Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suggestions For Sleep Troubles


blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular

I know in quite a few threads we have, that there are quite a few of us who have sleep changes since going gluten free. I actually have been gluten free for quite a few years now, but I noticed I was having trouble getting to sleep in the spring of this year. It seems like I can feel tired but the minute I go into the room I am wide awake. I have been taking Tylenol Pm, it says non-habit forming. Last night after taking the pills and still struggling I went to the couch to fall asleep. I am hoping that someone has some ideas or things they do that help them get to bed at night. I can go to bed fine on the weekends. My worry is I work full-time dayshift, so staying up late is not an option, currently I try going to bed at 11...but sometimes don't fall asleep until 1. We wake up at 6:30.

Ideas anyone? Things which work for you?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Insomnia is a problem I have from the Lyme Disease, yet I need sleep to get better! :blink:

My doctor recommended Valerian, Melatonin, and 5-HTP. I took all three. :rolleyes: The valerian is very relaxing! Kind of like Valium. Those didn't help me.

So, I got some Rozerum (prescription sleeping pills). They did less than the herbs.

Now I take Ambien, and I LOVE it.

I would recommend trying some combo of those herbs to see if they work for you. Herbs don't work the first night, they have to build up in your system and "reset" it.

dlp252 Apprentice

I am in much the same situation as Carla...I have lyme and can't sleep, but need the sleep for my health.

My doctor currently has me taking several herbs/supplements: 5-HTP, Melatonin, something called Lymphasol (to help detox the liver) and he just added something called morinda. I take all of these in quantity (with my doctor's approval), lol. I can't say that they are helping more than just a little though. They seemed to work for a while, but have recently stopped, which is why he just added the morinda.

blueeyedmanda Community Regular

Thanks Carla. I am going to look into that.

blueeyedmanda Community Regular
I am in much the same situation as Carla...I have lyme and can't sleep, but need the sleep for my health.

My doctor currently has me taking several herbs/supplements: 5-HTP, Melatonin, something called Lymphasol (to help detox the liver) and he just added something called morinda. I take all of these in quantity (with my doctor's approval), lol. I can't say that they are helping more than just a little though. They seemed to work for a while, but have recently stopped, which is why he just added the morinda.

I am reluctant to blame the summer weather or daylight savings time since this was when my problems started. I think it messed with my bodys schedule :) LOL

~alex~ Explorer

My suggestions are all very simple but they have helped me a bit. First I do the whole bedtime routine (brush teeth, wash face, meds, etc.) at least an hour before I plan on going to bed. I find all that stuff kind of wakes me up a bit so I avoid doing them right before bed. I usually also steam my face before bed (just with boiled water in a bowl)

Jestgar Rising Star

I second everyone else's opinions. I found that books on C.D. read by a male with a soft voice puts me to sleep. The Harry Potter books are great because the guys voice is very pleasant and I know the story so I'm not awake waiting for the big ending.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

Thanks Everyone!!!

I thought last night would be a great night to sleep, it poured all night and the rain usually relaxes me as well....nope!

Jestgar Rising Star

Manda, I've also found that if I eat anything other than fish and vegetables for dinner I have trouble sleeping. I can eat a variety for lunch, but after about 3pm I'm pretty careful.

confused Community Regular
I know in quite a few threads we have, that there are quite a few of us who have sleep changes since going gluten free. I actually have been gluten free for quite a few years now, but I noticed I was having trouble getting to sleep in the spring of this year. It seems like I can feel tired but the minute I go into the room I am wide awake. I have been taking Tylenol Pm, it says non-habit forming. Last night after taking the pills and still struggling I went to the couch to fall asleep. I am hoping that someone has some ideas or things they do that help them get to bed at night. I can go to bed fine on the weekends. My worry is I work full-time dayshift, so staying up late is not an option, currently I try going to bed at 11...but sometimes don't fall asleep until 1. We wake up at 6:30.

Ideas anyone? Things which work for you?

Do you think your trouble in sleeping is cause the wedding and all the plans you are making, I know when i was planning my wedding i had problems sleeping.

If you drink caffeine, dont drink any after 2 pm or have any kind of caffeine. Can you play relaxing music before you go to bed to relax you? Do you exercise in the morning, if so that helps get you going in the day but tires you out when it is time to go to sleep.

I dont take any kind of pills so im no help when it comes on what to take.

When all else fails have sex before bed, that is a good sleeping pill lol

paula

dlp252 Apprentice
I am reluctant to blame the summer weather or daylight savings time since this was when my problems started. I think it messed with my bodys schedule :) LOL

I wouldn't doubt it, lol...anything seems to mess with my schedule. :lol:

Another thing that helps a bit is to turn off the TV at least 15 minutes before I go to bed. I've read that the TV and computer are horrible for people with sleep problems, so I turn off the TV then read for a little bit, then right to bed. I've also heard that keeping the room dimmer helps. I pretty much always have dim lighting, lol.

I keep a regular sleep/wake cycle even on weekends which is another thing that I've heard is supposed to help, but it doesn't much for me. (Although when I discussed this with my doctor on Tuesday, he wants me to lay in bed on weekends anyway, lol).

Eating turkey in the evening helps slightly it seems...turkey has the stuff in the 5-HTP that makes us sleepy after Thanksgiving dinner. :P

blueeyedmanda Community Regular

Not sure if the wedding has anything to do with it. We just start doing the hard core planning the last month or so.

I am on the computer before bed so I will have to get away from that. I am not a big TV watcher though. When I go into my room, there is no TV on. It is dark, I don't let any light in. I am funny like that.

I might start listening to a lullabye celiac disease that I used to play for my kids in daycare, it was Kenny Loggins, Return to Pooh corner. I know I am a little old for that music but it was such nice music. I bought a copy for my niece when she was born.

Mango04 Enthusiast

Aromatherapy works for me. Pure lavendar oil is a good option.

Make sure you're hydrated. Dehydration always gives me insomnia. Might relate to the summer heat in your case.

Unplug most things in your room if possible. Electromagnetic fields can interfere with sleep.

That's all I can think of, besides getting excercise and making sure you're not eating sugar or caffine too late in the day :)

ElenaDragon Explorer

I think getting into a steady habit is important. Try to get to bed around the same time every night, go through a little bed time routine to get your mind used to going to sleep afterwards. Personally, watching TV in bed actually helps me fall asleep because I'm used to doing it (I wouldn't recommend it if you're not used to it though). If I watch TV in bed and I'm tired, I can have a hard time staying awake even if it's something I want to watch. The point is that whatever you do before bed, try to do the same thing every night and it will become a habit associated with bed and sleep.

Oh, and I also get up at the same time every day (even on weekends). For me it is to help prevent migraines, but it also helps establish a regular sleeping schedule. If I deviate from it (for example, staying up later or sleeping in later), I end up feeling over-tired or just "off" the next day.

mftnchn Explorer

Some good ideas here.

I suddenly started having insomnia several years ago. Doctor checked cortisol levels and I took that for awhile but it made it worse. Trazadone didn't work either. Neither did melatonin. I think I tried a couple other things too but can't remember.

L-tryptophan has helped (amino acid like is in turkey), take at bedtime with a spoonful of pure carb to help it absorb.

Ambien works really well for me, I just try to not take it every night because of dependency.

Sounds like your trouble is going to sleep not staying asleep??? Mine is mostly the latter. Have you tried herbal teas like sleepytime or whatever?

Eventually the only thing that helped me was HRT, and my insomnia still follows my cycle to some degree.

Another thing I do is use a thick eye mask. I have discovered that often the merest peep of light will wake me up.

I used to use heavy doses of asperin to sleep at night due to the pain from lyme. Now I avoid that, and take ambien to help me sleep through the pain. Fortunately that is not common now.

There is some really good research out there on sleep, and going to sleep and staying asleep are quite different.

missy'smom Collaborator
I
blueeyedmanda Community Regular

Here's postitive news.

Last night I fell asleep on my own at 11:15, and slept the entire night through. I was off from work today though, but still this is a nice change.

JNBunnie1 Community Regular

I have a few suggestions. The things that helped me the most were to use the melatonin, but the key is to take it 1/2 hour before bed, and turn the lights down, so your body thinks it's bedtime. I also use a heating pad set to a two hour turn-off, because I have upper back pain, and the heat puts me to sleep easily as long as the room itself is cool enough. I know it sounds personal, but the sex suggestion made earlier really works too, and when I'm feeling just a little anxious, but not too much, I drink something with chamomile in it before bed. It helps just to calm your brain so you CAN sleep, it doesn't actually put you to sleep though. It kind of just slows down your thoughts a bit, you know?

dlp252 Apprentice
Here's postitive news.

Last night I fell asleep on my own at 11:15, and slept the entire night through. I was off from work today though, but still this is a nice change.

Yay, congratulations!

blueeyedmanda Community Regular

My family was coming today I so I really cleaned up the house last night, maybe I tired myself out. I am hoping the dreary weather outside will make me continue to be sleepy tonight.

blueeyedmanda Community Regular

So I noticed if I go in the room to bed...I may fall asleep and awake an hour later or in last nights case almost 2 hours later. I feel like I have not slept at all....and my mind does not register that I slept either. So then I have a hard time falling asleep. This only happens in the 11-1 hours. After that I sleep through the night. I actually made an appointment to see my doctor because I have another concern as well.

confused Community Regular
So I noticed if I go in the room to bed...I may fall asleep and awake an hour later or in last nights case almost 2 hours later. I feel like I have not slept at all....and my mind does not register that I slept either. So then I have a hard time falling asleep. This only happens in the 11-1 hours. After that I sleep through the night. I actually made an appointment to see my doctor because I have another concern as well.

I hope the doctor has some answers for you. I have actually not been sleeping the last week or so, but im hoping it is just from remolidiling and and at least 1 or 2 kids sleeping with us every night cause there bedrooms are not set up yet.

What happens with me tho, i will fall sound asleep then wake up 1 or 2 hours later and think its already morning then i cant get back to sleep.

Let us know what the dr says. I hope your other concern is nothing major either. Well be thinking of you. Whne do you go?

paula

ElenaDragon Explorer

If you wake up and are too awake to go back to sleep, you could try getting up and having some hot tea (herbal of course) or warm milk or something to relax your body again. Maybe listen to a little calming music, like piano... anything to get your mind to stop focusing on getting back to sleep. I find the more I try to go to sleep if I'm restless, the harder it is! :)

dlp252 Apprentice

Kind of the same thing, only I sleep good from 9-12 or 1 am, then I wake up every hour, and when I wake up at 3:00 don't go back to sleep because I have to get up at 4:20.

One of my doctors says that those are the prime hours for detox, so thinks I may be trying to detox...he gave me some stuff to help that process along so that my body doesn't have to work so hard...so far haven't noticed a difference, lol, although I ran out of one of the things I've been taking to help "control" the lyme (ran out Sunday) and coindicentally I did sleep a bit better last night, so possibly there is something to the detox thing in my case.

ElenaDragon Explorer

I usually wake up once or twice between 11pm and 1am, and when I do I have to pee before I can go back to sleep. Then I tend to wake up again around 5am or 6am - if it's after 6 I just get up since I usually can't go back to sleep for less than an hour (and I have to get up before 7). So I make multiple bathroom trips during the night, but I don't have a BM until I get up after 6 (usually my only BM of the day).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.