Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Southern Usa


confused

Recommended Posts

confused Community Regular

I need any regular information on valley fever. I have looked it up, but wanted to know if anyone has known someone with this disease. I had never heard of it til last night.

I guess that is what started my bil problem, and then it turned into fungal menigitsis, he finally got an new dr that is letting the family know the truth besides his old dr.

And people wonder why i hate drs.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ptkds Community Regular

I found this article. I didn't read it, but it looked like it was full of info. I just did a search on the name, and it brought up a bunch of stuff. I hope your BIL gets better soon.

Open Original Shared Link

ptkds

UR Groovy Explorer

Hi,

My sister contracted valley fever when we lived in Bakersfield. It comes from certain spores that are airborn in desert areas (from what I know). She underwent treatement for a while and had a couple of joint surgeries (her case was pretty severe though).

Just to calm you about this, after her treatments and surgeries, she recovered well. She's strong, healthy, and now has 3 awesome kids. She's never had any problems from it since then.

Take care

mouse Enthusiast

It is airborne and that is why all the construction jobs are required to water the soil when they dig. The spoors can also become airborne after a rain. Antibiotics are necessary and PLENTY of rest. Your BIL should not over extend himself during the recovery. It can cause lots of damage if allowed to run unchecked and without the proper treatment. Animals also get Valley Fever.

confused Community Regular
Hi,

My sister contracted valley fever when we lived in Bakersfield. It comes from certain spores that are airborn in desert areas (from what I know). She underwent treatement for a while and had a couple of joint surgeries (her case was pretty severe though).

Just to calm you about this, after her treatments and surgeries, she recovered well. She's strong, healthy, and now has 3 awesome kids. She's never had any problems from it since then.

Take care

was hers the dissemented type were it affects all of the body. And did she get the pnemonia with it?

Did she sleep like all the time and never want to eat?

I am so hoping he does recover, but it seems like too many of his organs are really bad. I know the drs said if he can eat he will get better, but he wont eat and that is what scares me.

Was your sister in the hospital with it, or did she jsut recover at home.

paula

confused Community Regular
It is airborne and that is why all the construction jobs are required to water the soil when they dig. The spoors can also become airborne after a rain. Antibiotics are necessary and PLENTY of rest. Your BIL should not over extend himself during the recovery. It can cause lots of damage if allowed to run unchecked and without the proper treatment. Animals also get Valley Fever.

We are thinking he has had it for a very long time cause he has been in colorado since june. And we are kinda thinking he didnt get it in new mexico but in arizonia were he hasnt lived for almost 2 years.

He tried to get out of bed yesterday and just collapsed, but he really hasnt ate in a month, so not sure if he is weak from that or from the disease.

paula

confused Community Regular
I found this article. I didn't read it, but it looked like it was full of info. I just did a search on the name, and it brought up a bunch of stuff. I hope your BIL gets better soon.

Open Original Shared Link

ptkds

thanks pt, i think i read that one this morning

I guess i was just hoping i could find something that would tell me like accurate survival time.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



UR Groovy Explorer

Hi Paula,

It was so long ago, but I know this much:

The first part of her treatment was with Amphotericin. It was a pretty rough road. She lost a lot of weight. She's 6 feet tall and her weight plummeted to about 115 by the time treatment was done (her normal weight is about 155).

After her treatments, I believe she was usually held overnight for observation (if I remeber 23 years back correctly).

It manifested in her joints, which is why she had the surgeries. I believe it always begins with the lungs and then travels to different areas of the body depending. She may very well have had pneumonia - I just don't remember (and this isn't something I'd bring up with her - reminders of a difficult time and all).

She was extremely weak and run down during this time. We were very concerned about whether she would make it through or not (mainly because she just got so darned skinny). She did. But, it was a long road. She wasn't really fully recovered for at least a year or so.

I hope that with proper care, plenty of TLC, a good attitude, and a good specialist, he'll be okay. Like I said, she's soooo fine now - strong as a horse with no organ problems - in fact, I think it's ironic that she had Amphotericin treatments and I have kidney disease. Be good to him and know that he'll need help while he's recovering - and lots of positive energy around him. I hope your bil will be just as well as she is. I'm sorry your family will be dealing with this.

Take care of you and him

k

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.