Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Worry Too Much.

dandelionmom

Recommended Posts

dandelionmom Enthusiast
dandelionmom
Posted

I couldn't sleep last night because I was worried about how Julia would keep healthy when she goes off to college. That is 15 years away! What is wrong with me?!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


buffettbride Enthusiast
buffettbride
Posted

Oh my gosh! So do I! Especially about college since I know my daughter wants to live out of state to go to college.

She's only 10, :o so that's only 8 MORE YEARS!!! :rolleyes:

Thankfully, she'd like to go to college in NY so I feel better about that being a gluten-free-friendly place than just about anywhere from what I've heard.

shan Contributor
shan
Posted

You know what my fears are? That her social life will be a nothing, and that no one will like her (she is not yet 3!) but then i think that everyone has to worry about something! I also worry about who will want to marry or date someone who cant even be in a house where there is flour!

hathor Contributor
hathor
Posted

Rest assured, whatever you are worried about when your kids are little turns out not to be what the problems are when they actually DO go off to college :lol:

There is growing awareness of celiac. Even now, college students can go to the food service and work with them to get acceptable food. The latter have been dealing with allergies, diabetes, etc., for years. This is just one more thing. I think when gluten intolerant college students run into trouble it is when they don't talk to food service and just guess what might be safe.

Any child avoiding gluten for years will learn how to do so, what to look for, how to talk to restaurants, etc.

If someone is shallow enough that s/he wouldn't want to be with someone who can't eat a particular food, I say good riddance!

buffettbride Enthusiast
buffettbride
Posted
If someone is shallow enough that s/he wouldn't want to be with someone who can't eat a particular food, I say good riddance!

We assure our daughter of this CONSTANTLY and are trying to set a good example of what someone who cares for her would be like.

-Her home gets to be gluten free and a complete "safe" zone

-Her daddy even only drinks gluten-free beer now so he can smooch our daughter with no worries

We tell her that any boy who is worth anything won't hesitate to make those concessions to keep her safe.

Even at age 10, a boy in class who digs her is always showing off his gluten-free snack bar (his family is very organic and health conscious) to try and impress her. :D It is absolutely adorable.

kbtoyssni Contributor
kbtoyssni
Posted

If it makes you feel any better, I'm 25 and my social life is much better now that I'm gluten-free than it was before. By the time your children reach college, they'll be pros at the diet. They'll take everything you're teaching them now about the diet and how to deal with it with them when they go to college. You've got years to prepare them so I'm sure they'll be just fine.

buffettbride Enthusiast
buffettbride
Posted
If it makes you feel any better, I'm 25 and my social life is much better now that I'm gluten-free than it was before. By the time your children reach college, they'll be pros at the diet. They'll take everything you're teaching them now about the diet and how to deal with it with them when they go to college. You've got years to prepare them so I'm sure they'll be just fine.

If I could bottle your outlook and attitude and sell it to the masses, I'd be a very wealthy woman.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debmom Newbie
debmom
Posted

I can relate. My daughter was 15 when diagnosed and is 16 now. So college is just two years away. But she is SOOO good about her diet and has found so many things to eat that she enjoys. Occasionally she has a mini-meltdown, but overall she feels so much better that the diet isn't an issue.

I will still send her to school/ college with homemade goodies for all occasions. I make cakes and brownies and freeze them for parties and places she will encounter non-gluten free food that she used to enjoy. So far the kids seem to like my gluten free brownies better than the regular, so the only problem is that I'm baking them all the time.

Her girlfriends had a surprise party for her birthday last week and they were so cute. they shopped for all sorts of gluten free food and even worried about latex in balloons (which I assured them were OK) They seem so relieved to know why she was so sick and seem to cherish her friendship even more now that she is able to be back at school with them. So stop worrying. You will all adjust. I spent almost a year with sleepless nights, but rarely so anymore.

Kids are resilient. And if their friends are really friends, they will hlep your daughter cope with being gluten free.

dandelionmom Enthusiast
dandelionmom
Posted
  • Author

Thanks everyone! It is nice to know that I'm not the only one with these worries and the encouraging stories are so good to hear! My husband is fabulous and so supportive but he tends to laugh at me a little when I get going with my crazy worries. :)

darlindeb25 Collaborator
darlindeb25
Posted

I had to laugh at this thread, not because you worry, but because just last week I told someone that "worry" is my middle name. I worry that my kids have celiac and aren't in the frame of mind to do anything about it for now! I worry that my grandkids will have it and their parents won't realize it! I worry that I recognize the symptoms in friends and can't make them realize the seriousness of the disease. I also worry about the weather, my family, my friends--you name it, I worry.

I do not know how to change. Yet, the way I am is who I am and if I change, then who will I be. Now I will worry about that. :o

kbtoyssni Contributor
kbtoyssni
Posted
If I could bottle your outlook and attitude and sell it to the masses, I'd be a very wealthy woman.

Can I get a percentage of the profits? :P I do have a very positive attitude. Life's too short to spend it being negative and bitter about things I have no control over.

laurelfla Enthusiast
laurelfla
Posted

I can so relate to this thread! I am a big worrier, too, and I worry about that and try to change it all the time! ;) No luck yet...

I worry about when to introduce cereals to my baby and how to do that, and I am not planning to have children for at least three more years! I think developing Celiac or taking care of someone who has opens up an entire world of potential worry we couldn't even have imagined beforehand!

But to throw in my two cents, after diagnosis a little over two years ago, I met the man of my dreams who, once he found out what I had, investigated on his own to learn about the disease, still won't eat pizza in front of me, and readily accepted living in a completely gluten free house in December after we get married and eating gluten free at home for the rest of his life! He's more supportive than I ever would have dared ask for. So not to worry! These guys are out there! :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,749
    • Most Online (within 30 mins)
      7,748
    Susan Ughy
    Newest Member
    Susan Ughy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Any bad experience with King Arthur Gluten-free bread flour

      By Scott Adams · Posted

      You are right! The logo the have on their packages got me confused--it looks like they are less than 20ppm, not certified GF. Thanks for catching that! My brain also zeroed in on this "less than 10ppm" but I should have seen the rest...
    • Wheatwacked
      Still unsure.....

      By Wheatwacked · Posted

      Zinc glyconate lozenges (Cold Eeze) helps fight off viral respiratory infections by coating the mucous membrane cells to protect them from virus.  Zinc is an antiviral essential mineral. Choline deficieicy can be the cause of Non Alcoholic Fatty Liver Disease.  It is estimated by some experts that less than 10% eat the minimum RDA of around 450 mg.  It has also been connected to gallbladder disease.  Brain fog and high homosystein blood level is an independant indicator of cardiovascular disease. Eggs and red meat are the primary sources.  Three eggs or 10 cups of cooked brocolli a day.  Low vitamin D is a common denominator of autoimmune disease.  Is it a contributing factor or a result? I think that low vitamin D is maybe the main contributing factor.  Low vitamin D allows the immune system to run amuck. I would like to point out the many diagnosed with Celiac Disease went through several misdiagnoses, like gall bladder disease, and were repeatedly tested negative and then one day tested positive. Regardless of your diagnosis, you should avoid gluten, you mention it in your first post : "When I eat gluten I get a lot of mucus with my stool and most of the times it’s quite thin. As soon as I take gluten away from my diet my stool becomes normal". It can take six months to several years to heal completely.  How long I believe is directly related to how quickly you identify deficiencies and correct. Essential to my recovery:  Thiamine, 10,000 IU vitamin D3 a day, maintaining 25(OH)D at 80 ng/dl (200 nmole/L), 600 mcg Liquid Iodine, Phosphatidyl Choline.  And of course: Gluten Free.
    • RMJ
      Any bad experience with King Arthur Gluten-free bread flour

      By RMJ · Posted

      Not all of King Arthur’s gluten free flours and baking mixes are certified gluten free. This bread flour is not. 
    • knitty kitty
      Still unsure.....

      By knitty kitty · Posted

      Bump up your thiamine dose!  You can take more if you don't feel anything after the first one.  Must needs getting to that 500mg. We need more thiamine when we're fighting an infection.  Zinc will help fight infections, too, as well as Vitamin C. They all work together. Hope you feel better!
    • knitty kitty
      Inflammation and Menier’s disease link?

      By knitty kitty · Posted

      Welcome to the forum, @MagsM, I had Meniere's.  Meniere's is caused by deficiencies in Thiamine, Niacin, and Vitamin D.  Celiac Disease causes malabsorption which affects all the essential vitamins and minerals. The B vitamins work in concert together like an orchestra.  Having a Folate deficiency suggests other B vitamin deficiencies as well.  Folate needs Pyridoxine B6 and Thiamine B1 to work properly with Cobalamine B12.  Doctors are not required to take many courses in nutrition, and often don't recognize deficiency symptoms or how to correct them.  Blood tests are not an accurate measurement of vitamin deficiencies inside cells.  Low iron correction requires copper and zinc as well as Thiamine and Riboflavin.    Yes, anemia can affect the production of antibodies and cause false negatives on tests for Celiac.  Diabetes and Thiamine deficiency can also cause false negatives.  An endoscopy with biopsy would be a more accurate method of diagnosis for you.   I studied Nutrition before earning a degree in Microbiology because I wanted to know what the vitamins were doing inside the body.  Vitamins are chemical compounds that the body cannot make, so we must get them from food and supplements.  After a few vertigo episodes and suddenly going deaf for a while, I researched and found that supplementing with  Thiamine in the form TTFD (tetrahydrofurfuryl disulfide), Niacin and Vitamin D resolved the issue.   Please ask your nutritionist for further vitamin deficiency tests.  A B Complex, TTFD, Vitamin D should help you recover quickly.   Keep us posted on your progress!
×
×
  • Create New...