Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Begining Probiotics


mhansen

Recommended Posts

mhansen Rookie

My dietician recommended I start on probiotics as my intestines are healing. Anyone have good or bad experiences with these? I found some at whole foods that list gluten free.

Thanks

mhansen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I never used them but there are other doctors who recommend exactly the same thing to all people who have just been diagnosed.

richard

Lisa Mentor

I took some for about four days. They did not sit well with me at all and threw them out. I believe the ones that I bought contained dairy. There are some probiotics that are dairy free, but not familiar with which brands.

sfm Apprentice
My dietician recommended I start on probiotics as my intestines are healing. Anyone have good or bad experiences with these? I found some at whole foods that list gluten free.

Thanks

mhansen

If you have a vitamin shoppe near you, they have a gluten free dairy free "Ultimate 10" probiotic (Vitamin Shoppe brand) that my GI was very in favor of. He said it was good that I was getting all 10 strains of beneficial bacteria.

burdee Enthusiast

If you ever took antibiotics, you NEED probiotics. If you abstain from gluten and other foods allergies, but STILL have gas, bloating and/or cramping pains, you NEED probiotics. If you have constipation which is unresolved by dietary fiber, fluids or magnesium supplements, you NEED probiotics. By 'dietary fiber' I don't mean fiber supplements, like 'Fiber Con' or "Metamucil", I mean normal fruits, vegies, whole grains and nuts. If you bruise easily or have other Vitamin K defiency symptoms, you NEED probiotics.

There are effective and ineffective probiotics. Our intestines contain about 500 TRILLION bacteria. If your probiotic doesn't give you at least 100-200 BILLION LIVE organisms per dose, you aren't adding anything to change your bacterial balance. If we don't have enough good bacteria, the bad bacteria can take over or we can develop overgrowths of fungus like Candida Albicans, which is normal in small amounts, but problematic if good bacteria don't keep it in check. Many probiotic products either have limited amounts of good bacteria or they really have 'dead' bacteria. If you must refrigerate the probiotic, the organisms can already be dead when they arrive at the store or they can die en route to your house. If probiotics are not refrigerated or freeze-dried, they probably have dead bacteria. Yogurt products don't supply nearly enough variety or amounts of necessary probiotics. Obviously freeze-dried probiotic supplements are the best.

If you take probiotics and don't notice any reaction, you aren't getting enough live organisms. Effective probiotics SHOULD cause bloating, gas and even some cramping discomfort. If you take a strong dose, the good bacteria will change how your body processes food. So you SHOULD feel some discomfort. Of course, you should check the probiotic product to avoid any food allergens. However, even SAFE probiotics should make you feel uncomfortable at first. When you can take them and not feel discomfort, you probably have enough good bacteria in your gut.

I'm on my third course of high intensity probiotic treatments. I took my first course about a year ago, when the Comprehensive Stool Bacteria and Fungus test (prescribed by my naturopath) showed I had a bad Klebsiella infection. He treated that with Caprylic acid to kill the Klebsi kritters. Then I took 2 weeks of 4 capsule probiotics (freeze dried with 27 billion organisms per capsule) daily to restore my good bacteria, because Caprylic acid killed good bacteria. Afterwards for the first time in my life I had normal stools (soft and regular).

Then I got a bad food born bacterial infection (from eating meat sandwiches left out in the sun too long). When I was retested, I had ZIP good bacteria and an excess of a mild form of E. Coli. So I took priobiotics again. Unfortunately that treatment didn't complete restore my good bacteria level. I should have told my doc that I STILL felt discomfort at the end of that high intensity treatment. However I was so glad to end the discomfort from those probiotics, that I didn't mention that I never felt comfortable, which meant my gut never got enough good bacteria.

8 months later, I retested and my good bacteria were still too low. Now I've almost finished another treatment course of high dose probiotics. Although I felt extreme discomfort when I began those probiotics, I hardly experience any reaction now. This time I took 2 weeks of daily probiotic packets which contained over 170 billion live organisms each (14x170 billion). Within 3 days after beginning that treatment my stools became normal again and I stopped suffering frequent bruises.

I've read probiotics improve gut motility and produce at least half of the vitamin K we need. Before taking the last probiotic treatment, I had a high fiber diet, drank lots of liquids and took a lot of magnesium. That gave me regular, but not soft stools. I also bruised very easily. I no longer suffer those symptoms. I will continue to take daily lower dose probiotic capsules after I finish this high intensity treatment course. If I get hard stools again, I will increase that dosage.

BURDEE

Lizking531 Rookie

Bio-K comes in dairy and non-dairy (soy) variety. The non-dairy is labeled gluten-free. They are the refrigerated small drink type. The non-dairy actually tastes way better. I found these at Wild Oats.

jaten Enthusiast

My GI put me on Flora Q when I was diagnosed with Celiac. It's over-the-counter but most pharmacies keep it behind the counter so you have to ask. Highly recommended.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Karen B. Explorer

I take PB-8 that I get at Whole Foods. I knew about the importance of probiotics before the Celiac diagnosis from back when I was in my 20s and went through 2 years of constant struggle with antibiotics for bladder infections and sinus infections offset by struggles with skin rashes and yeast infections.

My doc of that time laughed at the idea of taking probiotics or eating yogurt. Then a year later, he saw it in an "official" source and told me I might want to consider it. At times like that, I don't think docs give their patients enough credit for impulse control. :-)

Anyone having a problem with recurring bladder infections, I read (may have been People's Pharmacy) that taking extra vitamin C increases the acidity of your urine and discourages bladder infections. Haven't had a problem with recurring infections since then.

jmd3 Contributor
There are effective and ineffective probiotics. Our intestines contain about 500 TRILLION bacteria. If your probiotic doesn't give you at least 100-200 BILLION LIVE organisms per dose, you aren't adding anything to change your bacterial balance. If we don't have enough good bacteria, the bad bacteria can take over or we can develop overgrowths of fungus like Candida Albicans, which is normal in small amounts, but problematic if good bacteria don't keep it in check. Many probiotic products either have limited amounts of good bacteria or they really have 'dead' bacteria. If you must refrigerate the probiotic, the organisms can already be dead when they arrive at the store or they can die en route to your house. If probiotics are not refrigerated or freeze-dried, they probably have dead bacteria. Yogurt products don't supply nearly enough variety or amounts of necessary probiotics. Obviously freeze-dried probiotic supplements are the best.

8 months later, I retested and my good bacteria were still too low. Now I've almost finished another treatment course of high dose probiotics. Although I felt extreme discomfort when I began those probiotics, I hardly experience any reaction now. This time I took 2 weeks of daily probiotic packets which contained over 170 billion live organisms each (14x170 billion). Within 3 days after beginning that treatment my stools became normal again and I stopped suffering frequent bruises.

BURDEE

Which probiotics do you take? The highest probiotic I have seen is 35 billions cfu's.

I am currently taking a probiotic that has about 15 billion cfu - I was taking one in the morning - didn't seem like enough - I have added one in the evening as well. I definately got the rumblings, and gas pains, the good and the evil bacteria fight is now happening...I guess I wasn't taking enough.

What do you think about the enteric coated??

burdee Enthusiast

I just finished a 2 week treatment course of HLC Symbiotic Intensive from Pharmax for people who are especially deficient in good bacteria. This is a freeze dried product which contains 125 billion bacteria per sachet (packet). I mixed each packet with water and took that before my evening meal. I noticed immediate bloating and gas discomfort which decreased during the 2 week treatment course. I notice dramatic improvement in regularity and bruising after a few days of taking that product.

I have also taken the Pharmax HLC high potency probiotic capsules which contain 8 billion highly viable good bacteria per capsule. Those are also freeze dried but refrigerated at my naturopath's office. I took 2-3 of those capsules daily after taking the intensive treatment.

BURDEE

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,600
    • Most Online (within 30 mins)
      7,748

    rita jean
    Newest Member
    rita jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.