Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr. Practice With Many Practioners


debmidge

Recommended Posts

debmidge Rising Star

During my bout with gall bladder disease I went to gastro #1 and as of the day he saw me he went on vacation for over a week. I felt abandoned.

During the week he went away I had my gall bladder out asap as I got very ill.

During that week I decided to go to a new gastro - so I went to this gastro #2 and I didn't care for him & he was sarcastic and I felt he wasn't giving me what I need to know about what to expect now that I was post-operative gall bladder surgery. He ran blood work and wanted to do colonoscopy asap. I also got a bad recommendation from another doctor about this gastro #2 and added to how I felt about him I didn't want to see him any longer.

I decided that I wanted to see a gastro #3 -- someone new -- so I called office of gastro #2 and explained to them that I wanted to switch to another partner. They won't let me. They have an office policy of not allowing patients to switch; they'd rather see a patient go away than accomodate them. Has anyone ever had this experience?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Deb--I say, run the other way! I have had bad experiences with doctors, not the same as you, but bad.

I went to a gynocologist on May 31st and she told me I had many polyps and to return for a sonogram on June 4th. On that day, she told me I had tons and tons of polyps, inside and outside of my uterus, that I needed a D&C. I sat with her and asked why not do a hysterestomy, since I have a prolapsed uterus and I felt it was causing me many problems. She says to me, "Well, the prolaspe can wait, lets do the D&C and work on your other issues and we will worry about the prolapse several months from now!" She told me first that she normally takes care of polyps in the office, but I had to many and she was afraid of a bleed, so she wanted to do this in a hospital setting. She had me totally freaked out. So, I agreed. She set up the D&C for the following Monday. I talked to 2 of my friends who had both had hysterectomies and they both told me to get another opinion and not to do a D&C. They both felt it was an unnecessary procedure to put me through, so I did go into the GYN's office on Friday to cancel the procedure, at which time I got a "talking to" by the PA, to which the PA said to me, "Why are you so upset about a few tiny polyps?" The following Wednesday, the GYN wanted to see me to set up a referral and talk to me about my decision and she says to me, "I don't understand your decision, you only have a few polyps!", this coming from the doc who told me "tons and tons!"

So, I was referred to Dr. Schwartz, who immediately told me I needed a total hysterectomy before further damage occured from the prolapse, he didn't even mention the polyps. I had a vaginal hysterectomy on Aug 1st and there were 4 tiny polyps, all benign. In my opinion, the GYN wanted me to have an unnecessary procedure just to pad her pockets, she doesn't do surgeries otherwise and can only assist. I didn't allow her to assist and I will not return to her.

Doctors do not know all and they are not our boss. We own this body we live in and we have the say as to what does and doesn't happen. If you are uncomfortable with a doctor, then absolutely, find another. Never, ever accept them at their word just because they say you have too. I am learning so much. My PCP told me just before my surgery that I always look so good, always smiling and happy, that I will live to another 47-50 years and I said, "OMG 102 feeling like this!" To which I added, "Just because I feel like crap doesn't mean I have to make you miserable too!" I am giving him another chance to help me figure out what is going on inside this body of mine and if he can't help, then I will be looking for a new PCP too. I need a doctor willing to realize I do not fit the "normal range", that I am one of the patient that is outside of that range, even though my numbers seem ok.

Find someone new sweetie. Good luck and feel better.

Judyin Philly Enthusiast

Hi Deb

So good to see you posting but sorry for the sad report.

May I please add...........get your records from #2 and RUN FAST.................

MAKE SURE YOU DON'T DISCUSS ANYTHING...BE SO POLITE HONEY DRIPS FROM YOUR MOUTH.

I'D LET THE 3RD DR JUST EXAMINE YOU FOR A ...........FRESH OPINION.

I TOO HAVE HAD MY SHARE OF ----SURGEON SHOPPING----AND I HATE HATE HATE IT :ph34r:

JUST SO you know............this woman GI I like so much who can't figure out what to do for me....

found ...just the man in her practice to help me. it will take till jan to see him but since i'm holding my own for now with the celiac disease...we'll see.

I SO WANT YOU TO GET SOME ANSWERS.

PLEASE KEEP POSTING TO US.

HUGS AND PRAYERS.

JUDY

jerseyangel Proficient

Hi Debbie,

Yes, I'd definately find another practice. These people obviously are not putting your needs/wants first. I think you'd just find yourself going around in circles.

I had a similar experience as Darlindeb--I was going to a GYN who kept me coming back for ultrasounds, and would only recommend an ablasion for my heavy bleeding and fibroids.

I had the procedure and within a year, I was back to square one, and in the worst pain I've ever experienced. I sought help from another doctor, who immediately (at my request) scheduled a hysterectomy. I could not endure one more month of that pain--seriously.

The pathology report revealed that I not only had fibroids (which were the least of my problems), but a cystic ovary, adenomyosis and stage 4 endometriosis--which, in my case may not have been completely cured by the surgery it was so widespread.

My point is to go with your gut, and if your healthcare team isn't putting you first, then it's time to find one who will. These people don't know everything--you deserve to have the attention of a doctor who will work with you.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.