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glutenfreewife

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glutenfreewife Rookie

I have found out I can eat regular white bread products, but cannot eat it everyday as it causes me to have stomach cramps. I have found if I eat too much of bread egg, or milk products I get a rash on my arms. :o

Any suggestions?

Anna


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Fiddle-Faddle Community Regular

Hi, Anna, welcome aboard!

You posted elsewhere that you have already been told to go gluten-free due to gastro problems. That's your answer right there. I understand that you don't seem to feel any symptoms if you eat white bread occasionally, but based on what you've written, it sounds quite likely that you have problems with gluten.

This means that your immune system is not only reacting to the gluten by attacking the gluten; your immune system is also attacking YOU. Gluten is a common trigger for many, many autoimmune disorders. You might feel fine after eating one piece of white bread today, but inside, your immune system might be systematically destroying, say, your thyroid. You wouldn't feel any noticeable symptoms--today. But in time, whatever your body is attacking will fail.

Wouldn't it be better not to swallow what basically amounts to poison in the first place?

Here is a partial list of gluten-induced or gluten-exacerbated autoimmune disorders:

Graves' Disease

Hashimoto's thyroiditis

Lupus

MS

Rheumatoid arthritis

fibromyalgia

chronic fatigue syndrome

Inflammatory Bowel Syndrome

Most of us here think that Inflammatory Bowel Syndrome is just a misdiagnosis for celiac; fibromyalgia may very well fall into that category as well.

In addition, Lyme disease and mercury poisoning cause all kinds of problems, including gluten intolerance. They are discussed on other threads on this board.

There are many gluten-free breads available (some taste better/worse than others), and some really ridiculously easy and delicious gluten-free bread recipes floating around. You could get your bread fix without having your body attack itself.

There is an enormous amount of information here on this site, and on the parent site (celiac.com). All of us here started out as newbies at one point or another. Read as much as you can, ask whatever you want, and hopefully you'll soon be posting how much better you are feeling!

mftnchn Explorer

Agreed.

And your rash could be biopsied perhaps for DH.

mamaw Community Regular

I agree with the others--- you need to stay away from wheat & gluten. There could be a silent internal war going on within your body that you don't know about....you are putting yourself in a danger zone...PLEASE do not partake of the wheat & gluten.........

mamaw

glutenfreewife Rookie

I tried I'm not sure how to spell it....Kinnikik today. It was good! :D I had toast and soymilk. (I can tolerate soy) Feel better already. Have more energy.

Anna

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
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    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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