Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How About Probiotics?

The Lovebug

Recommended Posts

The Lovebug Rookie
The Lovebug
Posted

I recently started taking probiotics but by the second day was having the old gas/bloating/cramping/nausea/diarrhea reaction which I used to get when consuming gluten. At first, I thought it was just the probiotics doing a job on my GI system, so I continued taking them for another day or so when it suddenly occurred to me to look at the list of ingredients for the capsules. I couldn't find anything on the label which was included in the list of no-nos on this website, but I stopped taking them anyway. Here are the ingredients: L. acidophilus, B. longum, digestive enzymes, Microcrystalline cellulose, gelatin, palm oil, glycerin, soy lecithin, pectin, magnesium stearate, silicon dioxide. Does anyone see anything in the ingredients which should be causing my trouble?

Thanks.

Sue

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Maybe the soy lecitin? I've heard here that sometimes you feel worse before you feel better when taking probiotics. Maybe you need to try them for longer, or maybe you need to try a different brand to see if it works better.

Nancym Enthusiast
Nancym
Posted

It might be the digestive enzymes. I know someone else posted that their digestive enzymes were grown on wheat, yet the manufacturer didn't include that info on the label.

Guhlia Rising Star
Guhlia
Posted

Probiotics can be very hard on sensitive stomachs. I can't take them. They make me very ill, just like I'd been glutened, even if they're gluten free. I have no other intolerances.

Phyllis28 Apprentice
Phyllis28
Posted

I use Source Naturals Daily Essential Enzyes Digestive Aid. I find them at Wild Oats.

The bottle says "contains no yeast, dairy, egg, gluten, corn, soy or wheat. Contains no sugar, starch, salt, preservative or artificial color flavor or fragrance.

I don't have any problems with it.

hez Enthusiast
hez
Posted

I statted taking probotics about a month ago and feel as if they are the best! However, mine say gluten-free on the bottle. I would try another brand that are gluten-free and see if you feel better. I swear by mine.

Hez

Guest j_mommy
Guest j_mommy
Posted

I would call the manufactorer about it!

But When I started taking them I talked to my boss about it....she did say that I could possibly get D/bloating/gas ect from them as they are "flushing" the bad stuff out of my system! So it makes sense that you would feel yucky at first. But all of this depends on making sure your probiotics are gluten-free!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


The Lovebug Rookie
The Lovebug
Posted
  • Author
I statted taking probotics about a month ago and feel as if they are the best! However, mine say gluten-free on the bottle. I would try another brand that are gluten-free and see if you feel better. I swear by mine.

Hez

Can you tell me the brand of probiotics you are using and where you got them? Thanks.

Sue

hez Enthusiast
hez
Posted

Sue,

I picked up mine at Whole Foods in the refrigerated vitamin area. The ones I picked up are Mega Flora. I was feeling bad before I started on them and I fell so much better when I take them. My gi doc and I have no idea why they are working, we just know that they are. There were a ton of probotics that were gluten-free. Some were more expensive and some cheaper. I hope you feel better.

Hez

The Lovebug Rookie
The Lovebug
Posted
  • Author

Thanks. I'm no longer close to a Whole Foods, so I'm somewhat limited in what I can find. However, I did get online with www.drugstore.com last night and found a probiotic made by Natrol which is called Natrol Free. It claims to be gluten-free as well as free of many other allergens (wheat, dairy, etc.).

Thanks for all your comments and suggestions.

Sue

KAG Rookie
KAG
Posted

I have tried MANY MANY MANY different probiotics. I know that a lot of them are not dairy free and I have a big problem with dairy. Some have worked for me and some did not. I was just reading somewhere that not all types of probiotics will work for everyone. I think that it is definitely worth trying to find one that works for you.

The Lovebug Rookie
The Lovebug
Posted
  • Author

Just thought I would update all of you who offered comments and suggestions. I did email the manufacturer (I ordered them from drlark.com) and received the following response:

This product contains no added sugar (sucrose, fructose, lactose), salt

(sodium chloride), yeast, wheat, gluten or milk. There are also no

preservatives, artificial colors or artificial flavors.

I'm beginning to think it was the soy, and am about to go to another board, where I saw references to soy intolerance.

Thanks again.

Sue

rinne Apprentice
rinne
Posted

It might be the gelatin capsules, we've talked about this on the OMG 1200 pages + thread. Rachel has said that she does better when she opens the capsules and takes the supplement in water instead.

I know when I first got ill I couldn't tolerate anything in capsule form but I am now able to take a probiotic that is in a non GMO vegetarian capsule.

lovegrov Collaborator
lovegrov
Posted

The ingredients look OK although I'd still call the company. The primary lesson in the post is, however, do not just start taking or eating something without at least reading the ingredients. And if you're not sure once you're read the ingredients, call the company.

richard

lovegrov Collaborator
lovegrov
Posted

The ingredients look OK although I'd still call the company. The primary lesson in the post is, however, do not just start taking or eating something without at least reading the ingredients. And if you're not sure once you're read the ingredients, call the company.

richard

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer. Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks...
    2. Scott Adams
      - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Celiac disease is the most likely cause, but here are articles about the other possible causes:
    3. Scott Adams
      0

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

    4. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    5. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result. I am interested to know, is your gastroenterologist concerned? Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748
    Mike Maurillo
    Newest Member
    Mike Maurillo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.