Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ladies, Celiac & Menstrual Cycles?

dbuhl79

Recommended Posts

dbuhl79 Contributor
dbuhl79
Posted

I've seen other people mention that there menstrual cycle changed when they were struck with Celiac Disease or as part of their symptoms.

Along wth the onset of these odd digestive symptoms, mine has also changed.

I'm curious, what have doctors told you about this connection? Is it simply that your body is so thrown off by this disease that it effects EVERYTHING? My doctors didn't seem to care or have much concern that my cycle has altered along with this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nadtorious Rookie
Nadtorious
Posted

My period disappeared for almost 4 years while I was really sick, and came back as soon as I went gluten free (within a week!). My doctor actually used this to diagnose me first (before blood tests, endoscopy, and diet challenge). Now that I've been gluten free for close to 2 years, my period has finally kind of normalized-I can somewhat predict it and my cramps aren't as bad as they were pre-celiac days.

Nadia :)

Racheleona Apprentice
Racheleona
Posted

Hi dbuhl79,

Being that I haven't had my period for almost 2 years now (which happened after I lost 30 pounds in 2 months, and had at first started losing weight intentionally due to only eating 500 cals/day, and then continued to lose without trying). After doing labs my doctor said that my hormones are now out of wack and are very low. This could be due to my dramatic weight loss, or due to malnutrition. I have been gluten-free for 2 months now, and still no period though.

Rachel

LynnR Explorer
LynnR
Posted

My periods has always been very irregular. I also have Endometrosis. So when they completely stopped, I wasn't too concerned at first. I just thought it was due to Hormonal Imbalance.

When I went to see a new doctor this week, one of his questions was if I was getting my period. At the same time he was checking me for Anemia. He told me that when someone is really Anemic their periods will stop also because you don't have enough iron in your system to produce them.

Guest ~wAvE WeT sAnD~
Guest ~wAvE WeT sAnD~
Posted

Hi, Ladies!!

Before I went on the gluten-free diet, my periods were irregular, even in high school. After a month on the diet, I was consistent (this was before I started taking birth control pills).

--Stay healthy!!

ps. Lynn, how long have you been gluten-free?

LynnR Explorer
LynnR
Posted

Jill,

I haven't been gluten-free for too long. Only about 2 weeks.

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Hi there,

before i went glutenfree i had really painful periods. Sometimes i couldn't do anything but lay in bed. And they were irregular too, but only sometimes. I'm glutenfree since July this year now and as soon as i started the next period in August was so nice. Oh, it was like heaven. No pain at all. I almost didn't even recognize it already started. The only thing that bugs me a little, is, that it's a little bit late each month. But at least it's late regualar now pretty much. Always around day 33 or 34.

Lots of greetings, Stef

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Oh and i forgot to tell. All periods since then were without pain at all.

Lots of greetings, Stef

Guest ~wAvE WeT sAnD~
Guest ~wAvE WeT sAnD~
Posted

Lynn--

Ok. ;) Maybe in a couple of weeks, or whenever you normally start, you may notice a difference. I'm not an expert, I just speak from personal experience.

Keep everyone updated on your progress--this disease can be tough at times, but I know you'll make it!!! This board is extremely supportive :D

Sincerely,

dbuhl79 Contributor
dbuhl79
Posted
  • Author

Thanks ladies! Ever since my symptoms have arose, I've noticed a change in cycle. Its a relief to discover others have too. Particularly since my doctors could care less! :)

Guest Lindam
Guest Lindam
Posted

:( Ever since I was diagnosed, my periods have been very weird. They were always 2-3 days tops, and some discomfort, but nothing Tylenol wouldn't handle. Now they can last up to 10 days, the cramping starts at least a week before it starts, all the PMS symptoms are there also for a week prior. My gyne is concerned that everything is changing. It has something to do with celiac disease being an autoimmune disease and our periods throw everything off. I would suggest talking to your gyne about it.

Good Luck!

Linda

darlindeb25 Collaborator
darlindeb25
Posted
<_< now when i think back--i am wondering if celiacs had anything to do with my cycles---i was quite regular, but had very heavy periods--i was afraid to leave home the 1st 3 days----but, as is true of many celiac women, i went through menopause early--i am 49 now and havent had a cycle now for 3 years and that's ok :P --my were bad enough--i deserve a break :D deb
Rikki Tikki Explorer
Rikki Tikki
Posted

As I look back I can't help but wonder if the celiac was causing a lot of gynecological problems. I was always very irregular, couldn't get pregnant and took fertility drugs for over two years in order to get pregnant with my first two children. My periods were also very irregular and heavy and I had awful cramps since I was a teenager. It does make me wonder.........

By the way does anybody know how to spell check before I post??

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
    3. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines? Did it work ?? Thank you !!
    4. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
    5. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,877
    • Most Online (within 30 mins)
      7,748
    Christian Konig
    Newest Member
    Christian Konig
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.