Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Please Pray


confused

Recommended Posts

nutralady2001 Newbie

So sorry to hear about your b-in-l's death Paula and the problems around the funeral, will say a few prayers that you can get everything sorted out at this traumatic time xx


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

I'm so sorry you are going through even more grief.

{{{{HUGS}}}}

Cheri A Contributor

Paula, I am just seeing this thread after being out of town. ((Hugs)) to you and your family. I'm so sorry about your bil's passing, and all of the family drama that's going on. I'll say a prayer for comforting peace and wisdom for you and dh.

Canadian Karen Community Regular

Paula,

I just saw this. How tragic it is for you and your husband to have to go through not only the death of his brother, but all the pettiness that has come out in regards to the funeral.....

Sending you as many strength vibes as I can muster up! Hugs to you and your hubby....

Take care,

Karen

confusedks Enthusiast

Paula,

I am so sorry for your loss. :( I hope everything works out for your family.

Kassandra

Glutenfreefamily Enthusiast

Im sorry your struggling with his family, we are still dealing with my grandma's stuff and its been almost a year. I do know they bury people in the winter as my grandma was buried in December. Is there a way you can get a payment plan since others arent willing to help? I know our local funeral home gives payment plans for families.

confused Community Regular

Thanks everyone, we made the arrangements to have him buried in 3 weeks, we made the arangements for the memorial and burial, we called the bank to get the money. we had everything planned out. Then the sisters got pissy and said no we wont do it til the spring, so we were like ok fine, we will wait til spring. Well now they dont want to bury him. This is what they want cause they dont want to spend money on the burial(which we were paying for in full) and now dont want an memorial in our hometown for others can say there goodbyes. They also told hubby he could pick the date for the memorial cause we are supposed to get a major storm on friday. Well then they called and said it will be thursday and friday. They keep calling now and hubby is just refusing to answer the phone. cause we are done with their lies.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Joni63 Collaborator

Hi Paula,

I just wanted you to know that I am so sorry for all you are going through. We had a similar situation when my husbands Dad died 3 years ago. The hospice nurse told us it was so common for families to have big problems and become bitter over the death of a family member. It's sad, but so true. My husbands brother and his wife stopped speaking to us when they found out my husband was executor of his Dad's will. My children still ask me why they can't see their cousin. It's very sad.

Anyway, I just wanted to send some extra hugs to you and your husband. I know how difficult and draining this situation can be.

Take care,

Joni

  • 2 weeks later...
confused Community Regular

I just wanted to thank you for helping me get threw all of this and for listening to me cry and vent. We will be buryuing him this spring with another memorial and big celebration of his life. this holiday is going to be so hard without him, we are trying to get into the spirit but it is so hard to do. I did do a little memorial here for him, i got wreaths and big bows and put their names on the fence, of all the people we have lost this yr, i put one for my neighbor we lost, my grandma i lost, my bil, mil and my grandparents, it looks very nice and it is bringing us some closer in the whole matter.

But now that im starting to think straight i wanted to thank you all again, i could not have made it without all of u to listen to me.

paula

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      313

      Terrible Neurological Symptoms

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      313

      Terrible Neurological Symptoms

    3. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      313

      Terrible Neurological Symptoms

    4. - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Reverse Osmosis (RO) Water

    5. - Scott Adams replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Water filters are a potential problem for Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,579
    • Most Online (within 30 mins)
      7,748

    Sugarmapoops
    Newest Member
    Sugarmapoops
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
    • Scott Adams
      There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated search summaries are not authoritative sources, and they often speculate without documentation. Major manufacturers design filters for water purification, not food processing, and gluten contamination from a water filter would be extraordinarily unlikely. For people with celiac disease, properly functioning municipal, bottled, filtered, or distilled water is considered gluten-free.
    • Scott Adams
      Bottled water, filtered water, distilled water, and products like Gatorade are naturally gluten-free and do not contain gluten unless contaminated during manufacturing, which would be highly unlikely and subject to labeling laws. Gluten is a protein from wheat, barley, or rye—it is not present in water, minerals, plastics, phosphates, bicarbonate, or electrolytes. Refrigerator filters and reverse osmosis systems are not sources of gluten, and there is no credible scientific evidence that distilled or purified water triggers celiac reactions. If someone experiences symptoms after drinking a specific product, it is far more likely due to individual sensitivities, anxiety around exposure, or unrelated health factors—not gluten in water.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.