, but at the same time we need the gold standard dx for several reasons (in the long term mostly).

HTH in some way

kbtoyssni Contributor

I think you can pass on gluten to a baby. My mother had to go casein-free when she was nursing my brother because he was intolerant.

Dianne W. Rookie

I know from my personal experience that YES, a baby can be affected by gluten through breastmilk. I was on an extremely strict elimination diet trying to find out what was bothering my son. When he suddenly started having a reaction after days of being fine, I was easily able to pinpoint the problem as the non-gluten-free Erewhon Crispy Rice cereal I had bought by accident (instead of the gluten-free box). There was no other variation in my diet, meds, or personal care products...and he was not eating any solids at that time. So his reaction was completely in connection with my gluten intake.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.