Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update


sillyactsue

Recommended Posts

sillyactsue Explorer

I haven't been here for a while. Bogged down in forensic physchologist, lawyer, 3 year old and work. I had no time to do anything extra but breath. Yes that was an extra. Good news, though. Some of you may remember my soon to be ex-husband was trying to accuse me of neglect because my now 3 year old was not growing. I found a doctor with celiac disease in Ok. City. He diagnosed her with gluten/casien sensitivity. He sent her to an endocrinologist who diagnosed her with intro-uterine growth retardation (probably due to a small or unhealthy placenta). She will always be around the 5th percentile. Gluten/casien prevents her from gaining weight. She has been gluten free and is gaining slowly but surely. With his testimony and with the forensic physchologist testifying that my husband is unsafe around children things are looking much better. We do not know if he will get a few hours a week supervised visitation from now on or if he will lose parental rights all together. Either way the stress level at my house has gone down to a somewhat normal level. Things are looking up. I look forward to being here on the forum again. Thanks everyone for being here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

That is great news!

I have been thinking about you, how nice to hear things are working out. :D Thanks for posting, because I really needed to hear some good news.

Laura

jerseyangel Proficient

That is great news--I'm so glad that things are working out for you and the little one :)

Welcome back!

blueeyedmanda Community Regular

That's wonderful news :):)

Fiddle-Faddle Community Regular

Glad to hear that things are going better for you!

I just wanted to let you know that my #1 son was born at 37 weeks weighing 4 1/2 pounds, was diagnosed with IUGR, and has probable gluten/casein issues.

I had him on "gluten-lite" even before I knew about gluten, just because I didn't think that there was much nutrition in bread. I went heavy on fish, meat, chicken, legumes, veggies, and fruit, and it really paid off.

He is now, at age 12, taller than I am, and, as far as we know, healthy.

So your little peanut may grow, too! And if she stays small, it will probably be because she is genetically meant to be small.

Best of luck to you both!

babygirl1234 Rookie

im glad that everything is working out for you :)

sillyactsue Explorer

Thanks everyone for the welcome back and encouragement. It is good to be back here and focusing on what is important to keep the little one healthy and happy.

:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - trents replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - suek54 posted a topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - xxnonamexx replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,247
    • Most Online (within 30 mins)
      7,748

    Noisette
    Newest Member
    Noisette
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
    • suek54
      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application.  And yes, giving the gluten-free diet 110%. Very careful about any cross contamination.  This is my fifth autoimmune condition so well and truly on that bandwagon. 
    • trents
      Welcome to the the celiac.com community, @suek54! Is the Dapsone getting the rash under control? Are you practicing a gluten free diet yet? The only known cause for dermatitis herpetiformis is celiac disease.
    • suek54
      Hi Im new to this game, so bear with me.  May through to December last year totally miserable, covered literally head to toe in the worst rash ever, itching like I just cant explain. After seven different medics told me just to "keep putting the cream on, whatever it is will go in the end" finally one lovely doc diagnosed dermatitis herpetiformis. Biopsy 6 weeks ago and Dapsone, which I seem to be tolerating OK so far.  The NHS is in permanent backlog so no result yet but just wanted to say hello to anyone else with this maddening condition.
    • xxnonamexx
      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.