Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be Celiac?


Starshine

Recommended Posts

Starshine Newbie

I apologize in advance for the length of this! I'm just trying to figure out what the heck is going on with me. A basic history: I'm 24, no family history of celiac, been pretty much healthy as a horse my entire life.

About a month ago I started having some gas when I woke up-- nothing major, and I was fine throughout the rest of the day. I had diarrhea once or twice, but again, nothing major that would make me think it was anything other than my stomach being slightly off. I also started to- and this is kind of hard to describe- feel my heartbeat in my gut after I ate (presumably as I was digesting), but there was no pain or anything like that. I felt fine, it was just sort of weird.

In any case, the symptoms continued for a week or so before vanishing completely, so I thought it was just a temporary issue. I went for a week and a half-two weeks with no problems at all, and then all of a sudden it came back a few days ago and it's been worse- I've been getting palpitations too, but they don't always seem to be connected to eating as I get them at other times (like in the shower with hot water, for instance). I haven't changed my diet at all, either. HOWEVER, there are several things that are making me think it's probably NOT celiac.

First of all, the last two days I tested myself by eating two slices of wheat bread for lunch one day and sushi (with soy sauce, which has wheat) and barley soup for lunch the other day and then I monitored myself for about three hours afterwards-- nothing. No issues whatsoever. I felt absolutely fine, nothing out of the ordinary. Yesterday night I had dinner (hamburger with bun, sweet potato fries and corn) and started feeling gassy almost right away, but after a little bit of gas and a little bit of diarrhea (nowhere near comparable to the volume of food that I just ate, though-- I know, TMI, sorry), I was fine again. It seems to me that if I were having an issue with gluten the bread and the barley soup would've given me problems right off the bat like dinner did and I wouldn't have felt better almost instantaneously after the diarrhea. I monitored my heart rate after eating the bread, and again, nothing unusual. No palpitations either. This morning I ate a banana and had half a can of soda, and bam, I got the symptoms almost right away. Unless Mountain Dew has gluten in it that I didn't know about, there shouldn't have been anything in that that would upset me.

Secondly, aside from these digestive issues I feel absolutely fine. No fatigue, no depression/irritability, nothing. I'm not even getting bloating (that I can tell, and given that I'm very slender I think it would be fairly evident), pain, nausea, or anything like that. 95% of the time it's like there's nothing wrong with me at all, which is why I'm so confused. I know adult-onset celiac is usally triggered by something, but there hasn't been anything in my life that could possibly be a trigger other than starting a new job at the beginning of September (and it's a very low-stress job, certainly less so than college was!). I haven't even been sick at all in almost a year. I used to get hormonal migraines but I haven't had any of them since early summer so I'm going to tentatively say that those are gone. I know celiac can cause migraines, but can it cure them? I should also mention that I'm still only having one or two bowel movements a day just like I always have, so that hasn't changed at all.

Does it normally come on so quickly with no apparent trigger, and then have the symptoms go away entirely for a week or more? That's what's making me think it's probably something else. I'm going to try to get to the doctor sometime this week and I figure I'll ask to have the blood tests run, but I was curious to hear what you guys think. I should also note that I've been taking seaweed supplements, but to my recollection the symptoms started before I started taking them and I stopped a few days ago anyway. I do have what seems to be a little bit of eczema on one arm, but it's not bilateral and it's only in the spot where I rest my arm on the desk both at work and when I'm at home on the computer. It doesn't itch, either.

So, any ideas what might be up?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMCM Rising Star

For me, one of the difficult things about getting and accepting a diagnosis was the inconsistency of the reactions. I could eat a gluten item one day and have no reaction, then a few days later something would make me very sick. I decided it was sort of an "overload" factor.....I might get away with something here, something there spaced out time-wise, but when I have fallen off the wagon and eaten gluten daily, I'll do pretty much OK for awhile, then notice some minor digestive issues such as you described, but then suddenly it's like a overflow condition gets reached and my body can't handle it any more and I get quite sick. My reactions have varied....the last time it was 6 hours of horrible nausea and vomiting. A couple of months ago it was severe pain in both hands and wrists. My reaction the time I actually got serious about getting a diagnosis was a long spell of vertigo 2 years ago, which really scared me. Now the pattern seems to be that I stay gluten free for lengthy periods, but when I break down and eat a few things over a few days, I now get sick with varying symptoms. The time from eating gluten to getting reactions is now much shorter, apparently.

My own experience was years of low-level digestive upset, occasional dizzy spells (nothing major, though), heart palpitations here and there, and this went on for 35+ years before the bad stuff kicked in. I don't really know what triggered it, and I'm not sure I actually had full blown celiac disease even though I have the gene. But at the very least I'm strongly gluten sensitive, and that's enough to take the need for the diet seriously.

I just read that fully 50% of Americans are thought to be noticeably gluten sensitive, and probably 70-80% have at the very least a gluten sensitive gene. This should not be dismissed as gluten sensitivity can do much the same damage as celiac disease. I've decided that most likely NO ONE should eat gluten.

Starshine Newbie

I did some more research yesterday and from the looks of it it actually seems more likely that what I have is hyperthyroidism (due to the palpitations, which are very frequent now, and other things that I hadn't thought might be symptoms like excessive sweating and sensitivity to heat), and I'm thinking that what caused it was those seaweed supplements giving me an excess of iodine. The timing is just too coincidental and it's making me suspicious. The symptoms are also almost a perfect fit for what's going on with me, so I think that's far more likely especially since it can cause digestive issues (due to your metabolism running too fast).

I'm going to make a doctor's appointment, so we'll see what she thinks.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,243
    • Most Online (within 30 mins)
      7,748

    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.