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Just Curious


red345

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red345 Apprentice

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lovegrov Collaborator

But if gluten isn't the culprit how come all of my symptoms, including the DH I had for more than 20 years, went away when I quit eating gluten? Not that it matters, but I have gotten the flu shot every year (except this year) since I last got the flu 18 years ago. 18 years ago I did not get the flu shot and boy was I sick.

richard

tarnalberry Community Regular

celiac disease was identified long before the flu vaccine was available.

  • 2 weeks later...
llj012564 Newbie

I dont do flu shots :huh:

Guest gillian502

I don't do them either, I never have, although I probably should since I am prone to getting some extremely nasty flus. I'm just kind of nervous to have something injected into my body that I've never had before, for fear of allergic reaction or it making me sick or making one of these diseases of mine act up somehow (celiac disease as well as Colitis, and a problem with tachycardia.) Is that even a realistic fear?

Anyway I've never had one...do the rest of you get them?

Carriefaith Enthusiast

I got flu shots in 2003 and 2004 and I was diagnosed with celiac disease in March 2004.

This flu shot theory is interesting to me. I've had celiac disease-like symptoms for years (probably since I was 13 or 14) but most of them seemed to worsen and I developed more celiac disease symptoms after my first flu shot in 2003. The sickest I have ever been with celiac disease was a few weeks after my first flu shot last year.

Just some questions though, are you theorizing that someones first flu shot in 1999, 2001, or 2003 (or the first one in 10 years) may trigger celiac disease? or make it worse? and why those years?

I'm interested to see the results of your study!

astyanax Rookie

i can definitely say no flu shot "gave" me celiac. never had one, got diagnosed when i was 18.


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red345 Apprentice

In response to the question as to whether or not the flu shot could trigger Celiac Disease, the answer to your question would be, "No." However, flu shots do contain thimerosal, which does contain mercury. Ammonia is there, too.

Depending upon the batch you received, sources outside the US will tell you that there was a higher than normal level of Thimerosal in the years I mentioned. Going on that premise, I was merely in search of something that would explain for the response in Cytokines and an open ended reaction with Nitrogen, as it would relate to Celiac Disease. I am merely looking for some further supportive evidence for my larger theory once I have it wrapped up. Thanks for your responses.

darlindeb25 Collaborator
;) never had a flu shot here either :( sometimes i wish i had, but not yet :) deb

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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