Stomach Pain & Nausea

[horsegirl]

I've now been back on gluten for about 6 weeks, while undergoing blood tests, Enterolab tests,

& an EGD/biopsy (next week). As I continue to eat gluten, not only are my fibromyalgia symptoms getting worse (muscle/joint pain, fatigue, weakness), as well as the obvious intestinal distress (gas,

D, bloating, etc), but I've had several episodes of nausea, sharp stomach pains (not intestinal), lack of

appetite yet feeling like I'm starving, & dizziness.

Has anyone else had these? I thought it would be contained in the lower GI/intestinal area.

Any help is appreciated! Thanks!

P.S. I really hate gluten right now & can't wait to go off it again, permanently!

[Guest kivmom3]

Did the doctor make you go back on gluten items for blood tests and endoscopy? YIKES! I haven't had an endoscopy to confirm yet, if i have to gluten myself for it, i may tell the doctor, no thanks check me now while i've been gluten-free for 6 weeks and feeling slowly better.

Anyway, I get major muscle/joint pain, depression, cranky, nausea, and lack of appetite as well. There are times I feel so hungry yet can't eat since i'm too nauseated! Sometimes my symptoms last a few days or a few hours depending on how much I glutened myself I'm thinking. Of course need not to mention the major GI distress i have, just awful.

I hope you feel better soon and get those tests done ASAP so you can start feeling better!!!!

Gg

[L.A.]

I've now been back on gluten for about 6 weeks, while undergoing blood tests, Enterolab tests,

& an EGD/biopsy (next week). As I continue to eat gluten, not only are my fibromyalgia symptoms getting worse (muscle/joint pain, fatigue, weakness), as well as the obvious intestinal distress (gas,

D, bloating, etc), but I've had several episodes of nausea, sharp stomach pains (not intestinal), lack of

appetite yet feeling like I'm starving, & dizziness.

Has anyone else had these? I thought it would be contained in the lower GI/intestinal area.

Any help is appreciated! Thanks!

P.S. I really hate gluten right now & can't wait to go off it again, permanently!

When you go back to gluten free you should feel a lot better but it may take a while for your system to recover. I noticed the name "horsegirl"...do you have horses? I spend a lot of time at the barn and have to be careful around the feed etc for the horses to avoid being glutened there--just a thought. Hope you're better soon. L.A.

[horsegirl]

No horses at this time, but I love them! I hope to eventually live someplace where we can have some;

in the meantime I have to enjoy them when others' have them! (I recently fell in love with a 2 month old Friesian filly; she was like a lapdog she was so sweet! But, that doesn't work in a subdivision!)

Thanks for the info about needing to be careful around horse feed though; is that because of CC from oats etc being on the hands & then potentially making its way into your mouth?

Have a great day!

-M

[horsegirl]

Yes, the doctor suggested I go on a gluten "trial" while being tested for celiac. I had been off gluten for about 5 months, because I'd learned people with fibromyalgia & arthritis respond well with elimination diets, so I stumbled upon "gluten free" living by accident. After I did more research, I learned about celiac, which I'd never heard of before. I decided I had enough symptoms to warrant being tested, so saw my primary doc. The blood tests through Prometheus were all negative (including the gene tests), but not surprisingly since I'd only been back on gluten for 3 weeks then, so the antibodies would have been negative. I'm waiting on test results from Enterolab, since you can be gluten free for up to a year & still test positive for gluten intolerance. I'll be glad to get the biopsy & be done with gluten. I'll keep everyone posted as I learn more. Good luck with your testing too!

-M

[L.A.]

No horses at this time, but I love them! I hope to eventually live someplace where we can have some;

in the meantime I have to enjoy them when others' have them! (I recently fell in love with a 2 month old Friesian filly; she was like a lapdog she was so sweet! But, that doesn't work in a subdivision!)

Thanks for the info about needing to be careful around horse feed though; is that because of CC from oats etc being on the hands & then potentially making its way into your mouth?

Have a great day!

-M

Yes. I usually wear leather gloves at the barn mainly because I would never stick a gloved-finger in my mouth. Then I can remove my gloves and wash my hands before I eat anything. I live in a subdivision too and keep the bad ponies at a stable close by. Take care.

[SUZ42]

Terrible stomach pains/cramps and incredible nausea were my most distressing physical symptoms. I would also litterally have to eat every 2 hours because of the intense hunger. Yet I lost weight. I had to tell the doc it is the actual stomach, not my intestines. When I would say stomach, the docs would automatically think I was talking about abdomen. I am glad to report that I am no longer having the stomach pain/nausea. And I am also no longer starving to death. If that, alone, was all that was "fixed" by my going gluten free it would be enough to keep me on this diet for life. Anyway, it has been 4 1/2 months gluten-free and when people ask how I am, I honestly answer them Great! I can't wait to have bloodwork drawn again to see how my thyroid and iron def anemia are doing.