Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extreme Pain And Bizzare Symptoms!


num1habsfan

Recommended Posts

Fiddle-Faddle Community Regular
I haven't eaten anything out of the ordinary, that's for sure. My diet mainly consists of breads and pastas.

~ Lisa ~

I'm assuming you mean gluten-free breads and pastas??

That would give ME terrible tummy pains! Now that my intestines have healed, I can eat occasional gluten-free bread and pasta, but not a lot, or else it feels like I've swallowed a brick, which then seems to turn into glue inside me.

Is it possible that, in addition to likely gall bladder problems, your diet is screwing up your body? I don't mean to be pointing fingers of blame at you, I'm sure you just didn't know better, but a diet of gluten-free bread and pasta is nearly as bad for you as a diet of gluteny bread and pasta! THe whole point is that all those starches turn to glue inside your body, and you need fruits and vegetables. I know you wrote in your sig that you react to most vegetables and that is certainly possible, but the reaction could also have been from an unhealed gut.

You might want to PM Ursa Major, who has successfully dealt with an ENORMOUS number of additional food intolerances, and find out what worked for her. I remember reading that she was able to tolerate some specific veggies if they were cooked enough.

Are you able to have brown rice? That at least has some fiber in it, though it seems to me that I read that brown rice pasta, for some reason, does not have nearly as much as plain brown rice.

Please let us know how you are doing!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 93
  • Created
  • Last Reply
2kids4me Contributor
Oh gees, that would be the last thing I need. I wish I could just phone home and ask the doctor myself what to do!!! Because if I went to ER here it may be like last time that I don't get out til tomorrow and don't get to eat or drink anything and can't take my meds. Think that would be worse.....do these extreme random issues EVER stop happening? Man i hate being unhealthy.

If I go to a doc I know the first thing they'll accuse of and test for: being pregnant :angry:

~ Lisa ~

White stool usually indicates a liver /gallbladder problem as stated in prior post.

Dont get so upset about them wanting to do pregnancy test. Dont receive it as an accusation! Do you know how many young women come to ER saying - I can't possibly be pregnant.. but they are, and have suffered an ectopic pregnancy that is bleeding or perhaps rutured. This is medical emergency that the woman will die if not diagnosed.

They run to test to rule out a pregnancy because that is good medicine...not becasue they think you are pregnant or lying about anything.

I suffered severe abdominal pain a couple of years ago - turned out to be a ruptiured cyst on my ovary...they still did a pregnancy test [and I have had tubal ligation done].

Sandy

Now get that white poop checked out...

num1habsfan Rising Star

OK guys, i'm definitely NOT feeling any better, in fact worse here, so I'm going to the office now in a few minutes.....this could be an interesting day. Send me lots of luck....

~ Lisa ~

Fiddle-Faddle Community Regular

Luck, good vibes, and prayers sent your way!!!!!!

ravenwoodglass Mentor
Luck, good vibes, and prayers sent your way!!!!!!

Ditto Please let us know how your doing when you can.

jerseyangel Proficient

Ack! I'm just seeing this now--hope it went ok and I'll be waiting to hear how you did.

num1habsfan Rising Star

Finally home, got out of hospital 2:30 am....to exhausted, gonna have some tea and food then sleep. I'll post details tomorrow. All i'll say for now is the only relief I got is some tylenol and am still clueless to what the problem is. *cries*

~ Lisa ~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

(((((((HUGS))))))))

I hope they figure this out soon. They hopefully at least did some blood work.

Glutenfreefamily Enthusiast

Im sorry! Did they do an u/s on you?

jerseyangel Proficient

Oh Lisa--I'm sorry :(

Offthegrid Explorer

How awful! I'm thinking about you ...

num1habsfan Rising Star

Here's the details:

1:30pm got to walk-in clinic. Only had to wait 30 mins to get in to see a doc. He felt my stomach and when he pressed on the side around gallbladder I said "that really hurts". He said I definitely am tender on the gallbladder. He then sent me to the lab which is in the same building for bloodwork and to give a urine sample. He said wait there for results. I came back to his office and he wanted to do an ECG on me because of the chest pains I talked about. Went back to his office and he said he's not quite sure what it is but to go to ER. Apparently something showed up in the urine. He asked me which hospital I live the closest to.

This is where the day goes from bad to worse: He called there to ask for a specific doc who could see me immediately because he didn't want me waiting, since he wanted more tests done and to see them ASAP. He gave me a copy of the bloodwork/urine samples and put it in an envelope with the docs name. WELL they said I couldn't. I sat there for 2 1/2 hours then told them AGAIN I'm supposed to see that certain guy and finally I got the answer to why I haven't been called in yet: they said I can't see anyone specifically because they are just a general doc and I have to wait just as everyone else. Next time I go home to Canora I'm going to the gov't office and reporting this. If I had things arranged to see someone IMMEDIATELY that means taking it seriously. Now I don

JNBunnie1 Community Regular

I think you should inform the walk-in clinic doctor of how you were treated at the hospital and also, make him tell you what in your urinalysis made him send you to the ER in the firstplace. What tests do they have at the ER that the walk-in clinic doc didn't have?

num1habsfan Rising Star
I think you should inform the walk-in clinic doctor of how you were treated at the hospital and also, make him tell you what in your urinalysis made him send you to the ER in the firstplace. What tests do they have at the ER that the walk-in clinic doc didn't have?

Yeah I'll tell him when I go take back a stool sample. He wanted me to have an ultrasound...and I was supposed to be put on IV too. It's what he told that guy I was supposed to see..

~ Lisa ~

Darn210 Enthusiast

Yep, I would contact the walk-in doc. Maybe he can get ahold of your x-rays and bloodwork that were done yesterday and interpret them . . . he had something in mind when he sent you.

I'm sorry you didn't get your answers. I hope you will get them soon and get some relief!!!

Ridgewalker Contributor

This is where the day goes from bad to worse: He called there to ask for a specific doc who could see me immediately because he didn't want me waiting, since he wanted more tests done and to see them ASAP. He gave me a copy of the bloodwork/urine samples and put it in an envelope with the docs name. WELL they said I couldn't. I sat there for 2 1/2 hours then told them AGAIN I'm supposed to see that certain guy and finally I got the answer to why I haven't been called in yet: they said I can't see anyone specifically because they are just a general doc and I have to wait just as everyone else. Next time I go home to Canora I'm going to the gov't office and reporting this. If I had things arranged to see someone IMMEDIATELY that means taking it seriously. Now I don

Glutenfreefamily Enthusiast

That is crazy that they didnt do an u/s on you! Xray is not going to show if your gallbladder is acting up. I would call the walk in doc and tell them how you were treated and if they cannot get the testing done make an appointment with your primary dr to thoroughly get it checked out. I never got anywhere with the ER either.

Some insurances are a pain in the arse about gallbladder removal. If its your gallbladder you might need tests to show how much functioning you have left in it. Some insurances require it to be below a certain percent of function before they will take it out which is what I think Ridgewalker is talking about. I was very very lucky that my insurance didnt require it, even the nurse at the office was shocked. If it is your gallbladder you need to get these tests underway and set a baseline for function levels if they make you wait. Gluten causes gallbladder problems too so it might be damage throughout the years.

Please pursue this and dont let this setback stop you.

Phyllis28 Apprentice

Lisa,

Definitely make sure the Dr. explains your test results. According to my doctor when the gallbladder is "sick" the liver and pancreatic enzymes can be elevated. That is why they suspected gallstones with me. I found some relief from a very low fat diet and using a heating pad where the pain was until I was able to have the gallbladder removed.

Also, if you are not feeling well enough to fight your way through the health care bueracracy (sp??) you might want to find someone (friend, teacher, school staff ect...) who can assist you, the kind of person who won't take "No" for an answer. It is tough enough just being sick.

Hope you get better very soon.

elye Community Regular

(((((((HUGS)))))))))))))))))), Lisa!

I know you're Canadian, so you don't need to worry about insurance coverage, but this is a perfect example of how "univeral" health care just doesn't cut it anymore!

Keep fightin' like the amazing Roughrider fan I know you are! :):)

newceliac Enthusiast

Some bloodwork and tests don't detect a gallbladder problem if you don't have gallstones.

Ask the doctors to do an ejection fraction test on your gallbladder. I had my gallbladder removed several years ago and the problem showed up on an ejection fraction. This test measures the pressure and frequency of bile injecting from through your gallbladder. If it is too low, it indicates a problem.

I did not have gallstones but when the removed the gallbladder, the lining was thick and velvety green.

Gallbladder problems can cause intense pain.

Hope you get to feeling better.

num1habsfan Rising Star

Yeah once I get my stool sample I'll ask to see that same guy at the walk-in. I realized an easier way to file my complaint -- get that phone # for the Regina health region. Would be better than filing the complaint locally..

The doc in the walk-in is the one who said I was supposed to be on IV and get an ultra-sound so I hope there's a way I can get one of these done.

I forgot to mention that the doc at ER gave me the phone # to find a family doctor here in the city, so once I get back to having cell minutes in a few days I'll give it a call and find one.

Thanks everyone for your hugs and supports. I will continue to need you for the next few days...

~ Lisa ~

ravenwoodglass Mentor

We are all here for you to the extent that we can be. It sounds like a real nightmare experience. I hope your pain is relieved soon. It does sound like it could be gallbladder or liver problems and the way you were treated was terrible. I would try to use a payphone or a freinds phone to get ahold of a doctor rather than waiting till I had minutes. If you can call without waiting please do so.

num1habsfan Rising Star

Oh gees. Now i have my time of the month AGAIN even tho it just finished about 2 weeks ago. So now the stool sample will have to wait til its over, meaning so will my visit with the doctor have to wait :(

~ Lisa ~

Fiddle-Faddle Community Regular

If you have the name of the doc at the walk-in clinic, maybe you can send him a registered letter? Tell him everything that has happened since you left his office, and repeat what his instructions (IV and unltrasound) were and the fact that those things never happened. Send a registered copy to the hopsital where the ER was as well and keep a copy for yourself.

The fact that the letter is registered mail might motivate SOMEONE to do something for you. Sometimes just documenting things is enough to scare people into thinking a lawsuit is coming, and then they scramble to cover their tushes.

You have had such LOUSY medical care for so long. From now on, I suggest you keep copies of absolutely EVERYTHING. IF the walk-in clinic doc gives you a letter with recommendation for ultrasound and IV, make a copy of it or ask the receptionist to make a copy for your records.

Hope you feel better soon!

num1habsfan Rising Star
If you have the name of the doc at the walk-in clinic, maybe you can send him a registered letter? Tell him everything that has happened since you left his office, and repeat what his instructions (IV and unltrasound) were and the fact that those things never happened. Send a registered copy to the hopsital where the ER was as well and keep a copy for yourself.

The fact that the letter is registered mail might motivate SOMEONE to do something for you. Sometimes just documenting things is enough to scare people into thinking a lawsuit is coming, and then they scramble to cover their tushes.

You have had such LOUSY medical care for so long. From now on, I suggest you keep copies of absolutely EVERYTHING. IF the walk-in clinic doc gives you a letter with recommendation for ultrasound and IV, make a copy of it or ask the receptionist to make a copy for your records.

Hope you feel better soon!

I'm not quite sure of his name :huh: I remember his last name, but I don't know the address or whatever. I'll hopefully be going back soon...I'm still so cranky from this, more than you can probably imagine. Today again I broke out in tears just from not being able to handle pains jabbing me in two places...

~ Lisa ~

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,957
    • Most Online (within 30 mins)
      7,748

    Dogdad21
    Newest Member
    Dogdad21
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.