Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Been 6 Weeks Gluten Free And Still Feel Awful...


i-miss-cookie-dough

Recommended Posts

i-miss-cookie-dough Contributor

heya's!

so, i have been off the big G for 6 weeks now.

after 4 or 5 years of being fatigued and nauseas,

i was diagnosed with celiac.

always thought my symptoms were from

my antidepressant - and i have tried the gamut -

and couldn't find a ONE that didn't make me

tired and nauseas.

though NOW

it seems like the fatigue and nausea

could be from the celiac!

hooray!

was so excited when i found out

as i had been thinkin i would

feel like crap for the rest of my

life...

so its been 6 weeks.

and i have kicked gluten to the curb.

and really only eat things that i KNOW are gluten free.

and i still feel like crap.

tired

nauseas

and in the late afternoon,

my face gets really hot and flushed.

where is my relief?

where is the "i stopped eating gluten and 2 days later felt like a new person"??

still feel like the

old blegh person.

blah.

hmmm...ok...THANKS for listening!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

Have you tried eliminating dairy? Many celiacs are temporarily intolerant until they heal.

Have you checked all your personal care products, pet food, gotten rid of wooden spoons?

What is your living situation? Just trying to figure out if there are ways you could be getting contaminated.

i-miss-cookie-dough Contributor
Have you tried eliminating dairy? Many celiacs are temporarily intolerant until they heal.

Have you checked all your personal care products, pet food, gotten rid of wooden spoons?

What is your living situation? Just trying to figure out if there are ways you could be getting contaminated.

thanks so much for your reply!

i have not eliminated dairy.

i actually eat yogurt for breakfast

every day and milk

with my gluten free cereal

as my bedtime snack : )

been working with a dietician

and she said not to go off dairy?

hmm...

but maybe i should try.

haven't gotten rid of wooden spoons -

which i use a lot for

regular baking

as well as gluten free baking

and cooking.

and side from makeup,

haven't checked my other products.

hmmm...i dont eat pet food.

: )

i mean - i dont have pets.

think its really possible that

old flour on a wooden spoon

or yogurt could keep

my symptoms goin?

thanks again...

Offthegrid Explorer

When I eat dairy, my symptoms were very much like when I ate gluten. For a long time, I simply assumed I was getting glutened somewhere.

Try eliminating ALL dairy. Quite a few people on this board did that and then were able to reintroduce dairy after 6 months. I've only eliminated casein (the protein in dairy -- not talking about lactose here) a few months ago but then also had to eliminate soy.

Guest j_mommy

YEs....you need to replace wooden cooking utensils, any pots and pans that are scratched, old sponges for cleaning, toasters, I'd give your microwave a good cleaning as well as your stove. These things can all have "old" gluten in/on them

I would definetly check you chapstick/lipstick ect. Toothpaste is another biggie.

kbtoyssni Contributor

The problem with dairy is that the lactose is digested by the tips of your villi. If you villi are damaged from celiac, it will be hard for you body to digest it until you heal. Maybe taking lactaid at the same time would help?

I think it's nearly impossible to properly clean wooden spoons. I don't care if there's a little rice residue stuck in them, but if they've been used for gluten products in the past, I'd be very nervous about continuing to use them. I'd also consider replacing badly scratched pots and pans, getting rid of scratched tupperware, replacing your collindar/strainer, definitely get a new toaster, scrub the cupboards. The other day I was going through my mum's cookie cutters and found wheat flour residue at the bottom of the container - we've been gluten-free for over two years!

i-miss-cookie-dough Contributor

this is all so helpful.

i will get rid of the spoons tonight!

and SO INTERESTING

that your lactose

symptoms were just like

the gluten ones!

i have been having dairy a

few times a day,

so maybe NOT dairy is the key

to starting to feel better!

SO!

another quick question about the lactose --

do i look for things that say

lactose free?

or

caisin free

or

dairy free?

do they have to be free of all 3 things?

all very confusing...

and would that mean i just

get soy yogurt and soy milk?

b/c i saw one soy yogurt

today that says

"our active cultures contain milk"??

huh?

:huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

I'd just go totally dairy free. If it works and you feel much better, you could try to figure out if you are just lactose intolerant.

imhungry Rookie

Wow! Did not know about the wooden spoons. I sure like them... but I could get new ones.

If you are going to elimiante the dairy you look for all three, and things might say dairy free like soy products that still have casein in it. For example soy cheese... which makes me awful mad. Anyhow, look for all three, get to feeling better and then experiment. That's my suggestion.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,918
    • Most Online (within 30 mins)
      7,748

    Dizzyma
    Newest Member
    Dizzyma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.