Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Many 'imagine' Food Intolerance


ENF

Recommended Posts

ENF Enthusiast

How this for some dangerous misinformation, confusion, and (at the bottom) reactionary responses?

BBC NEWS

Tuesday, 18 September 2007

Many 'imagine' food intolerance

Millions of people in the UK have self-diagnosed a food intolerance and may be avoiding key foods as a result, a poll by a testing firm suggests.

Less than a quarter of the 12m people who claim to be food intolerant have had their condition formally diagnosed.

While many of the nine million who also claim to be intolerant may well be so, it is suggested they may just be fussy.

Nearly 40% of the 1,500 people polled by Yorktest thought it trendy to be intolerant and many blamed celebrities.

Actress Rachel Weisz for instance has a well-publicised wheat intolerance, TV presenter Carol Vorderman a gluten one, and Rod Stewart's former wife, Rachel Hunter, a lactose intolerance.

Vague symptoms

The range of foods people declared themselves intolerant of was diverse, but grapefruit and sushi were declared by those polled to be key culprits.

You may be cutting out something you don't need to which might be putting your nutritional health and your longer term health at risk

Tanya Haffner

Nutritionist

Food intolerances are not as severe as food allergies, which in severe cases can prevent people from breathing properly.

But symptoms can nonetheless be uncomfortable, ranging from a stuffy nose to aching joints and nausea.

However the wide variety of complaints which people pin on food intolerances could be related to a number of other conditions.

Nutritionist Tanya Haffner said it was important to seek the advice of a qualified medical practitioner.

"You may be cutting out something you don't need to which might be putting your nutritional health and your longer term health at risk," she says.

Open Original Shared Link

--------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

This is one website's response to the story:

All you bonkers people who say you're like "allergic to wheat" and gluten and dairy or whatever? 75% of you are LIARS who have never asked a doctor about your so-called allergy, says a new U.K. survey. So stop coming over with your tempeh and your rice flour already, because I'm going to stuff a piece of bread slathered in butter down your throat.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommyagain Explorer

Sure we haven't been formally diagnosed... because we can't find doctors willing to make the correct diagnosis! If they stopped handing out a "diagnosis" of IBS and saying "everyone get diarrhea/constipation, just deal with it", maybe we'd stop making this stuff up! And I love how food intolerances are not as severe as food allergies... no, I won't go into anaphylactic(sp?) shock if I have a piece of bread, but I do have a much higher risk of colon cancer and other (possibly fatal) health problems.

GRRRR... I HATE STUPID PEOPLE!!!!!!!

Ridgewalker Contributor

Ok, that article really enraged me. How incredibly thoughtless, how incredibly irresponsible, to write these things.

-Sarah

christicrete Rookie
Ok, that article really enraged me. How incredibly thoughtless, how incredibly irresponsible, to write these things.

-Sarah

christicrete Rookie

oops, it has been a while since I posted

Both my daughter and I have been on a gluten-free diet for over 2 years now and feel so much better. Maybe those jack @$$&$ should actually talk to someone with the "over reactions" and get facts from the right sources. I know some docs are great, mine is ignorant as well as these people.

Sorry to rant, but I am so tired of people thinking that I am over reacting. I am sure they would all over react if something they ate made their toilet water bloody! :angry:

Christi

ENF Enthusiast

I don't know if this is a typo, sarcasm, a double negative, a British type of wording that is unfamiliar to an American reader, or something else in her writing style that I am not getting:

You may be cutting out something you don't need to which might be putting your nutritional health and your longer term health at risk

Tanya Haffner

Nutritionist

How can you put yourself at risk by eliminating something you don't need?

CarlaB Enthusiast

It was poorly written ... it should have said, "you don't need to cut out" ... then it makes sense.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

We "liars" should flood that paper with emails! What a horrible article to print!

hathor Contributor

Oh, another "it is imaginary unless a medical professional agrees you are feeling what you are feeling" article.

Words fail me.

burdee Enthusiast

GRRRRRRRR!!!!!! (My first reaction.)

My second reaction: The only ones suffering from our abstinence from foods which cause painful symptoms are people trying to profit from the food industries we avoid. There are enough kinds of foods and supplements available to provide adequate nutrition even for those of us with celiac disease AND multiple food allergies. Besides how much nutrition will we absorb from all of the 'nutritional' foods which cause reactions which damage our intestinal villi???? If we can't properly digest those 'nutritional' foods, we certainly can't benefit from the nutrition.

BURDEE

Juliebove Rising Star

Well... I know I am allergic to dairy, eggs and almonds. An allergy test confirmed it. I know I am NOT allergic to fresh pineapple or oranges, but I also know they give me blisters in my mouth if I eat them. So I don't eat them. I also know if I eat very much garlic I get nasty stomach pains. So I don't eat that. I don't think I'm suffering too much.

Never ate sushi. Doesn't apple to me at all. And yes, I am a fussy eater. But I make sure to eat a balanced diet, as best I can.

Ridgewalker Contributor

I googled this article and found it on the BBC News website:

Open Original Shared Link

If you go to this page, scroll down and they have a form where you can submit a comment

about this article. It just basically asks for your name, where you are from, and asks:

" Have you self-diagnosed a food intolerance? What led you to do so? Has it worked for you?

Or are you now concerned that you may be missing out on key foods?"

I'm going to send comments right now :angry: and wanted you all to know about this opportunity!

-Sarah

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.