Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Recommendations?


grey

Recommended Posts

grey Explorer

Hi,

Just had a dexa scan, and sure enough, I have osteopenia. My doctor has ordered me to take Vitamin D, 400 IU, 1-2x/day, retest in 6 mos.

I hoped someone could recommend a vitamin D. I was on prescription vitamin D for a short while; my blood serum levels were really low. Now, however, she's written OTC and I have to find something.

Also, how do I know whether to take 1 or 2 doses? Does the deep bone pain I'm having connect to the osteopenia?

Any other osteopenia recommendations? I knew this was a distinct possibility w/ celiac, but it's still disconcerting since I'm in my early 30s.

Thanks for reading another question from me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Ursula knows a lot about this, but unfortunately she's on vacation. I know she says that cod liver oil is the best, and I've read elsewhere that, since vitamin D is a fat soluble vitamin, the non-oil based pills aren't very well absorbed.

It's a popular supplement on this forum so I'm sure you'll get more input. Maybe try the search function at the top of the page.

And just as a reference, I was taking 5000U/day. And I just saw a talk wherein the MD described patients with malabsorption taking 500,000 U/day (no, that's not a typo). So you might want to go with 2x/day.

kevsmom Contributor

Hi Grey,

I take Nature Made brand. Rite Aid and CVS Pharmacies carry this brand. It says right on the label that it doesn't contain gluten.

Cindy

Jestgar Rising Star

From an article that just came out.

Sunlight and Artificial Ultraviolet B Radiation

Sensible sun exposure can provide an adequate amount of vitamin D3, which is stored in body fat and released during the winter, when vitamin D3 cannot be produced. Exposure of arms and legs for 5 to 30 minutes (depending on time of day, season, latitude, and skin pigmentation) between the hours of 10 a.m. and 3 p.m. twice a week is often adequate. Exposure to one minimal erythemal dose while wearing only a bathing suit is equivalent to ingestion of approximately 20,000 IU of vitamin D2. The skin has a great capacity to make vitamin D3, even in the elderly, to reduce the risk of fracture. Most tanning beds emit 2 to 6% ultraviolet B radiation and are a recommended source of vitamin D3 when used in moderation. Tanners had robust levels of 25-hydroxyvitamin D (approximately 45 ng per milliliter [112 nmol per liter]) at the end of the winter and higher bone density as compared with nontanners (with levels of approximately 18 ng per milliliter [45 nmol per liter]).For patients with fat malabsorption, exposure to a tanning bed for 30 to 50% of the time recommended for tanning (with sunscreen on the face) is an excellent means of treating and preventing vitamin D deficiency (Table 3). This reduces the risk of skin cancers associated with ultraviolet B radiation.

Vitamin D Intoxication

Vitamin D intoxication is extremely rare but can be caused by inadvertent or intentional ingestion of excessively high doses. Doses of more than 50,000 IU per day raise levels of 25-hydroxyvitamin D to more than 150 ng per milliliter (374 nmol per liter) and are associated with hypercalcemia and hyperphosphatemia. Doses of 10,000 IU of vitamin D3 per day for up to 5 months, however, do not cause toxicity.Patients with chronic granulomatous disorders are more sensitive to serum 25-hydroxyvitamin D levels above 30 ng per milliliter because of macrophage production of 1,25-dihydroxyvitamin D, which causes hypercalciuria and hypercalcemia. In these patients, however, 25-hydroxyvitamin D levels need to be maintained at approximately 20 to 30 ng per milliliter to prevent vitamin D deficiency and secondary hyperparathyroidism (Table 3).

tarnalberry Community Regular

vit D, which should be in the form of D3, not D2, is not sufficient. a study a while ago found that magnesium was the most important thing for treating osteoporosis in celiacs. you might look into that as well, along with weight bearing exercise.

irish daveyboy Community Regular

Hi Grey,

I take Calchichew - D3 Forte from Shires Pharmaceuticals,

they are quoted as Gluten and Lactose Free.

I take 1 Tablet twice a day.

.

David

Nancym Enthusiast

Open Original Shared Link

I take 2000 iu of oil-based D3, Cholecalciferol (Carlson Laboratories), per day. 400iu is probably not nearly enough based on new research. Avoid Ergocalciferol and only get your D3 that is in gel capsules and is oil based and is not combined with anything else, like calcium. You can look up the reasons why at Open Original Shared Link and search for vitamin d.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



grey Explorer

Thanks for all the info everyone. I'll talk to my md about upping the amount. I knew there was a certain of vitamin D I should be taking, but vaguely remembered there were other issues about type, etc.

I also have vague memory (I hate not having recall for reading, dratted celiac!) of reading that you should also avoid certain foods before and after taking it. Has anyone run into this?

thanks!

Nancym Enthusiast

You should take it with fat, it is a fat soluable vitamin. It's also good to take it with calcium and magnesium (not in the same tablet as the D3). You might want to look into vitamin K2. That heartscan doctor blog talks about it as well, but basically it causes your body to deposit calcium into the bones, not the heart!

akceliac Newbie

Hello grey,

Since Nov 2006, I discovered that I am borderline osteoporosis. I had a lot of bone and muscle pain. So the doctor finally ordered a vitamin D test as a last resort. I was Vitamin D deficient. D2=8.3 and D3=14.

At first the doctor said to take 800 IU per day. Then later that day she called me to say that she wanted me to take 16,000 IU of vitamin D2 liquid for 3 weeks. Since it was an OTC product and costs $100 per week I decided that I would not be taking more than one week of it. I researched vitamin D at the Vitamin D Council website and found a wealth of information. I have since been taking 5,000 IU of a powdered form of Vitamin D3 and within 90 days my D2=11 and D3=43.

I was having lots of problems with calcium making me sick until I added the mega doses of Vitamin D. Now I can take the liquid calcium without any side effects and I have noticed that the pain has subsided somewhat.

Even though my Vitamin D3 levels are increasing, it it taking time to heal. I suspect it will be a lengthy process. But at least I'm headed in the right direction.

'Hope you are finding the answers you seek.

elye Community Regular

Direct sunshine onto the skin is the best delivery system for D3, by far. Twenty minutes a day is enough. I now make a point of being out in the sun with as much skin exposed as possible (difficult during Ottawa winters!) for my half-hour shift, each day. Much cheaper, as well, than supplements! :)

darkangel Rookie
Any other osteopenia recommendations? I knew this was a distinct possibility w/ celiac, but it's still disconcerting since I'm in my early 30s.

Osteopenia here, too. Cause thought to be two or three rounds of Prednisone.

Following the diet and doing whatever you can to improve your digestion and/or heal leaky gut will help. Also extremely important: weight bearing exercise. A serious weight training program along with regular walking has my bone density improving. And that's without calcium/D supplementation. Not saying you shouldn't supplement, but just to point out the weight bearing exercise plays a key role.

loraleena Contributor

I have read on Mercola .com that Cod liver oil is the best way to get vit d for all but the summer months if you get a lot of sun. Then you can take regular fish oil. Carlsons, or nordic naturals are best.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.