Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease And Bleeding Disorders

jmn

By jmn
in Related Issues & Disorders

Recommended Posts

jmn Rookie
jmn
Posted

Hello:

My 17-year-old son and I both have celiac disease. He had four wisdom teeth extracted 12 days ago. We've been back to the oral surgeon twice with complications. His wounds won't stop bleeding and aren't healing correctly. This happened several years ago when he had teeth extracted before orthodontia.

Is anyone aware of a connection between bleeding/clotting disorders and celiac disease?

Thanks.

JMN

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


fitgirlie Newbie
fitgirlie
Posted
Hello:

My 17-year-old son and I both have celiac disease. He had four wisdom teeth extracted 12 days ago. We've been back to the oral surgeon twice with complications. His wounds won't stop bleeding and aren't healing correctly. This happened several years ago when he had teeth extracted before orthodontia.

Is anyone aware of a connection between bleeding/clotting disorders and celiac disease?

Thanks.

JMN

I don't know of any "medical" disorders, but I know any time I have ever had any surgery/procedures done,I have encountered the same reaction.

Nyxie63 Apprentice
Nyxie63
Posted

A lot of Celiacs are deficient in vit K, which is essential for blood clotting. Could be why he's still bleeding.

kevsmom Contributor
kevsmom
Posted
A lot of Celiacs are deficient in vit K, which is essential for blood clotting. Could be why he's still bleeding.

I agree. before I was diagnosed, I would get bruises all over, for no reason at all. It turned out that my body was not absorbing Vitamin K. My Platelet level was off the charts at 909 (Normal range is 140-415).

Cindy

trents Grand Master
trents
Posted

Has your son had any blood work done recently to check for platelet levels or other clotting factors? That would seem to be the place to start. You should ask your doctor to order a CBC and other tests that check for the various clotting factors.

Steve

BRUMI1968 Collaborator
BRUMI1968
Posted

I have Celiac and ITP (Idiopathic thrombocytopenia purpura). The ITP is when one does not have enough platelets - it's autoimmune. I'm no longer on any medication and I'm just fine. But you should have your son checked - a CBC will do the trick (Complete Blood Count).

confusedks Enthusiast
confusedks
Posted

What numbers specifically do you look for on the CBC. I am about to have a PICC line put in and they are going to run tests to find out if my blood will clot normally. I had labs done not too long ago and they may have already taken it...what do you look for?

Kassandra

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nyxie63 Apprentice
Nyxie63
Posted
What numbers specifically do you look for on the CBC. I am about to have a PICC line put in and they are going to run tests to find out if my blood will clot normally. I had labs done not too long ago and they may have already taken it...what do you look for?

Kassandra

When they test mine before getting a thyroid biopsy done, it's usually a separate test in addition to the CBC. They test PT, PTT and platelets. If they want to look more in-depth, there are other additional tests they can run.

jmn Rookie
jmn
Posted
  • Author

Thanks to all of you. Now I have something to go on.

JMN

loraleena Contributor
loraleena
Posted

There are a few of us on here with ITP mentioned earlier. Get a CBC. His platelets should be above 150,000.

nikki-uk Enthusiast
nikki-uk
Posted

My husband (a coeliac) has had problems with easy bleeding and low platelets.

At the moment his haemotolgist is happy with his levels (although not as good as the average person, they are not dangerous) - he's not been dx with ITP though.

I'm not sure any of the docs know exactly why this has been occuring for my hubby :blink:

bklyn Enthusiast
bklyn
Posted

I have the opposite problem - high platelet count. I am due for a check up soon, my hematologist initially thought celiac was causing high platelets, but my Ttg #'s are negative, so he's not sure why I would have high platelets (which can be caused by inflammation).

jmn Rookie
jmn
Posted
  • Author

OK. I dug out a CBC my son had last summer. Mean Platelet Volume (8.3) and Platelet Count (250) were both within the normal range. Does this mean we can assume it is a vitamin K deficiency? I've stocked up on green leafy vegetables. We'll see if that helps.

JMN

  • 5 weeks later...
illini02 Newbie
illini02
Posted

Before I was diagnosed with Celiac I had problems with bleeding/bruising from scurvy - vit C deficiency. It often leads to problems with bleeding gums and bruising. Believe it or not my doc decided to test me for celiac because of the scurvy. Smart doc!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    2. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    4. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.