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Hand Sanitizer

FootballFanatic

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FootballFanatic Contributor
FootballFanatic
Posted

So I know that I haven't consumed a source of gluten but I still feel like I've had some minor contaminations. (Hard to tell because I suffer from panic attacks and the symptoms can be very similar).

Today I was away from the house and hungry so I purelled my hands and then ate some gluten-free pretzels. Halfway through I realized the purell probably doesn't kill gluten, huh?

Duh....

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JNBunnie1 Community Regular
JNBunnie1
Posted
Duh....

Don't you hate that feeling? "I'm a dumba**".............. Worst feeling. When I need to eat out of a bag and my hands aren't safe I 'drink' out of the bag, which really only works with smaller bags, but it keeps the food safe.

FootballFanatic Contributor
FootballFanatic
Posted
  • Author

Yeah I wanted to do that but I was in a huge lecture hall sooo, didn't want to call too much attention to myself.

ravenwoodglass Mentor
ravenwoodglass
Posted
Yeah I wanted to do that but I was in a huge lecture hall sooo, didn't want to call too much attention to myself.

This may sound a bit nutty but if you have times when you can't wash but still want to eat safely you could put some nonlatex powderless plastic gloves in a baggie and keep that handy. I get my gloves at the drug store, be sure to make sure they are NOT powdered though because the powders they use can be problematical in themselves.

JNBunnie1 Community Regular
JNBunnie1
Posted
Yeah I wanted to do that but I was in a huge lecture hall sooo, didn't want to call too much attention to myself.

I know how you feel. I've finally given up worrying about how the wierd stuff I do on a regular basis appears to other people. For the longest time I wouldn't do stuff like pick a wedgie in a store or blow my nose in front of people. For some reason, sometime in the past couple years, I completely stopped caring. It's not even that I'll never see those people again, it's that I don't really care even if I do. I think it helped to realize that people don't pay as much attention to me as I used to think they do, you know how you think people are watching you in your car? Yeah, no they're not.

Guhlia Rising Star
Guhlia
Posted

A bit of advice... Carry some wet ones in your purse or pocket. They won't kill the gluten, but they'll certainly wipe some/most/all off of your hands. I do this and thus far I have only been glutened a handful of times without knowing why. It seems to work well for me.

FootballFanatic Contributor
FootballFanatic
Posted
  • Author
A bit of advice... Carry some wet ones in your purse or pocket. They won't kill the gluten, but they'll certainly wipe some/most/all off of your hands. I do this and thus far I have only been glutened a handful of times without knowing why. It seems to work well for me.

Thanks for the advice. They were pretzel sticks so I will probably just use the bag to put them into my mouth...if you can picture that one

Hahaha

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buffettbride Enthusiast
buffettbride
Posted

We had to go through the "hand sanitizer doesn't kill gluten" thing with my daughter's teachers. The one thing that drives me crazy about her school is that they rely on hand sanitizer more than hand washing.

You can't "kill" gluten because it isn't alive, so my daugther has some wipes in her desk and in her lunchbox she uses to clean her personal space when she knows it might have been contaminated. We learned this lesson the hard way after 3 glutenings in 2 weeks at school. Not fun.

One good thing about washing your hands vs. hand sanitizer, is it gets rid of so much more of the bad stuff and doesn't give you a false sense of cleanliness. Most of the hand sanitizer (and antibacterial products) on the market doesn't really clean as good as manufacturers would have you believe. Mainly, it doesn't kill the bad MRSA strain of staph which is the "superbug" we are all hearing about on the news. My family has had a horrible bout with MRSA the last two years and we're just FINALLY getting on top of it.

I prefer wipes because it is closer to a real hand-washing than anything else.

melmak5 Contributor
melmak5
Posted

There was a study that showed the only part of using hand sanitizer that does anything is the friction created when you move your hands back and forth.

I wish I could find it, but the only thing hand sanitizer is really good for is drying out your skin.

Wet-wipes are a good suggestion, at least they have the chance of taking something off your skin.

L.A. Contributor
L.A.
Posted

My crazy celiac solution...I put a baby face cloth with soap and water on it in a bag and then another cloth with just water in another baggie and am able to wash and rinse my hands :lol:

kbtoyssni Contributor
kbtoyssni
Posted
My crazy celiac solution...I put a baby face cloth with soap and water on it in a bag and then another cloth with just water in another baggie and am able to wash and rinse my hands :lol:

That's what I do, too! Although I do it for environmental reasons. This way I'm not throwing away wipes all the time. I always do this for picnics because it's hard to wash juice off my hands when I'm in the middle of nowhere.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
There was a study that showed the only part of using hand sanitizer that does anything is the friction created when you move your hands back and forth.

I wish I could find it, but the only thing hand sanitizer is really good for is drying out your skin.

Not only that but if your hands are dry and cracked you just opened yourself for catching something.

jerseyangel Proficient
jerseyangel
Posted
My crazy celiac solution...I put a baby face cloth with soap and water on it in a bag and then another cloth with just water in another baggie and am able to wash and rinse my hands :lol:

Not crazy at all! I do this--it's the only way I feel really clean.

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    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
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      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
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      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
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      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
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      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
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