Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm So Glad I Got Scoped Again

melrobsings

Recommended Posts

melrobsings Contributor
melrobsings
Posted
  • Author
Stop Intestinal Bleeding Diet

Eliminate:

Alcohol, caffeine, decaffeinated coffee, carbonated drinks.

Cheese, cream sauces, milk products.

Sour, vinegary, acidic foods and condiments.

Tomatoes, tomato-based foods.

Citrus fruits or juices, pineapple, grapes, cherries, raspberries.

Cabbage family vegetables, beans, lentils, raw vegetables, coconut, roughage/high fiber foods, leafy green vegetables, hot/spicy foods, deep-fried foods, red meat, nuts and seeds.

Margarine or butter substitutes, artificial sweetners, carrageenan.

Yeast, sugar if necessary.

Garlic, ginger, cumin, chilies, pepper, paprika, tumeric.

Processed foods; preservatives, MSG, nitrates, etc.

OMG THAT'S MY ENTIRE DIET!!!!!!!! ARUGH!!!!! I'm just going to keep my food journal and take it to Dr. Green...any one know if he takes Cigna?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darkangel Rookie
darkangel
Posted
OMG THAT'S MY ENTIRE DIET!!!!!!!! ARUGH!!!!! I'm just going to keep my food journal and take it to Dr. Green...any one know if he takes Cigna?

You don't have to eliminate these items permanently. The idea is to eliminate them and use a very careful diet until you stop bleeding. Then she has other levels that are less restrictive for lesser symptoms like bloating and gas.

melrobsings Contributor
melrobsings
Posted
  • Author

I got an appt with Dr. Lewis, she worked with Dr. Green...THE DR. GREEN!!! It's not till the end of Sept but still!!! :) HOPEFULLY I can get answers!!!

ravenwoodglass Mentor
ravenwoodglass
Posted
I got an appt with Dr. Lewis, she worked with Dr. Green...THE DR. GREEN!!! It's not till the end of Sept but still!!! :) HOPEFULLY I can get answers!!!

That is such good news. If you can get there on a moments notice ask if you can be on their cancellation list, sometimes you can get in quicker. I have wondered how you were doing, I hope they can help you get some answers.

Looking for answers Contributor
Looking for answers
Posted

I have an appointment to see a specialist next week to help me out with my diet. I felt terrific for a long time but recently started get C again. Anyways, maybe you should consider a rotation diet (without gluten, of course) and see if you feel better. Check out what I've read on his site. Open Original Shared Link

Mind you I haven't seen him yet and do know if he'll recommend it to me, but it makes sense. I also read about the rotation diet in the book Dangerous Grains.

I hope you feel better soon!

sickchick Community Regular
sickchick
Posted

Good luck with your Dr appt and your healing journey Mel...

sickchick

Judyin Philly Enthusiast
Judyin Philly
Posted

GOOD LUCK HONEY

I'M FOLLOWING YOU BUT NOT POSTING.

THINK YOU AND I WERE DOING THE SCOPES AT THE SAME TIME.

JUDY

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


evie Rookie
evie
Posted
I can eat rice but I don't eat it very often. i'm not a health freak by choice really lol just cause it's easy (and might i briefly step on my soap box: you damn americans who eat fast food cause it's "easy and you don't have time" GROW UP and stop complaining your fat! it takes the same time to make a salad that it does to get in your car and drive to mcdonalds! it's all about taking responsibility...thank you for listening).

I have to confess I'm a MAJOR candy girl! (might I back that up with I'm a dancer and am very active, I eat them cause I can! Clearly I'm one of those "if the pants fit great, if they get tight, cut out something!" I'm 5 foot 2 and 110 pounds) I have cut down cause I just haven't felt like eating it since I'm bloating LOTS....but I have a huge mikasa bowl on my coffee table and the rule is "it always has to be full". All my friends are GREAT and funny cause they say "Mel can only eat candy, so instead of going out to dinner we go to her coffee table and can eat together!" and they bring candy every time they come over! Right now it's full of tootsie rolls, normally it's full of snickers and full size hershey bars.

I love coffee cause of the taste.

Do you mind posting a snickers like recipe?! i LOVE to bake! The whole foods bread is the only one that doesn't feel like brick to me! I CAN'T GET ENOUGH! not to mention they are great in the toaster oven! I'm cutting down on the coke cause I don't want to gain weight and it is easy to replace that with tea.

I'm with you on the grains, I don't think we are supposed to have them...

Guys I'm SO EXCITED to call Dr. Green!!! I'm hoping I can get in fast (and he takes my insurance...minor detail! lol) and praying that I don't have to cut out dairy. I FEAR that is the issue...well part of the issue...I'm starting a food/poo journal today and hopefully it will tell me something.

Again I can't thank you all enough for everything!!!

evie Rookie
evie
Posted
I can eat rice but I don't eat it very often. i'm not a health freak by choice really lol just cause it's easy (and might i briefly step on my soap box: you damn americans who eat fast food cause it's "easy and you don't have time" GROW UP and stop complaining your fat! it takes the same time to make a salad that it does to get in your car and drive to mcdonalds! it's all about taking responsibility...thank you for listening).

I have to confess I'm a MAJOR candy girl! (might I back that up with I'm a dancer and am very active, I eat them cause I can! Clearly I'm one of those "if the pants fit great, if they get tight, cut out something!" I'm 5 foot 2 and 110 pounds) I have cut down cause I just haven't felt like eating it since I'm bloating LOTS....but I have a huge mikasa bowl on my coffee table and the rule is "it always has to be full". All my friends are GREAT and funny cause they say "Mel can only eat candy, so instead of going out to dinner we go to her coffee table and can eat together!" and they bring candy every time they come over! Right now it's full of tootsie rolls, normally it's full of snickers and full size hershey bars.

I love coffee cause of the taste.

Do you mind posting a snickers like recipe?! i LOVE to bake! The whole foods bread is the only one that doesn't feel like brick to me! I CAN'T GET ENOUGH! not to mention they are great in the toaster oven! I'm cutting down on the coke cause I don't want to gain weight and it is easy to replace that with tea.

I'm with you on the grains, I don't think we are supposed to have them...

Guys I'm SO EXCITED to call Dr. Green!!! I'm hoping I can get in fast (and he takes my insurance...minor detail! lol) and praying that I don't have to cut out dairy. I FEAR that is the issue...well part of the issue...I'm starting a food/poo journal today and hopefully it will tell me something.

Again I can't thank you all enough for everything!!!

I am wondering if you might have ulcerative colitis causing the bleeding...several months ago I had a colon infection that caused me to have the colitis..at that time the bleeding was severe but now only have it ocasionally..but have not been able to pinpoint the cause. I am celiac for one and one half years and have that pretty well under control but just do not

know what causes the occasional light bleeding. Hope you find good answers soon..evie

I have read so much about this Dr. Green and what a good diagnostician he is..so good luck to you!!

Steveofmt Newbie
Steveofmt
Posted

If you are in the NYC area, you should get an appointment with Dr. Peter Green at Columbia Medical Center. I'm told he is one of the country's foremost experts on Celiac disease.

So as most of yall know I just had another scope because (mind you this has been going on and off since CHRISTMAS and I have been to 2 doctors and looking for my 3rd doctor) I have had bleeding and I am pooing poos 1/2 my weight about 5 times a day. To me, that means SOMETHING IS WRONG. Well this last a-hole scoped me a week ago scoped me because he thought it was a hemeriod and cotterized it. Fine. dandy.

Then after I woke up he brought me into his office and told me in short that I was a hypochondriac and there is no way i have any kind of gluten allergy.

This pissed me off to no end....but here is the kicker.

I'M STILL BLEEDING!!!! WTF?!??!? anyone got ideas? I'm terrified it's Chrones.

So I'm once again looking for a NEW doctor that LISTENS, is smart, and educated in celiac disease...oh and one that my insurance takes. People PLEASE list any and all doctors that you know of in NYC or Astoria area that take insurance. I know some of yall have told me about them but they are to far from me and don't take my insurance. Thanks so so so much.

babygirl1234 Rookie
babygirl1234
Posted

i need another scoop done dont ask me why she did say she wants to get the plopy gone and to make sure it didnt grow since the last one, but other then that i dont know why shes going in for a 2nd time, its the upper scoop this time

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.