Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update

sillyactsue

Recommended Posts

sillyactsue Explorer
sillyactsue
Posted

I haven't been here for a while. Bogged down in forensic physchologist, lawyer, 3 year old and work. I had no time to do anything extra but breath. Yes that was an extra. Good news, though. Some of you may remember my soon to be ex-husband was trying to accuse me of neglect because my now 3 year old was not growing. I found a doctor with celiac disease in Ok. City. He diagnosed her with gluten/casien sensitivity. He sent her to an endocrinologist who diagnosed her with intro-uterine growth retardation (probably due to a small or unhealthy placenta). She will always be around the 5th percentile. Gluten/casien prevents her from gaining weight. She has been gluten free and is gaining slowly but surely. With his testimony and with the forensic physchologist testifying that my husband is unsafe around children things are looking much better. We do not know if he will get a few hours a week supervised visitation from now on or if he will lose parental rights all together. Either way the stress level at my house has gone down to a somewhat normal level. Things are looking up. I look forward to being here on the forum again. Thanks everyone for being here.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

That is great news!

I have been thinking about you, how nice to hear things are working out. :D Thanks for posting, because I really needed to hear some good news.

Laura

jerseyangel Proficient
jerseyangel
Posted

That is great news--I'm so glad that things are working out for you and the little one :)

Welcome back!

blueeyedmanda Community Regular
blueeyedmanda
Posted

That's wonderful news :):)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Glad to hear that things are going better for you!

I just wanted to let you know that my #1 son was born at 37 weeks weighing 4 1/2 pounds, was diagnosed with IUGR, and has probable gluten/casein issues.

I had him on "gluten-lite" even before I knew about gluten, just because I didn't think that there was much nutrition in bread. I went heavy on fish, meat, chicken, legumes, veggies, and fruit, and it really paid off.

He is now, at age 12, taller than I am, and, as far as we know, healthy.

So your little peanut may grow, too! And if she stays small, it will probably be because she is genetically meant to be small.

Best of luck to you both!

babygirl1234 Rookie
babygirl1234
Posted

im glad that everything is working out for you :)

sillyactsue Explorer
sillyactsue
Posted
  • Author

Thanks everyone for the welcome back and encouragement. It is good to be back here and focusing on what is important to keep the little one healthy and happy.

:D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to science enthusiast Christi's topic in Coping with Celiac Disease
      1

      Sugar intolerance 10 years into gluten-free diet

      Welcome to the celiac.com community, @science enthusiast Christi! I don't have a problem with disaccharides but I do with polysaccharides and complex carbohydrates which are so common in many gluten free processed foods. Gar gum, xanthan gum, pea fiber, chicory root, inulin etc. All those "prebiotics".
    2. science enthusiast Christi
      - science enthusiast Christi posted a topic in Coping with Celiac Disease
      1

      Sugar intolerance 10 years into gluten-free diet

      Hey Celiac friends, I'm wondering how weird I am. About a year ago, I started getting bloated all the time and having extremely smelly gas. Lots of it. I had to avoid people, keep windows open, etc. It really upended my life in a somewhat horrifying way. I figured out that if I didn't eat any sugar, the symptoms mostly resolved. With more experimentation...
    3. trents
      - trents replied to Healthierbody2026's topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

      Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease...
    4. Heatherisle
      - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      35

      Blood results

    5. Healthierbody2026
      - Healthierbody2026 posted a topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

      Hi I was recently diagnosed with gluten sensitivity I’m very new at this and trying learn everything I can about everything dealing with this any advice suggestions would be appreciated
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,462
    • Most Online (within 30 mins)
      7,748
    jjwejackso
    Newest Member
    jjwejackso
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Sugar intolerance 10 years into gluten-free diet

      By trents · Posted

      Welcome to the celiac.com community, @science enthusiast Christi! I don't have a problem with disaccharides but I do with polysaccharides and complex carbohydrates which are so common in many gluten free processed foods. Gar gum, xanthan gum, pea fiber, chicory root, inulin etc. All those "prebiotics". 
    • science enthusiast Christi
      Sugar intolerance 10 years into gluten-free diet

      By science enthusiast Christi · Posted

      Hey Celiac friends,  I'm wondering how weird I am. About a year ago, I started getting bloated all the time and having extremely smelly gas. Lots of it. I had to avoid people, keep windows open, etc. It really upended my life in a somewhat horrifying way. I figured out that if I didn't eat any sugar, the symptoms mostly resolved. With more experimentation, I found out that I'm intolerant to any disaccharides (things with sucrose, maltose) and some starches. I've since figured my small intestine stopped making some digestive enzymes. Since Celiac causes the immune system to attack the small intestine, I wonder if I was getting low-level gluten contamination from my environment. (My family eats gluten in our home, and I have to use a shared kitchen at work for lunch.)  I am apparently among the 2% of Celiacs who also have a similar reaction to soy. I've been avoiding both gluten and soy for over a decade now, but sometimes you just get poisoned. For example, I love my houseplants and bought an insect-preventing spray online. After spraying it on all my houseplants, I found out it has soybean oil. Sure enough, two days later I was sick. Soy is such a big ingredient used in everything, I doubt it's possible for me to avoid it completely. Everyone uses lotions with soy on their hands, so every doorknob and switch and item I touch is risky for me.  I was just wondering, has anyone else had carbohydrate intolerance after or related to Celiac? My doctor doesn't know anything about it, especially since I can still digest lactose. Wondering if there are other people out there with similar stories. If eating was complicated before, now it's a bit crazy to be honest.  Thanks, Community! 
    • trents
      New at gluten sensitivity

      By trents · Posted

      Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease (aka, "gluten intolerance")? The symptoms of these two conditions overlap. Celiac disease has an autoimmune base and so, there are tests that can be run to detect antibodies in the blood that are produced. Celiac disease does damage to the small bowel lining because of the inflammation present from the autoimmune attack. This is not the case with NCGS for which there are no tests. Celiac disease must first be ruled out in order to arrive at a diagnosis of "gluten sensitivity". 
    • Heatherisle
      Blood results

      By Heatherisle · Posted

    • Healthierbody2026
      New at gluten sensitivity

      By Healthierbody2026 · Posted

      Hi I was recently diagnosed with gluten sensitivity I’m very new at this and trying learn everything I can about everything dealing with this any advice suggestions would be appreciated 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.