Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cankersores?


Joni63

Recommended Posts

Joni63 Collaborator

I just went gluten free August 1st.

About a week ago I had a cankersore show up right inside my bottom lip, but lower. That started to heal and now I have one on the side of my tongue. I've only had them very rarely in the past, but never on the tongue! It's under the right side and hurts like $#&*!

My tongue also feels kind of numb on the tip and sides. And my face is breaking out in pimples.

Are these normal reactions to going gluten free? Or could it be something else? What?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

Perhaps you got 'glutened'. Canker sores were a huge symptom of mine pre-diagnosis. I had them constantly for my whole life - hardly without one. I've not had one since.

Joni63 Collaborator
Perhaps you got 'glutened'. Canker sores were a huge symptom of mine pre-diagnosis. I had them constantly for my whole life - hardly without one. I've not had one since.

I'm wondering about that now that you mentioned it lorka150. I never had the D, but always C and I have also had a bit of that. I also had a wierd vision problem for 3 to 4 days. It is possible I got glutened at several different places. I'll have to retrace my tracks. I did eat out at Red Lobster and had shrimp, scallops and lobster with no sauces except the drawn butter, plain baked potato and steamed broccoli, BUT the salad had Balsmic Vinegrette Dressing and I recently read a thread about that being questionable. I didn't ask to look at the ingredients.

I also had baked potato and Chili from Wendy's a while back.

I don't think I'm going to get obvious symptoms like some do. This is scary. I was wondering why this all seemed so easy. Guess it's time to start a food diary.

Is there information about how to start the Celiac diet some place. I've been eating the same variety of foods I always have and just replaced my crackers, bread, pretzels, dressings, etc. with gluten free stuff. Should I limit my diet right now?

blueeyedmanda Community Regular

Mouth Sores and Facial break-outs were also big signs of my pre-celiac days. I would eat these veggie chips (which contained wheat) When I was done eating them I would have these sores almost immediately in the back of my mouth, for quite some time I blamed it on my wisdom teeth coming in.

Once I went gluten free I noticed no more mouth sores and my face cleared up. Now the only time it breaks out a bit is during "my time" and that comes with the territory.

SpikeMoore Apprentice

I'm finding hidden gluten sources in lots of restaurant foods. And in processed foods, it's those sneaky things like malt that I haven't always noticed. Also when it says "may contain traces of wheat", that doesn't mean there is no gluten from other sources such as barley malt or rye.

I have heard a lot of people describing canker sores and I know my brother always gets them (has since childhood) and I was wondering if there is anything else that could cause them or if it is usually gluten related.

mandasmom Rookie
I'm finding hidden gluten sources in lots of restaurant foods. And in processed foods, it's those sneaky things like malt that I haven't always noticed. Also when it says "may contain traces of wheat", that doesn't mean there is no gluten from other sources such as barley malt or rye.

I have heard a lot of people describing canker sores and I know my brother always gets them (has since childhood) and I was wondering if there is anything else that could cause them or if it is usually gluten related.

I had almost constant Canker sores pre-diagnosis...even now when I get glutened that is my tell tale sign...Ive never had a single GI symptom.

skyepie Newbie

I used to get canker sores a lot too in my gluten-eating days. They've gone away considerably since going gluten-free. However, I tend to get them when I consume foods that are acidic! Right now our garden is kicking out tons of tomatoes, and I've been eating several each day and have a mouthful of sores. Happens too when I drink a lot of OJ.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Virgie Apprentice

Hi! I have a terrible mouth full of sores at the moment so maybe gluten could be an issue for me too. I'm sure the doctor will probably want to test the rest of the family at my daughters appt. next week.

However, just wanted to let you know that mouth sores is also quite common with people having Crohns Disease or Ulcerative Colitis.

Best to you. :)

Virgie

Joni63 Collaborator

I'll have to check into those 2 things. I just had a colonoscopy, would Crohn's and Ulcer Colitis show up on that?

I don't really have any other symptoms and never really had a lot of cankersores before going gluten free. I'm leaning toward a glutening or two. I have tried really hard to be safe, but I have also tried a lot of different foods in a short period of time. Probably bad when starting this type of diet.

I'm also off in my head and vision and have been for several days. It could be due to my cycle or that I ate out twice, on Thursday and Friday of last week and perhaps had CC. The symptoms did start around that time, but I can't remember exactly when.

I'm starting a food diary and trying to go back to the basics and add only 1 or two new items a week. I also know that nitrites bother me and I tried some spam lite and some Black Bear ham in the past week. I never have had a problem when I eat turkey lunchmeat, but hams have been a problem for quite some time.

Thanks for all the help and advice everyone! :)

This board is such a blessing!

Aligray Apprentice

I have always had sores in my mouth also. Now that i have been gluten free for 8 mos i use it as a sign that i have been glutened. Within minutes i will have sores in my tongue and mouth.

Good luck to u!

Yellow Rose Explorer

I read another post several weeks ago about Sodium Lauryl Sulfate being an ingredient in toothpaste that celiac people are sensitive to and has caused mouth sores. Have you changed your toothpaste recently?

Yellow Rose

Joni63 Collaborator
I read another post several weeks ago about Sodium Lauryl Sulfate being an ingredient in toothpaste that celiac people are sensitive to and has caused mouth sores. Have you changed your toothpaste recently?

Yellow Rose

I change different types of Crest's all the time. Unfortunately the box is gone, but it was Whitening with Tarter Control Mint.

Is Tom's of Maine safe? I used to use it, not too tasty but all natural.

  • 3 weeks later...
tumtumsmom Newbie

I found this post while surfing through the site... We are in the pre-diagnosis stage for my family. Anyway, my 16 yr old son has had terrible canker sores for most of his life. I read about allergies to SLS in the toothpaste and started purchasing "Squigle toothpaste" online. Ever since then he's only had two canker sores. It's really worth the effort to get it for yourself. Still waiting on his bloodtest for celiac's. No symptoms for him except canker sores and joint pain. Other son had positive blood test and biopsy tomorrow.

Check out dentist.net for the toothpaste.

Joni63 Collaborator
I found this post while surfing through the site... We are in the pre-diagnosis stage for my family. Anyway, my 16 yr old son has had terrible canker sores for most of his life. I read about allergies to SLS in the toothpaste and started purchasing "Squigle toothpaste" online. Ever since then he's only had two canker sores. It's really worth the effort to get it for yourself. Still waiting on his bloodtest for celiac's. No symptoms for him except canker sores and joint pain. Other son had positive blood test and biopsy tomorrow.

Check out dentist.net for the toothpaste.

What is SLS?

sfm Apprentice
I'll have to check into those 2 things. I just had a colonoscopy, would Crohn's and Ulcer Colitis show up on that?

I don't really have any other symptoms and never really had a lot of cankersores before going gluten free. I'm leaning toward a glutening or two. I have tried really hard to be safe, but I have also tried a lot of different foods in a short period of time. Probably bad when starting this type of diet.

I'm also off in my head and vision and have been for several days. It could be due to my cycle or that I ate out twice, on Thursday and Friday of last week and perhaps had CC. The symptoms did start around that time, but I can't remember exactly when.

I'm starting a food diary and trying to go back to the basics and add only 1 or two new items a week. I also know that nitrites bother me and I tried some spam lite and some Black Bear ham in the past week. I never have had a problem when I eat turkey lunchmeat, but hams have been a problem for quite some time.

Thanks for all the help and advice everyone! :)

This board is such a blessing!

I just wanted to mention that Hormel is now making additive-free lunch meats - and bacon, too!. I don't have a problem myself with nitrites, but my 8 year old son gets migraines when he eats lunchmeat with them, so we have switched. I like Applegate Farms brand, but it isn't available in the local grocery store - the Hormel is.

Sheryll

Cruiser Bob Newbie

Canker sores in mouth - - rinse mouth with Aloe Vera juice = sores gone in 24 hours.

At least that's how I've dealt with mouth sores for the past 10+- years. I'll have to start paying more attention to when they pop out - which is rarely any more. Bob

mamabear Explorer

Mouth ulcers from a pinpoint blister that pokes out until it pops,,,to superficial ulcers on my gums, tongue feels scalded....yep, that's my first or close second signs I've been glutened.

A combo of liquid benadryl/liquid maalox/and Rx viscous lidocaine (swish and spit out) also helps.

Oh yes! Staying on high dose vitamin B complex and Vit C is the best preventative besides the gluten-free diet! :D

cyberprof Enthusiast
Mouth ulcers from a pinpoint blister that pokes out until it pops,,,to superficial ulcers on my gums, tongue feels scalded....yep, that's my first or close second signs I've been glutened.

A combo of liquid benadryl/liquid maalox/and Rx viscous lidocaine (swish and spit out) also helps.

Oh yes! Staying on high dose vitamin B complex and Vit C is the best preventative besides the gluten-free diet! :D

My DS has not yet been diagnosed (age 14, going to GI next week) had a bakery sample and got a canker sore before he left the store! Really quick reaction! I think that is what made him realize that I wasn't just "over-reacting"!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.