Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating Disorders?


maccygirly

Recommended Posts

maccygirly Newbie

So obviously I'm brand new to this site cause I have abs no clue what I'm doing, so please bear with me. I've just started my sophomore year at college and got diagnosed with Celiac the day before I left (on my birthday...) I've been dealing with insane eating issues for a while now- eating nothing, then crazy bingeing, calorie counting EVERYTHING, and having to workout for hours every day regardless of how exhausted I am or how weak I feel (I don't believe in naps by the way- waste of time.).. Its extra difficult because most of my girlfriends have even worse eating issues. Its just super tricky because I cannot help my friends and they cannot help me and we are truly just making all of our own conditions worse. I have always been sort of a crazy vegetarian health nut, tried doing the vegan thing (loved dairy too much!), but it has become too much- especially now with the celiac disease. I feel crazy...well obviously I am and I know it. I really didn't gain or lose any weight since figuring out I have this...well I feel like I'm gaining now no matter how much I exercise (I'm saying atleast 2 hours at the gym everyday) and thats the problem. Especially since I am not filling up on the carbs anymore, I feel like I'm always hungry and the nighttime bingeing is killlllllling me. I need major help so anything anyone has to help would be greatly appreciated. I hate being so crazy and having to pay attention to everything I eat like this. Does anyone know if I am even properly absorbing all these calories anyway and I should not be stressing?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CaraLouise Explorer

I graduated last December, but I was the same way as you. I was diagnosed with Celiac right before my sophomore year. I lost a lot of weight after being considered obese and I did not want to gain it back, so I went on a little exercise and food obsession. I am doing better now and after getting celiac under control I feel better too. One way that I have to fill up is by adding a lot of low-calorie dense foods like vegetables and fruits. I still watch my calories because I tend to lose weight if I don't. If you want to message me that is fine, I would be more then willing to talk to you. By the way, where do you go to college??

Arpita Apprentice

When I get little bits of gluten in my diet, I get a "hungry" feeling even if I just ate. I also had a similar problem as yours when I first going off gluten and didn't yet have a firm grasp that I might be getting gluten in my diet or getting foods contaminated with gluten (and before I went dairy free). It is hard without meat. I would try eating more nuts or nut bars (like Larabar), making quick sweet breads, eating chips, etc. Maybe add some iron and B-12 to your diet also, as many celiacs are low in those areas from gluten, and these are vitamins that are more difficult to get when are vegetarian. Hang in there. It's possible that the longer you are gluten free, the more your eating swings will calm down.

maccygirly Newbie

Yeah, I definately am still getting the gluten somehow... I have to be because I'm still getting sick. I'm pretty strict with everything too so I haven't a clue how I'm still getting it. The hardest thing with me is that crazy out-of-control carb craving I get oh every hour. I'm slowly getting the hang of it though so hopefully this will end up working out for me sooner rather than later. Its nice to know I'm not the only one going crazy here. Oh and CaraLouise, I'm at Miami University in Ohio. :)

confusedks Enthusiast

Maccygirly,

I can totally understand what you're going through. I have the carb cravings, sugar, etc. It is really hard because I feel like I'm starving myself and should be losing weight, but I don't lose an ounce. Then I end up eating everything in site because I was depriving myself. I have put on few pounds over this summer break and I'm so frustrated! I want to lost the weight, but it will take time. I am also on BC pills...hormones do WONDERS to the appetite!!!! <_<

Kassandra

kbtoyssni Contributor

I'd suggest trying to eat plenty of protein to help you not get hungry. Planning out what you want to eat at night when you get hungry can be helpful, too. If you're studying until midnight or later, it is perfectly reasonable to eat a second dinner around 10 or 11pm if you ate your first dinner at 6pm, and you're probably better off making a dinner rather than snacking on junk food. Thinking can burn a lot of calories.

You could also check out what resources your campus offers. There might be a nutritionist, psychologist, and/or fitness trainer you could talk. I'd encourage you to discuss this with professionals rather than your girlfriends to avoid triggering each other into bad food and exercise habits.

kevieb Newbie

please see a counselor----this sounds like eating disorder behavior. my daughter spent 3 months in the hospital because of an eating disorder---and they couldn't keep her gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
ilikechaitea04 Newbie

Hey there! You're not alone. You sound just like me. I am a sophomore in college and I had felt sick for so long before I got tested for Celiac that once I was tested and figured out that was my problem I've been a maniac with excersizing and controlling whatever I put in my mouth.

I dropped 20 lbs. 112-95. The worst part was, I didn't even realize it. I thought I was just being careful.

Well I am now in the process of trying to gain weight, and trust me...it's not fun. Once your body hits such a low weight your metabolism slows down because it thinks you're starving in the desert (a natural survival instinct). Then when you start eating more again you feel bloated and tired because your body is trying to get used to processing so much again.

Something that would be helpful would be going to see a psychotherapist. I am currently seeing one and she has helped me greatly deal with all this and make a game plan for getting better.

There is a light at the end of the tunnel!

spanish-road Newbie

Simple, 3 meals balanced with starches, proteins, veggies. This will make you feel better and give you the energy you need. Its like a fire, if you load up a fire all at once it dies and burns poorly, but if you feed it the right amount it burns hot and long. Im no expert on whats going on inside so this is just an idea that i have.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,920
    • Most Online (within 30 mins)
      7,748

    Serena Rodriguez
    Newest Member
    Serena Rodriguez
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.