Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Your Advice


jnessa055

Recommended Posts

jnessa055 Newbie

hey ladies!! i have been a celiac since i could walk.. i was born with it and acutally almost died because my parents had no idea.. (no one in my family has celiac disease but me) ironic huh?? kind of sucks that i was picked out lol. but oh well. my problem is that i have tried to stay gluten free but i ALWAYS CHEAT! i do good for a little while and then i get unbelieveable cravings and i give in.. how do any of you deal with that?? i do soo well... i take my vitamins every morning i read lables like a freak lol and then one day i cheat.. and i pay for it.. and then i have to start all over again... any advice would be wonderful thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hez Enthusiast

I think all of us have different ways of coping/dealing with the cravings and dealing with celiac. For me I see gluten as poison. If feels like it too! I have horrible reactions to small amounts so that alone helps curb the desire. I will be sick for about a month from just slight cc.

I also have kids that at some point in their lives may have this. I try very hard to be a good example. If I cheated that would not set the example I want.

Find what motivates you to sticking to this diet. Change how you perceive gluten. Keep asking questions and someday someone else's idea will work for you!

Hez

JNBunnie1 Community Regular

Maybe you should pinpoint the foods that typically trigger a cheatfest and try to get some replacements, and ask for recipes here. Or start telling yourself, "I am giving my self cancer just like cigarette smokers" every time?

mamaw Community Regular

Okay, here's my ????? -- to begin with you said you had celiacs since birth & have have trouble with cheating... At such a young age who was supplying your "posion Wheat"

I would also think others in the family may also have celiac or intolerant at least but maybe present no ill-effects from the illness.There are millions of silent-celiacs in the world today... it's like a train wreck waiting to happen in the US...

We all have to find a way to not cheat EVER..... AS some call it "Posion" others have gotten so sick they don't even want to mention the word Wheat.. My silly thing was at the beginning was to make believe that I was in a foreign country & there was no flour available that I normally would use in baking so I had to experiment with strange flours I really never thought about. It was excitng to see what I could come up with to make & after time I now can duplicate almost everything I was missing in my wheat world.

Use your willpower & please don't cheat, your health is so important..remember the old saying " CHEATERS NEVER WIN"

We have two kids & two adults now on the diet.

blessings & health to you

mamaw

ptkds Community Regular

I just make sure I have safe alternates available to me all the time. If I get a craving for something, I try to find a substitute. 2 of the hardest things I have had to give up that are hard to replace is choc. chip cookie dough ice cream (and other flavors), and oreo cookies. I can make my own oreo cookies (there is a wonderful recipe on recipezaar.com). Pizza is a big one, too. I think what has helped me NOT cheat since I was diagnosed is my 3 kids who also have celiac. I know I probably would have cheated if it werent for them. But I also remind myself of how sick I would be when I eat gluten.

Just remind yourself of how sick you get when you get the urge, and then find a safe alternative to fill the craving.

Good Luck!

Offthegrid Explorer

I had a lot of problems with this, especially when I was first diagnosed. I was mad at the world, essentially, and everyone who ate gluten in front of me.

You know, the longer I stay gluten-free, the easier it is. But the second I get really, really hungry and there's nothing available to me is the time that I would cheat.

Now I've gotten really good about having foods with me. If I'm going out for the day, I take some homemade banana bread, cookies, potato chips, fruit, Larabars, so that whether I'm craving something sweet or having to watch someone eat something salty like french fries, I always have something available. That helps a lot.

And being more savvy has helped, too. The other day my hubby and I took a surprise trip away from home. I can walk in a convenience store and grab some potato chips, a banana and something to drink and I'm OK. It ain't the healthiest, but it still is healthier than eating at McDonald's!

Now that I can't have casein, I'm not craving pizza very much anymore at all. I just get so sick on it that it just isn't appealing anymore. But Amy's does make a very good rice pizza. Just add your own toppings because it only comes in cheese.

gfgypsyqueen Enthusiast

Since you have had celiac disease for so long and knowingly cheat, it's time to take a hard look at why. When do you knowingly cheat? With family, friends, on a date, or just hungry and no other choices available? Do you cheat over a certain food? Pizza and beer? Pizza would be my downfall. But I get so sick it is not an option to cheat. I think many of us carry food with us at all times. Raisins, nuts, cookies, candy are all easy to fit in a small bag and don't take refridgeration. Start carrying something with you or leave it in the car. eat before you go out to eliminate the snacking problem.

The convenience store snacks are perfect. Most carry fresh whole fruit like apples, bananas, or fruit cup. Water, drinks, soda, chips, and candy. It's not the best for you, but it is food and it can be gluten-free.

I found out a log time ago that I need to have gluten-free snacks in the house at all times. I need to know that I have choices and options. Now I keep a few cookies in the pantry and I am happy.

Let us know if you need recipes or ideas for food to carry with you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

I would also look at the times and situations that you cheat in and try to do something to change it.

The hardest times for me is when all my friends are eating delicious stuff and I can't have any of it. So I try to always have yummy dinners in my freezer so I can grab something on short notice. I bake a lot and bring things along to friend's houses to share. I've also trained them to buy gluten-free brands of food :)

jnessa055 Newbie

hey ladies thanks for all your advice..

well my family has no signs of celiac disease at all.... except me. that makes me wonder now. and makes sense because not everytime that i eat wheat i will get sick from it.. so thats why i cave in all the time.. even tho i know its hurting me inside i dont feel anything so i continue to eat the poison. when i was younger i was devasted that i had celiac disease and i made myself think that i didnt have it and ate whatever i wanted whenever i wanted for a long time until i got really really sick and ever since then i have been trying really hard to stick to the diet, but like i said i always end up failing. your advice has helped and this forum has helped.. even though i was diagnosed when i was 3 i still didnt know very much about the disease. i found a gluten free bakery/cafe and they deliever.. so hopefully it'll be good..

yes i love Amys foods!! the mac and cheese gluten free is one of my favorites.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.