Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bright Red Spots

melmak5

By melmak5
in Coping with Celiac Disease

Recommended Posts

melmak5 Contributor
melmak5
Posted

I have been diagnosed with celiac for just a month now, I do not have DH, but starting yesterday, I have bright red spots on my chest, torso and one on my arm.

They do not itch, they are not painful or raised. At first I thought I had cut myself by accident because they are that bright in color.

I have not been out in the sun. I have not eaten anything new or changed any meds.

Anyone else?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

There are some vitamin deficiencies that can cause skin issues. I know zinc does and I think one of the B vitamins does as well.

jmd3 Contributor
jmd3
Posted

I got these....more so when I was eating gluten. I went to a dermatologist, he diagnosed them as Cherry Angioma. I was told they are hereditary....my mom has them, my two oldest children have a couple.

Open Original Shared Link

Open Original Shared Link

Hope this helps.

melmak5 Contributor
melmak5
Posted
  • Author

jmd3 - THANK YOU BUNCHES!

This totally sounds like what I have. After further investigation, I noticed that they look a lot like a spot on my upper thigh that I have had my entire life.

I am still going to get them checked out to make sure they aren't a vitamin-related thing (thank you too Jestgar) but at least I don't feel like I am walking around with something contagious.

Last week one of my arms and my torso broke out in what was diagnosed as pityriasis rosea. My skin is all jealous that my digestive systems is getting all the attention.

JNBunnie1 Community Regular
JNBunnie1
Posted

Hey! I had that pytiriasis thing too! That was a while ago, I don't think it was gluten-related or anything though. I actually just got DH for the first time, I got glutened after two years gluten-free. Has that happened to anone else, getting DH so many years after diagnosis?

jmd3 Contributor
jmd3
Posted
I got these....more so when I was eating gluten. ..

Just wanted to make this clear....so I didn't confuse anyone.

I didn't get these from eating the gluten...I just noticed I got so many more when I was eating gluten. Some have faded/shrunk a bit, but I have a bunch of them. I even have several on the palms of my hands, and a couple on a finger.

melmak5 Contributor
melmak5
Posted
  • Author

I saw my PC today, she said "they are totally normal. They are from aging or pregnancy."

She INSISTED that they had been there all along, because no one gets these "over night."

I told her that in fact yesterday there were none on my forearms and pointed out 8 of them to her, that are on them today.

She told me not to worry about them. But then the kicker... she said that her other patients who have been diagnosed with celiac have felt better by now (referring to me being gluten-free for a month, post diagnosis.)

I think I was in shock.

The woman has no idea what the symptoms for celiac are, misdiagnosed me for 3 months with acid reflux when I was in the bathroom 3-5x daily with D, AND has no suggestions or advice other than...

"well, don't use lip balm or eat foods with gluten in them"

Her closer: "well I guess its up to the GIs now"

[insert expletives here]

WHY did I waste my time and money?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
I saw my PC today, she said "they are totally normal. They are from aging or pregnancy."

She INSISTED that they had been there all along, because no one gets these "over night."

I told her that in fact yesterday there were none on my forearms and pointed out 8 of them to her, that are on them today.

She told me not to worry about them. But then the kicker... she said that her other patients who have been diagnosed with celiac have felt better by now (referring to me being gluten-free for a month, post diagnosis.)

I think I was in shock.

The woman has no idea what the symptoms for celiac are, misdiagnosed me for 3 months with acid reflux when I was in the bathroom 3-5x daily with D, AND has no suggestions or advice other than...

"well, don't use lip balm or eat foods with gluten in them"

Her closer: "well I guess its up to the GIs now"

[insert expletives here]

WHY did I waste my time and money?

I am posting premature....did not read the whole thread. But, your Dr. doesn't seem to get the celiac thing.

Do what you feel you need to do. A gluten free diet needs no DX from a DR. If it helps you, make a choice. No future testing nor expense is necessary.

(Now, I'll go back and see if my post is relevant.) ;)

melmak5 Contributor
melmak5
Posted
  • Author

Thanks MommaG

I have been diagnosed (I probably need to figure out the signature thing), a month ago today.

I am still having some seriously problems and not really seeing any improvement... and GI Doctor #1 wants to run a bacterial overgrowth test and/or a colonoscopy.

(Last week I broke out in itchy, bumps, this week, bright red dots... plus burping w/regurgitation, abdomen pain/distention/bloating, fatigue, C & D, bleeding from rectum, giant concentration problems.)

Like today, I was so bloated I couldn't sit in my GP's office, I had to stand while she examined me cause it hurts to sit.

GI Doc #1 referred me to "unavailable celiac doc" who referred me to GI Doc #2 who treats celiac patients... I am seeing him Monday.

Why do I want to see a doctor... cause I feel like

A - I am still doing something wrong

B - There is something else wrong with me

C - I love this website, and other online resources, but I can only "focus" for a short amount of time, then I fall asleep or become overwhelmed and upset. Selfishly, I want a condensed owners manual for my new gut.

aikiducky Apprentice
aikiducky
Posted

I think checking for bacterial overgrowth is actually a very good idea. Many newly diagnosed celiacs have it and it can really slow down your recovery.

Pauliina

  • 5 years later...
nico Newbie
nico
Posted

Hi JMD3,

how is going with your angiomas with the gluten-free diet?

Thanks.

kareng Grand Master
kareng
Posted

Hi JMD3,

how is going with your angiomas with the gluten-free diet?

Thanks.

This thread is over 5 years old. Many posters may not still be around and active on the forum.

  • 3 weeks later...
nico Newbie
nico
Posted

This thread is over 5 years old. Many posters may not still be around and active on the forum.

Oh right! :rolleyes:

Ok, thanks.

  • 3 years later...
katesyl Apprentice
katesyl
Posted
On April 9, 2013 at 5:22 PM, nico said:

Oh right! :rolleyes:

Ok, thanks.

I also wanted to know the answer! I have some red spots showing up and they sound like the angiomas. I had showed them to my primary care doctor and she briefly glanced at them. I can't remember what she called it, but I wasn't sure. I am getting more of them. I know I have been glutened unknowingly this summer quite a few times when eating out. (CRYING OUT OF MY OWN STUPIDITY). My GI doctor did a follow up endoscopy and biopsies this summer which only showed gastritis but no doctor has ran vitamin levels on me for a long time. I am going to try to get established with a new primary care doctor soon so they can look at these spots. I would love to know that they are indeed nothing. I'm unsettled by the fact that I don't want them to be something major. I do need my vitamin levels ran and I think we all should get those checked. I know this summer my platelets were slightly elevated so I know the spots aren't from low platelets. I wish there were more doctors who knew a lot more about celiac disease, because I haven't found one yet who was **extremely** knowledgable on the subject. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,541
    • Most Online (within 30 mins)
      7,748
    Sally Garber
    Newest Member
    Sally Garber
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.