Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update


sillyactsue

Recommended Posts

sillyactsue Explorer

I haven't been here for a while. Bogged down in forensic physchologist, lawyer, 3 year old and work. I had no time to do anything extra but breath. Yes that was an extra. Good news, though. Some of you may remember my soon to be ex-husband was trying to accuse me of neglect because my now 3 year old was not growing. I found a doctor with celiac disease in Ok. City. He diagnosed her with gluten/casien sensitivity. He sent her to an endocrinologist who diagnosed her with intro-uterine growth retardation (probably due to a small or unhealthy placenta). She will always be around the 5th percentile. Gluten/casien prevents her from gaining weight. She has been gluten free and is gaining slowly but surely. With his testimony and with the forensic physchologist testifying that my husband is unsafe around children things are looking much better. We do not know if he will get a few hours a week supervised visitation from now on or if he will lose parental rights all together. Either way the stress level at my house has gone down to a somewhat normal level. Things are looking up. I look forward to being here on the forum again. Thanks everyone for being here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

That is great news!

I have been thinking about you, how nice to hear things are working out. :D Thanks for posting, because I really needed to hear some good news.

Laura

jerseyangel Proficient

That is great news--I'm so glad that things are working out for you and the little one :)

Welcome back!

blueeyedmanda Community Regular

That's wonderful news :):)

Fiddle-Faddle Community Regular

Glad to hear that things are going better for you!

I just wanted to let you know that my #1 son was born at 37 weeks weighing 4 1/2 pounds, was diagnosed with IUGR, and has probable gluten/casein issues.

I had him on "gluten-lite" even before I knew about gluten, just because I didn't think that there was much nutrition in bread. I went heavy on fish, meat, chicken, legumes, veggies, and fruit, and it really paid off.

He is now, at age 12, taller than I am, and, as far as we know, healthy.

So your little peanut may grow, too! And if she stays small, it will probably be because she is genetically meant to be small.

Best of luck to you both!

babygirl1234 Rookie

im glad that everything is working out for you :)

sillyactsue Explorer

Thanks everyone for the welcome back and encouragement. It is good to be back here and focusing on what is important to keep the little one healthy and happy.

:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      14

      Related issues

    2. - sc'Que? commented on Celiac.com Sponsor: Review's article in Product Reviews
      2

      Bold Taste, No Alcohol & Crafted to Remove Gluten: Daura Non-Alc Beer Takes Alcohol-Free Beer to the Next Level

    3. - Theresa2407 replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Books about celiac

    4. - Known1 replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Books about celiac

    5. - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      3

      Barilla gluten free pasta

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,471
    • Most Online (within 30 mins)
      7,748

    Rita Erickson
    Newest Member
    Rita Erickson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Did they ever tell you specifically which vitamins would interfere with which tests? Fermented pickles source of thiamine  and other B-vitamins, The fermentation process with lactic acid bacteria increases the nutrient value.   Colonies of beneficial bacteria can help crowd out the the bad SIBO. Have you had the rash biopsied for Dermatitus Herpetiformus?  Atopic Dermatitis and dermatitis herpetiformis share symtoms and atopic dermatitis patients have higher risk of dermatitis herpetiformis.  dermatitis herpetiformis is a symptom of Celiac diagnosis. When I had the carotid artery stent, the hospital put down "wheat allergy" for the food service.  I guess allergy puts the fear of god in them more than the misunderstood Celiac Disease.  Whatever keeps me alive in this world.   
    • Theresa2407
      You are correct.  Same place.  I have used their site for so long and have it bookmarked.  Still living in past.  Our support group was affiliated with them.
    • Known1
      Hmm, I think you mean the Gluten Intolerance Group®?  Their website is not gig.net.  Maybe it was at one point?  I am new to all of this, but did find their website here:  https://gluten.org/ Kind Regards, Known1
    • knitty kitty
      @Scott Adams, You're right about corn and wheat not sharing similarities in the 33-mer peptide segment of gluten.  Corn has a completely different peptide that causes an autoimmune reaction because it attaches to HLA-DQ8.  Casein in dairy shares with wheat similarities in the33-mer peptide chain. Sorry about the oversimplification.  Maize Prolamins Could Induce a Gluten-Like Cellular Immune Response in Some Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC3820067/
    • Scott Adams
      I just want to mention that corn and wheat do both contain storage proteins (corn has zein, wheat has gliadin and other gluten proteins), and there are some small similarities in certain amino acid sequences. However, those similarities are not considered medically equivalent, and corn proteins do not trigger the autoimmune response of celiac disease in the vast majority of people with celiac. Celiac disease specifically involves an immune reaction to gluten peptides found in wheat, barley, and rye. Corn is classified as gluten-free because its proteins do not activate that same immune pathway in most individuals. Although corn intolerance is very real, the explanation about the proteins being the same is oversimplified to the point where it's not accurate.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.