Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help!

chocolatelover

By chocolatelover
in Coping with Celiac Disease

Recommended Posts

chocolatelover Contributor
chocolatelover
Posted

Hi there...havean't been on in a long time, but here is my story...I was diagnosed with lymphocytic colitis in January (causes chronic diarrhea, some say it's the large intestine version of celiac), diagnosed with celiac in April. Several weeks ago I did a blood test to test for about 150 foods and cemicals to see what I react to. I have been found to have possible intolerances to corn and soy, so I am currently on a very strict diet of rice, potatoes, chicken, turkey, almonds, eggs and a couple of fruits and vegetables. I eat nothing processed and drink nothing but water. I have discontinued OTC meds that could have been causing problems (like the calcium that had corn starch in it). I eat nothing processed at all. Every day since I started, I have had horrendous gas, bloating, gurgling, major stomach discomfort and my diarrhea is worse (if that's at all possible!). The only 2 things that I have eaten every day is brown rice (in the form of rice or rice pasta) and chicken. This diet is a 6 week trial, and after one week you start adding things in, one at a time (next week I can add cheddar cheese, pork, green beans, etc.). I started on Saturday and am under the care of a nutritionist who works with people doing this diet. Is it possible that the rice is actually causing my problems? Has anyone else ever had a problem with rice? Today I'm going to try eating no rice at all--poatoes, eggs, meat, veggies, fruit to see what happens.

I am going crazy because I can't eat anything, I'm starving, grumpy and I'm tired of feeling like my insides are going to explode.

Any thoughts from anyone would be greatly appreciated!!

CL

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


alamaz Collaborator
alamaz
Posted

it could very well be rice. i can not eat rice in large quantities and it can't be a hardy rice like wild rice because then i'll be sorry! i was told to try the quick cooking rice because it's easier to digest for some people. rice in general is "roughage" and diffucult for the body to digest. i also find that if i eat too much potato then i'm sorry also. but having a small baked potato seems to be okay. but if i eat a plate of mashed potatoes - ugh! try taking rice out for the next week and see how it goes. there isn't a lot to take the place of the carbs. that i have found except polenta (corn). Also, how many almonds do you eat? those are very hard to digest too. when i was first dx'ed my nutritionist told me to stick to seeds and no nuts (pumpkin, sunflower etc.)

gfpaperdoll Rookie
gfpaperdoll
Posted

YES, I would never have believed it but I recently had to quit eating rice - & like you I was eating brown rice. I gave up corn & rice & feel tons better - I upped my meat consumption & read the book "The Paleo Diet" & now I mostly eat Paleo.

Rice that is on the market now is also genectically altered, & it seems to me that more & more people are having a problem with rice...

Oh & I would not eat white potatoes either they are very high in lectins & a nightshade veggies & a lot of us cannot eat them. Eat sweet potatoes instead

scotty Explorer
scotty
Posted

yea you might have candida. i have the worst case of candida known to man. i smell sugar or carbs and get "loose"

i pretty much eat very little variance in my diet and try things here and there to see how they affect me; not much success most of the time. it seems if i could heal them i would be able to tell what is bothering me instantly, but it is always one thing or another, perpetual healing...or misery not sure which soemetimes

chocolatelover Contributor
chocolatelover
Posted
  • Author

I have heard of the Paleo diet but have never researched it. What exactly is it?

I can't eat sweet potatoes for another several weeks on this diet yet. Potatoes don't seem to give me any more problems than I have when I don't eat them.

I have also thought that perhaps candida could be a problem, and it was just suggested to me tonight to get tested for heavy metal toxicity. I thought my search for answers was perhaps coming to an end, but I guess not!

Thanks for all of your comments. I didn't eat any rice today and felt tons better. I would be really bummed--how do you bake without wheat or rice flour?

NoGluGirl Contributor
NoGluGirl
Posted

Dear chocolatelover,

Alamaz mentioned something about eating too much potato causes serious stomach upset. The same thing happens with me. I have Candida. I agree with Scotty. If you have been on a lot of antibiotics in the past, steroids, or birth control, it is a good possibility. Another thing is your tongue usually is white, especially after eating fruit. Heavy metal toxicity often acompanies an overgrowth of yeast, which has caused Leaky-Gut.

Dear alamaz,

I have the same trouble! Candida is a major problem for me, so there are times I got very sick. It was awful! I know half of a large potato is safe, but not the whole thing. Eating it with protein helps even out my low blood sugar. I wondered if anyone else had this issue!

Sincerely,

NoGluGirl

alamaz Collaborator
alamaz
Posted

Hey NoGluGirl- how did you find out that you had candida? When I was DX'ed I was showing a reaction to yeast, but it was mild. I went on a probiotic and thought it would be okay. But if I eat too much gluten-free baked goods with flour or to many starches/carbs I get really sick. I just assumed it was my body not being healed yet. Maybe I should look into the candida issue? Plus, I'm 8 weeks pregnant and the only thing I can hold down in the mornings right now is toast (gluten-free of course). I know it's so bad for me but today I tried eating bacon and an apple with no toast, let's just say my ride to work was NOT fun at all :huh:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NoGluGirl Contributor
NoGluGirl
Posted

Dear alamaz,

You sound like you are having as rough a time as me! Being 8 months pregnant likely contributes to that. Candida is actually often diagnosed by your symptoms and past. I have been on steroids for asthma, tons of different antibiotics for various infections from birth until now (I am 24), as well as the Depo shot for ovarian cysts. Hormones play a role in yeast growing out of control. Pregnancy, especially multiple ones puts women at a higher risk. I switched to a holistic physician last year due to suspecting Candida after performing extensive research.

I was so fascinated by Candida's pathology, that I wrote an essay on it. If you would like a copy, PM me with your e-mail address. I would be more than happy to send a copy to you! It actually hurts to sit down sometimes! Not everyone gets the symptoms in the nether-region, so to speak. Intestinal Candida is a real problem that manifests in over 100 physical symptoms alone! :o

Sincerely,

NoGluGirl

JNBunnie1 Community Regular
JNBunnie1
Posted
I have heard of the Paleo diet but have never researched it. What exactly is it?

I can't eat sweet potatoes for another several weeks on this diet yet. Potatoes don't seem to give me any more problems than I have when I don't eat them.

I have also thought that perhaps candida could be a problem, and it was just suggested to me tonight to get tested for heavy metal toxicity. I thought my search for answers was perhaps coming to an end, but I guess not!

Thanks for all of your comments. I didn't eat any rice today and felt tons better. I would be really bummed--how do you bake without wheat or rice flour?

Sorghum, tapioca, potato, almond, amaranth, montina, or just flourless baking. try googling flourless anything you want to bake, it usually works.

If you test positive for heavy metal toxicity, try looking up something called chlorella to help cleanse yourself, I'm sure there's lots of other stuff too.

chocolatelover Contributor
chocolatelover
Posted
  • Author

How do you get tested for either candida or heavy metal toxicity?

scotty Explorer
scotty
Posted
How do you get tested for either candida or heavy metal toxicity?

try a shot of apple cider vinegar with mother...if your belly burns like you just ate battery acid you got major problems :blink: jk

really thats how they helped me on here. there is certain reactions and such, white tongue, rashes, intolerances to foods like ones that contain sugars and/or vinegars, yeast!! google candida

NoGluGirl Contributor
NoGluGirl
Posted

Dear chocolatelover,

I did not even have to do the vinegar, because anytime I ate a salad with dressing based from vinegar, I felt the way Scotty did. :( It does feel like you swallowed battery acid, or a really angry Netsuke dragon! :o Rashes have a bad habit of popping up and suddenly disappearing. Eczema is common, too. Candida causes so many issues, it is unreal! A number of doctors just plain refuse to believe it is a cause of illness.

I wrote an essay that can tell you more about it. Just PM me with your e-mail address. I have to send it in an attachment, because it is a Word document. There are some great books and sites out there as well. Dr. William G. Crook's "The Yeast Connection" is still widely used. His protocol is the favorite among practitioners even now.

If you are anything like me, you crave sugar all the time. Fatigue is typical as well. Fibromyalgia is another normal symptom with an overgrowth. Your tongue turning white, especially after consuming fruit or starches is an excellent indicator.

Nausea, bloating, gas, colon problems (diarrhea and constipation), as well as stranger, less obvious things like ringing in the ears, dizziness or loss of balance/feeling drunk, headaches, and a sensitivity to mold all are very often a result of this full-body fungal infection.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.